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The only German specialist I have come across is Dr Bieger - I think he is in northern Germany. Then there is Uta Santos-Koenig in Austria and the guru KDM (Kenny De Meirleir) in Belgium.
Dr. Bieger is actually in Munich, so he may be a good choice. He's a private doctor though and unless you have private insurance it won't be covered. I haven't seen him myself but I might if I was well enough and living nearer.
All the best to your friend!
I posted this in another thread on ME/CFS in Germany, but I think it's relevant here too:
I'm in Munich and I go to the Burn Out Diagnostic Institute: http://www.burn-out-muenchen.de/
Burnout is a recognised condition here, and the clinicians have a lot of experience in dealing with CFS. I've been seeing them for just two weeks and I'm very hopeful for the future. My ATP and methylation tests showed that my mitochondria are seriously struggling, and a vitamin B12 deficiency was identified. I am still to receive more results (test for leaky gut in particular), and I will be starting treatment for my mitochondria next week. Treatment should take 6-12 months.
I have public insurance and that covers most "normal" tests and the doctor visits themselves, but so far I've paid about €300 for various blood, urine and stool tests. I consider this to be a bargain, as I assumed the clinic would be private. I've been living with CFS for about 6 years now, and I would be willing to pay any money to get my life back. My echocardigraph, EKG, lung function tests and ultrasound of everything from hips to throat were all free.
It's WONDERFUL to go to doctor and not have to battle for the care I deserve, not have to educate them. I don't speak much German but the doctors speak great English.
Yes, I didn't even have to suggest the tests! They asked me questions based on the Canadian criteria for CFS at the start of my first session, and then did the tests of my major organ systems. When my heart and lungs didn't perform so well (with no overt sign of pathology) they hypothesised that my mitos were weak and then launched into the blood tests.Wow.. its very interesting to hear how different things are in Germany even if its called "Burn Out" .. Im amazed they did ATP and methylation and mitochondrial tests etc
Wow.. its very interesting to hear how different things are in Germany even if its called "Burn Out" .. Im amazed they did ATP and methylation and mitochondrial tests etc
I am still to receive more results (test for leaky gut in particular), and I will be starting treatment for my mitochondria next week. Treatment should take 6-12 months.
.
I posted a reply at the end of the thread. Carmen Scheibenbogen may have some ideas, or be a doc to go to. Not sure.A friend in Germany is seeking help for a relative (a young woman) who has been flattened by what sounds like ME/CFS and is getting no help from her local physician (in a town near Munich). Does anyone know of an ME/CFS specialist in Germany? Thanks!
How is your experience and results now with that clinic in Munich? Would you still recommend it? I m planning to travel from canada to germany just to get proper diagnosis and treatment. Am so sick of being in prison in my own body!Wow.. its very interesting to hear how different things are in Germany even if its called "Burn Out" .. Im amazed they did ATP and methylation and mitochondrial tests etc
I already sent a reply but to another member by mistake. As I said I m ready to travel to germany, leave my kids and husband in Canada, if it is to have good diagnostic and good results. Am so sick of this!I posted this in another thread on ME/CFS in Germany, but I think it's relevant here too:
I'm in Munich and I go to the Burn Out Diagnostic Institute: http://www.burn-out-muenchen.de/
Burnout is a recognised condition here, and the clinicians have a lot of experience in dealing with CFS. I've been seeing them for just two weeks and I'm very hopeful for the future. My ATP and methylation tests showed that my mitochondria are seriously struggling, and a vitamin B12 deficiency was identified. I am still to receive more results (test for leaky gut in particular), and I will be starting treatment for my mitochondria next week. Treatment should take 6-12 months.
I have public insurance and that covers most "normal" tests and the doctor visits themselves, but so far I've paid about €300 for various blood, urine and stool tests. I consider this to be a bargain, as I assumed the clinic would be private. I've been living with CFS for about 6 years now, and I would be willing to pay any money to get my life back. My echocardigraph, EKG, lung function tests and ultrasound of everything from hips to throat were all free.
It's WONDERFUL to go to doctor and not have to battle for the care I deserve, not have to educate them. I don't speak much German but the doctors speak great English.