*GG*
senior member
- Messages
- 6,389
- Location
- Concord, NH
By signing up for this patient contact registry, you are furthering research and potential cures and treatments. Patients who participate in research make it possible for researchers create new studies and work for the improvement of all our lives.
The RDCRN provides a Contact Registry that is patient populated. The registry collects contact information and self-diagnosis of people with rare diseases via the internet and it is a useful tool for researchers for recruitment for clinical trials and other projects.
If you want to make a contribution to mitochondrial disease research, the absolute best thing you can do is participate in both registries. For information on the RDCRN and details on how to join, visitwww.umdf.org/rdcrn.
Join the RCDRN Patient Contact Registry NOW!
1. From the highlighted links below, click on the link that best describes your diagnosis. If you are not yet diagnosed, scroll to the bottom of the list and choose
"Mitochondrial Disease - Not Classified"
2. After you have read and agreed to the Authorization, the Registry form will appear on your screen. This form asks you for information such as your (or your child's) name,
address, birth date, place of birth, email address, or items relevant to your (or your child's) disorders.
3. At the bottom of the registry form, click "Complete Registration" to send your information to the RCDRN.
http://www.umdf.org/site/c.8qKOJ0MvF7LUG/b.8370573/k.B8EA/RCDRN.htm
The RDCRN provides a Contact Registry that is patient populated. The registry collects contact information and self-diagnosis of people with rare diseases via the internet and it is a useful tool for researchers for recruitment for clinical trials and other projects.
If you want to make a contribution to mitochondrial disease research, the absolute best thing you can do is participate in both registries. For information on the RDCRN and details on how to join, visitwww.umdf.org/rdcrn.
Join the RCDRN Patient Contact Registry NOW!
1. From the highlighted links below, click on the link that best describes your diagnosis. If you are not yet diagnosed, scroll to the bottom of the list and choose
"Mitochondrial Disease - Not Classified"
2. After you have read and agreed to the Authorization, the Registry form will appear on your screen. This form asks you for information such as your (or your child's) name,
address, birth date, place of birth, email address, or items relevant to your (or your child's) disorders.
3. At the bottom of the registry form, click "Complete Registration" to send your information to the RCDRN.
http://www.umdf.org/site/c.8qKOJ0MvF7LUG/b.8370573/k.B8EA/RCDRN.htm
