The ME (ME/CFS) Fundraising Group is planning to post a poll tomorrow on their Facebook page at:
http://on.fb.me/twyeN3 to determine which of the ME/CFS nonprofits competing in the Chase Contest may have the best chance of winning. Because of a fewer number of votes this year allowed to each voter and the fact that nonprofits with operating expenses of up to $10 million are allowed to compete, we believe the competition will be more challenging for our ME/CFS nonprofits. Therefore, we believe it is necessary to have a voting strategy to help our ME/CFS community win.
As far as we have heard (or judging by their completed profile pages), it appears that eight of our 24 nominated nonprofits are planning to compete in the contest. These nonprofits are: Phoenix Rising, Rocky Mountain, Wisconsin, New Jersey, OFFER, Enterovirus Foundation, NIDA, and HHV-6 Voundation. If you know of any others, please let us know.
If you are not a member of Facebook, you could set up an account. If you are a Facebook member but not a Fundraising Group member, you could ask to join to take the poll.
If the leaders of the competing nonprofits come up with a voting strategy, that will be given priority over the poll. We desperately want some of our nonprofits to win and feel very strongly a strategy is imperative for us to win. Thanks for your help!
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Here are the mission statements of the eight nonprofits that we think are planning to compete and have their profile pages completed. You can also check their websites to learn more. ROCKY MOUNTAIN CFS ASSOCIATION INC
AKA: Rocky Mountain CFS/ME and FM Associaition
7020 E Girard Ave, Suite 207, Denver, CO, 80224
EIN: 84-1178034
Causes: Health
Mission
The Rocky Mountain CFS/ME & FM Association is a 501(c)(3) non-profit organization for those affected by Chronic Fatigue Syndrome (CFS) / Myalgic Encephalomyelitis (ME), and Fibromyalgia (FM). Our mission: Advocate for research Awareness for understanding Educate for patient care Support for hope
Find this Charity online
www.rmcfa.org
Donate:
www.rmcfa.org/donations.html
www.facebook.com/pages/RMCFA-Rocky-Mountain-CFS-ME-FM-Association/162296707138242
twitter.com/rmcfaorg
Charity Administrator
Mike Munoz
Wisconsin Chronic Fatigue Syndrome Association, Inc.
AKA: Wisconsin ME and CFS Association, Inc. ( 1987)
733 Lois Dr, Sun Prairie, WI, 53590
EIN: 39-1614649
Causes: Health
Mission
In 1987, Wisconsin pledged to assist patients and their families. In 2012, the needs of the majority of our underserved patient population have changed. People sick with ME and CFS who lack computer access and /or skills to use a computer, may be denied the very basis of hope, that is, a proper diagnosis, better medical care, and knowledge about promising research. Mission: The CO-OP for Services is a toll free health information access number.Trained responders briefly talk with people who are ill, secure a mailing address, and send it to a designated confidential e mail address. WIsconsin will send out a package of good medical information about CFS. Goals: To locate the large number of undiagnosed and misdiagnosed CFS patients To give patients with no Internet access a way to get medically approved information. SEPT 1 start up: Health Information CO-OP for Services Toll Free: 1-855-878-5555
Find this Charity online
www.wicfs-me.org
Charity Administrator
PAT FERO
NEW JERSEY CHRONIC FATIGUE SYNDROME ASSOCIATION INC
AKA: NJCFSA
PO Box 477, Florham Park, NJ, 07932
EIN: 22-3367433
Causes: Health
Mission
The primary purpose of the New Jersey Chronic Fatigue Syndrome Association, Inc is to disseminate information about CFS to patients, caregivers, the health care community and the public, organize and maintain patient support groups, promote research into the cause, method of treatment, diagnosis and cure of the disease
Find this Charity online
www.njcfsa.org
Donate:
www.njcfsa.org/donate
www.facebook.com/#!/pages/New-Jersey-Chronic-Fatigue-Syndrome-Association-Inc-NJCFSA/141665745869451
twitter.com/njcfsa
Charity Administrator
Patricia LaRosa
ENTEROVIRUS FOUNDATION INC
268 Bush Street 4044, % Rachel Landphere, San Francisco, CA, 94104
EIN: 26-3513934
Causes: Health
Mission
"The scariest disease you've never heard of..." Help us END EV! According to the CDC there are 50 million enterovirus infections annually in the US and an estimated one billion globally. They are as easy to catch as the common cold. Enterovirus infections such as Coxsackie, EV71, and Echovirus can trigger diseases such as juvenile diabetes, viral myocarditis, viral meningitis, Hand Food and Mouth Disease, pancreatitis, and approximatley 26 disease associations that we know of. There is no treatment. EVF is committed to providing funding for: •Research • Finding antiviral medications that work • Improving diagnostic testing • Accelerating communication across the research and medical communities, including clinical education about the latest in diagnosis and treatment • Raising public awareness about enteroviruses and their role in disease.
