Boule de feu
Senior Member
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- Ottawa, Canada
I am about to start this new treatment.
What do you know about it?
Thanks for your help!
What do you know about it?
Thanks for your help!
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My daughter took it for a few years, without major problems. She did develop tardive dyskinesia but it stopped when we lowered the dose. She took it for slow gut motility, and vomited without it. She now takes domperidone instead, which for her works the same. She does not have CFS, but has autistic traits. There were no changes in mood for her when she took it.
You might want to provide a link. I have never heard of it, but I also don't have nausea.
GG
At the time she took it, she was 2. She stayed on it for at least 6 years, probably longer. She developed tardive dyskinesia somewhere in that time, younger as I remember it, as she was on the maximum dose. She had a big head twitch, and a grimace, so I told the GI who said to give her less, which worked. A few (3-ish) years ago we switched to domperidone, which she is still on. No difference in any way. No side effects. Without it she vomits, though.
I was on it for three days and it was horrendous. It took that long before I was lucid enough to realise that it was what was causing the terrible side effects. I was in a weird state between consciousness and inability to sleep. I'd try to watch TV, something easy I'd seen before, and last ten minutes because I couldn't focus my eyes on the laptop and couldn't understand what they were saying. So then I'd try to sleep, but I couldn't rest either. I kept on getting shaking fits. I was jittery, sort of anxious, unable to concentrate or really do anything, in a really horrible state. If I was like that long-term, I would have killed myself, it was that bad. When my support worker turned up the first day I was on it, I couldn't even turn over in bed and could barely talk at all. Unfortunately she's not very sensible and didn't realise that she should have called the doctor on the spot, and I was completely unable to think well enough to realise that I needed medical attention. We ended up having to call the doctor during the out of hours service over the weekend.
Metochlopramide has a black box warning in the US, and apparently the ambulance chasers put adverts on TV warning people to look out for its side effects. I am still absolutely horrified that I was put onto it without being warned, and would never recommend anything this nasty.