hi:
i became ill 8 + yrs ago after having an abscessed toothe pulled. the first 2 years were a living nightmare....bedbound and on iv abx being treated for lyme. then i had a slight reprieve and the next few years allowed me to do 1 or 2 small things per day. now for the last 0 months i have been completely bedbound again with fatigue, chest pain, nauseau and pain. i have seen and/or talked with many of the top ME docs in the US and cannot tolerate any of their treatments. i have a 10 yr old son and am afraid i will die and leave him without a mother at a young age.
where can i turn for help. my dream is to find a researcher who will take my blood, tissue, csf, whatever and look and try to find what is wrong with me.
or do other pts have tips for how i can start to tolerate any kind of treatment.
i really am afraid to die right now....and very sad to feel so hopeless.
thank you
i became ill 8 + yrs ago after having an abscessed toothe pulled. the first 2 years were a living nightmare....bedbound and on iv abx being treated for lyme. then i had a slight reprieve and the next few years allowed me to do 1 or 2 small things per day. now for the last 0 months i have been completely bedbound again with fatigue, chest pain, nauseau and pain. i have seen and/or talked with many of the top ME docs in the US and cannot tolerate any of their treatments. i have a 10 yr old son and am afraid i will die and leave him without a mother at a young age.
where can i turn for help. my dream is to find a researcher who will take my blood, tissue, csf, whatever and look and try to find what is wrong with me.
or do other pts have tips for how i can start to tolerate any kind of treatment.
i really am afraid to die right now....and very sad to feel so hopeless.
thank you