Firestormm
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Published full paper: BMJ Open, 16 August 2012: http://bmjopen.bmj.com/content/2/4/e001417.full.pdf+html?sid=77427d96-9e24-4fe1-bc77-e43f200fef96
Equity of access to specialist chronic fatigue syndrome (CFS/ME) services in England (2008–2010): a national survey and cross-sectional study
Simon M Collin(1,2), Jonathan A C Sterne (1), William Hollingworth(1), Margaret T May (1), Esther Crawley(1,2)
(1) School of Social and Community Medicine, University of Bristol, Bristol, UK
(2) Centre for Child and Adolescent Health, University of Bristol, Bristol, UK
Abstract
OBJECTIVES
Provision of National Health Service (NHS) specialist chronic fatigue syndrome or myalgic encephalomyelitis (CFS/ME) services in England has been deemed patchy and inconsistent. Our objective was to explore variation in the provision of NHS specialist CFS/ME services and to investigate whether access is related to measures of deprivation and inequality.
DESIGN
Survey of all CFS/ME clinical teams in England, plus cross-sectional data from a subset of teams.
SETTING
Secondary care.
OUTCOME MEASURES
We used clinic activity data from CFS/ME clinical teams in England to describe provision of specialist CFS/ME services (referral, assessment and diagnosis rates per 1000 adults per year) during 2008–2011 according to Primary Care Trust (PCT) population estimates, and to investigate whether use of services was related to PCT-level measures of deprivation and inequality. We used postcode data from seven services to investigate variation in provision by deprivation.
RESULTS
Clinic activity data were obtained from 93.9% (46/49) of clinical teams in England which between them received referrals from 84.9% (129/152) of PCTs. 12 PCTs, covering a population of 2.08 million adults, provided no specialist CFS/ME service. There was a six-fold variation in referral and assessment rates between services which could not be explained by PCT-level measures of deprivation and inequality.
The median assessment rate in 2010 was 0.25 (IQR 0.17, 0.35) per 1000 adults per year. 91.9% (IQR 76.5%, 100.0%) of adults assessed were diagnosed with CFS/ME. Postcode data from seven clinical teams showed that assessment rates were equal across deprivation quartiles for four teams but were 40–50% lower in the most deprived compared with the most affluent areas for three teams.
CONCLUSIONS
Two million adults in England do not have access to a specialist CFS/ME service. In some areas which do have a specialist service, access is inequitable. This inequity may worsen with the impending fragmentation of NHS commissioning across England.
Comment: Medical Xpress: http://medicalxpress.com/news/2012-08-chronically-fatigued-patients-huge-inequalities.html
I don't know what condition Crawley is talking about here or what prevalence she is looking at, but 'millions' I don't think so - and only 3-8% expected to fully recover if untreated?! What?! Where's she got that from?!:
Equity of access to specialist chronic fatigue syndrome (CFS/ME) services in England (2008–2010): a national survey and cross-sectional study
Simon M Collin(1,2), Jonathan A C Sterne (1), William Hollingworth(1), Margaret T May (1), Esther Crawley(1,2)
(1) School of Social and Community Medicine, University of Bristol, Bristol, UK
(2) Centre for Child and Adolescent Health, University of Bristol, Bristol, UK
Abstract
OBJECTIVES
Provision of National Health Service (NHS) specialist chronic fatigue syndrome or myalgic encephalomyelitis (CFS/ME) services in England has been deemed patchy and inconsistent. Our objective was to explore variation in the provision of NHS specialist CFS/ME services and to investigate whether access is related to measures of deprivation and inequality.
DESIGN
Survey of all CFS/ME clinical teams in England, plus cross-sectional data from a subset of teams.
SETTING
Secondary care.
OUTCOME MEASURES
We used clinic activity data from CFS/ME clinical teams in England to describe provision of specialist CFS/ME services (referral, assessment and diagnosis rates per 1000 adults per year) during 2008–2011 according to Primary Care Trust (PCT) population estimates, and to investigate whether use of services was related to PCT-level measures of deprivation and inequality. We used postcode data from seven services to investigate variation in provision by deprivation.
RESULTS
Clinic activity data were obtained from 93.9% (46/49) of clinical teams in England which between them received referrals from 84.9% (129/152) of PCTs. 12 PCTs, covering a population of 2.08 million adults, provided no specialist CFS/ME service. There was a six-fold variation in referral and assessment rates between services which could not be explained by PCT-level measures of deprivation and inequality.
The median assessment rate in 2010 was 0.25 (IQR 0.17, 0.35) per 1000 adults per year. 91.9% (IQR 76.5%, 100.0%) of adults assessed were diagnosed with CFS/ME. Postcode data from seven clinical teams showed that assessment rates were equal across deprivation quartiles for four teams but were 40–50% lower in the most deprived compared with the most affluent areas for three teams.
CONCLUSIONS
Two million adults in England do not have access to a specialist CFS/ME service. In some areas which do have a specialist service, access is inequitable. This inequity may worsen with the impending fragmentation of NHS commissioning across England.
Comment: Medical Xpress: http://medicalxpress.com/news/2012-08-chronically-fatigued-patients-huge-inequalities.html
The research, led by academics at the University of Bristol, is the first study of CFS/ME service provision in England which has investigated whether access to services is linked to measures of social deprivation and inequality.
I don't know what condition Crawley is talking about here or what prevalence she is looking at, but 'millions' I don't think so - and only 3-8% expected to fully recover if untreated?! What?! Where's she got that from?!:
Dr Esther Crawley, lead author and Reader in Child Health at the University of Bristol’s School of Social and Community Medicine, said:
“Several million people in England are affected by this debilitating condition and only a small proportion (three to eight per cent) of CFS/ME patients are expected to recover fully if untreated. These findings reveal the magnitude of inequality faced by many patients in need of specialist care, and the consequences for those from some of the most deprived areas, who were half as likely to access specialist services compared with those from the most affluent areas.“