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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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A completely uneducated guess Cort - some kind of neuropathy from damaged nerves - I do recall one Doc in ER speaking about myelin sheath damage (he suspected). But Dr Vernon and Dr Clauw will hopefully solve for us.
I heard PPS does involve damaged nerves.
A completely uneducated guess Cort - some kind of neuropathy from damaged nerves - I do recall one Doc in ER speaking about myelin sheath damage (he suspected).