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Power to the patients! Vote Dec 3-12 for a new Biobank for the Vancouver Clinic

View the Post on the Blog
by Kati and the Phoenix Rising Team



The Vancouver Chronic Diseases Clinic is set to open within the next few months. What better way to support this worthwhile project than to help it win some serious money from a charitable voting contest? With your help and support, we're getting organized to do just that! Although the Aviva Community Fund is a Canadian contest for Canadian projects, people from all over the world are eligible to vote. This is where your help is needed! Details on how you can help can be found further down the page, but first, some background information on the project...


A Patient Initiative

A few months ago someone pointed this voting contest out to me, but I had a hard time trying to find a project that would be both helpful for patients while also meeting the entry criteria. However, with Dr Alison Bested taking up the position of Medical Director at The Vancouver Chronic Diseases Clinic, the project to fund the clinic's most needed item came to mind and an idea was born. Since then, patient involvement has been amazing, including all of you who have spent many hours recruiting voters, voting and also creating videos (such as the ones created by "ME Awareness: Words and Pictures"). Thanks to each and every one of you! But, we're not done yet ;-), we need to bring it home!


BC Women's Foundation Steps in

While this project started as a patient initiative, the BC Women's Foundation have also stepped up to the plate by creating a video for our project. Along with Dr Bested, they provided help with the budget and input about where the funds are needed most. They will also recruit more voters from their own network. The video, presented by Dr Bested, is featured front and center on our Aviva page.


The Project

The idea is to fund freezers for patient samples, including everything needed to process them in the standard way (i.e labelling, spinning and tracking). This equipment will benefit ME, Fibromyalgia and Lyme disease patients admitted to the clinic. Our original idea was to fund the cost of exercise testing equipment (and it is still a very good idea), but when Dr Bested and the BC Women's Foundation started adding up the cost of both projects, the total had passed over $300,000. Each Aviva project in the “big budget” category cannot be more than $150 000, so we put together a bold project which asks for a total of $146,100 in funding.


The Time-line



Aviva held 3 qualifying rounds, each over the course of 2 weeks. The first 10 projects in each budget size category (small, medium and large) moved on to the semi-finals. By the seat of our pants we have successfully made it through the first round. The competition was intense, but the support we received from all around the world enabled us to place amongst the first round qualifiers.

The Semi-finals are the last chance for the community to help out. We need to qualify for the finals, where our project will be judged and ranked amongst the other projects that make it through. Out of 30 semi-finalists in each budget size category, only 10 will be moving to the finals.

The voting period is from December 3rd to December 12th 2012, beginning at 12/noon Eastern Standard Time (Toronto or New York time). By registering to vote in the Aviva contest, you will be given 15 votes in total. You can vote for our project once per day during the voting period. This will require 10 of your 15 votes.



How to Help?

The competition in this last round will be fierce and we will need, at a minimum, 1500 - 2000 votes per day to have a hope of winning. Beyond voting personally, you can help us achieve the votes we need by:-

- asking 5 people right now if they will vote daily starting on Monday

- asking these 5 people if they could get one more person each

- asking if they would like to be reminded daily (you can either connect them to the reminder here or alternatively, you could set your own reminder each day)

Historically, the voting in these contests has always decreased during the weekends, across all charities - these will be the days where we can gain ground, so please double your efforts on the weekends to ensure that our vote count stays up!


How To Vote?

Some of you may have had trouble voting in the last round. Patients with our diseases suffer from cognitive dysfunction and we are aware of this. To help you get voting, here are a few aids in the form of reminders and detailed instructions on how to vote in the contest.

Where to vote: Aviva site
Facebook page
You can join this event on Facebook to get daily reminders to vote.

Video explaining how to register and how to vote:


(With thanks to ME Awareness: Words and Pictures)

And finally, you can read written instructions from this flyer:



Why Should You Help Your Fellow Canadians?
  • Because a new clinic researching and treating ME, FM and Lyme disease will benefit patients worldwide. It means one more researching team. It sets a precedent for other physicians and for other provinces. Canada needs to step in when it comes to researching the Complex Chronic Diseases that have been neglected for far too long.
  • Voting is free and very safe - Aviva will not send you undesired emails.
  • Voting is also very quick and has the potential to do something very good.
  • By building a strong community, we can help each other by voting in funding contests as well as participating in other campaigns when the need arises.
View the Post on the Blog
 
I agree, Aileen. Come on folks! And please make sure friends and family are voting too.

Detailed instructions can also be found in my post above.

Right now it seems we are getting a little closer to top 10 - so we just need to keep voting and encouraging others in all the ways we can.
 
It's probably too late but is there any chance of having the charity entered also under the "at-risk" youth category? It seems like if you're in that category you get extra chances to win money.