Find this Charity online
www.EnterovirusFoundation.org
Donate: npo1.networkforgood.org/Donate/Donate.aspx?npoSubscriptionId=1000786%22%3e%3cimg
www.facebook.com/EVForg
Charity Administrator
Rachel Landphere
NEURO IMMUNE DISEASE ALLIANCE INC
AKA: NIDA
29302 Laro Drive, Agoura Hills, CA, 91301
EIN: 27-2861703
Causes: Health
Mission
A specific list of high-priority projects ( The OMI-MERIT Initiative), focused on finding diagnostic tools and treatments, including a Rituxan clinical trial, was created and agreed upon by a global consortium of world renowned researchers and clinicians including, in alphabetical order, Drs. Lucinda Bateman, Yenan Bryceson, Ron Davis, David Dreyfus, Oystein Fluge, Mady Hornig, Nancy Klimas, Andy Kogelnik (Chair), Charles Lapp, Jay Levy, Alan Light, Kathleen Light, Sonya Marshall, Mauro Malnati, Olav Mella, Jose Montoya, Dan Peterson, Simone Pensieroso, Ila Singh, Carmen Scheibenbogen, Charles Shepherd, and Rozamond Vallings. NIDA is collaborating with the Open Medicine Institute (OMI) and all monies raised as part of the Chase-sponsored contest will support the OMI-MERIT Initiative. The goals are to fast-track answers in diagnosis and treatment. For more information please visit
www.openmedicineinstitute.org.
Find this Charity online
www.nidalliance.org
Donate:
www.nidalliance.org/ways-to-help.html
www.facebook.com/pages/Chronic-Fatigue-Syndrome-Support-CFSME/273240696061761
Charity Administrator
Linda Tannenbaum
ORGANIZATION FOR FATIGUE AND FIBROMYALGIA EDUCATION AND RESEARC
AKA: OFFER
1002 E South Temple Ste 408, Salt Lake Cty, UT, 84102
EIN: 87-0687610
Causes: Health
Mission
Our mission is to offer hope to individuals who are affected by Myalgic Encephalomyelitis/Chronic Fatigue Syndrome(ME/CFS) and Fibromyalgia (FM) by providing and supporting education, advocacy, research and networking for patients and families. We will accomplish this mission by • Educating patients, families, physicians and community members; • Changing perspectives within community systems, families, governments, public insurance companies, and providers through advocacy and greater awareness; • Supporting ongoing CFS and FM research and disseminate current, accurate information to patients, providers, and other interested parties; • Improving community resources for patients with CFS and FM, by identifying a network of healthcare providers, social workers, and other professionals who are informed, compassionate, qualified, knowledgeable and affordable.
Find this Charity online
www.offerutah.org/
Donate:
www.offerutah.org/donations.htm
www.facebook.com/offer.utah.3
twitter.com/OFFERUtahorg
Charity Administrator
Paul Shepherd
PHOENIX RISING AN NEID CORPORATION
3709 Beaver Creek Dr, Raleigh, NC, 27604
EIN: 27-3313361
Causes: Health
Mission
Phoenix Rising is a non-profit corporation dedicated to providing people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) information and online programs they can use to enhance their health and well-being.
Find this Charity online phoenixrising.me
Donate: phoenixrising.me/donating
www.facebook.com/PhoenixRisingMECFS?ref=hl
Charity Administrator
Karen Luoto
HHV-6 FOUNDATION
1253 Coast Village Rd Ste 105, Santa Barbara, CA, 93108
EIN: 20-1043981
Causes: Health
Mission
The HHV-6 Foundation is a non-profit entity founded to encourage scientific exchange between investigators and to promote scientific and clinical research on the under-appreciated viruses HHV-6A and HHV-6B. The Foundation sponsors international conferences, supports scientists and clinicians seeking to clarify the role of the two HHV-6 viruses in disease, and acts as a resource for patients suffering from HHV-6 infection/reactivation worldwide.
Find this Charity online
www.hhv-6foundation.org
Donate:
www.hhv-6foundation.org/support-us
www.facebook.com/Hhv6Foundation
Charity Administrator
Jill Chase