The reason why I think the charity could qualified is because Aviva defines 'at risk' as

"This year, Aviva is awarding up to $150,000 to ideas that support our Street-to-School initiative, which aims to help vulnerable young people who are at risk of being exposed to violence, sexual abuse, drug addiction, prostitution, health issues, a lack of education or fewer career options."

(http://www.avivacommunityfund.org/about/at-risk-youth)

Certainly young people with ME/CFS have health issues and because of that they are at risk for "lack of education" (miss out on school, can't do all activities, etc.) and, down the line, "fewer career options." A UK study by the Tymes trust showed that ME/CFS is the #1 cause of long-term school absence from health issues in the K-12 group. And there are economic studies estimating that kids who have chronic illnesses feel the impact on their careers/ education for the rest of their lives even after they get better due to prime years lost. There's an economic paper on ME/CFS commenting on this too. Anyhow, if we can't do it this time, consider for next time.
 
Bad news folks. We received 105 fewer votes Day 3 (just ended) than Day 2. :cry:
What is it going to take to get people to vote??
Thank you to everyone who is.
Details in the attached pdf
 

Attachments

  • Aviva_semi-final_results.pdf
    30.2 KB · Views: 12
Cute ad. It just gave me an idea. How about this? We could offer the services (non-voluntary basis) of one Dr. Weasel for your very own private therapy session if you don't vote! That should get the votes pouring in. :devil: Just might find a way to put the guy to good use after all. :lol:
 
I chcecked the results of the best 20 organisations in our category. Just be carefull because sometimes it doesnt show the good numbers. I chcecked it in the time when americans start to wake up slowly (around 6 a.m.) so it means that during the day we will a bit lose our position because we have a lot of european and australian voters. here are the results:

1. Riehl skate park - 5678
2. Undercurrent Youth Centre - 5536
3. Une vraie cour d'école pour ados! - 5463
4. Fighting for Healthy, Affordable Food in North End Halifax - 5120
5. Exoskeleton for Trevor Greene, Canadian Veteran – 4779


6. Nouveau gymnase pour notre club de gymnastique Les Hirondelles – 4482
7. Stay Strong Nick Roma 4462
8. Harder-4-Carter: The Carter Antila Memorial SkatePark - 4210
9. Non-profit Companion Animal Hospital & Shelter – 3876
10. Castle Park's "Play for ALL", universally accessible playground – 3767


11. Un préau pour L'École des Enfants-de-la-Terre - 3557
12. Medical equipment for a new chronic diseases clinic in Vancouver – 3520
13. Projet Paradis / Paradis Project – 3492
14. The Power of Play - A Barrier Free Playground – 3329
15. Sensory Therapy Room for kids at Lutherwood - 3025


16. Building Change -A New Shelter for the RCSPCA - 2951
17. Vera M. Welsh & community of Lac La Biche needs a new playground - 2937
18. Sports for all 2902
19. Valley Park Go Green Cricket Field Project - Let There Be Lights - 2883
20. Volunteering to Independence Program "the Katimavik VIP program" - 2718

I would do a small analyse. Our results are not pesimistic but also not optimistic. We are only 250 votes behind the 10 th place but also other organisations are not far away from us. if you look at other organisations there are a lot of kids organisations and how we could already see it - the kids are able to bring thousands of votes in the last day. so we should try to catch at least 7-8 position and the gap is already around 900 votes. it´s not a lot but we have to do something now to change it because every day it will be more difficult. We already did a lot of commercial and we can continue but it doesnt bring us significant number of new voters. i think we have 2 possibilities. 1. to try to contact a big ME, fibromyalgia, Lyme,...organisation from our kind of diseas and ask them to make a big call to their members. If we post a promotion on a page it brings only few votes - it has to be someone from that community. 2. to try to find some kids organisations from our area and ask them to vote for us.
I think without this we will not be sucessfull. So any suggestions are welcome.
 
I wonder if the problem is people think they only need to vote ONCE. The reason I say this is that we have 3,258 supporters but we only have 4,163 votes. If each supporter voted more than once, shouldn't we have somewhere around 6,400 instead? It's possible some people only started voting yesterday but this would be balanced somewhat by people like me who've voted everyday.
 
Has anyone experienced problems with registering on the Aviva website? Three people said that they tried to register but the confirmation email with the link to finalise registration has not arrived.
 
Has anyone experienced problems with registering on the Aviva website? Three people said that they tried to register but the confirmation email with the link to finalise registration has not arrived.
A friend of mine complained of the same problem. When she tried to register again, she was informed that she was already registered.
 
Onder the tab. "About the competition" the FAQ, for those who have trouble registering, there is a contact page, so the problem could be corrected for them. (On the Aviva page)

It's happened to one of my friend.