taniaaust1
Senior Member
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I havent had a read though of the CDC CFS stuff for a while but are finding there are positive changes since I last read it (which was some time ago).
One thing which i was was really surprised about is the CDC treatment page. http://www.cdc.gov/cfs/general/treatment/index.html
Some quotes which amazed me to see them be saying are
"One key to managing CFS is working with health care professionals to create an individualized treatment program. This program should be based on a combination of therapies, for example traditional and alternative"
Wow they are endorsing us using alternative therapies as well now.
"Living with chronic fatigue syndrome can be difficult. Like other debilitating chronic illnesses, CFS can have a devastating impact on daily life, requiring patients to make significant lifestyle changes and adapt to a series of new limitations."
Sounds like they are accepting now it isnt just a physiological illness with recognising that we need to adapt to new limitations.
"Treatment Options
There are many different types of treatment and management tools available for Chronic Fatigue Syndrome. These include:
Professional Counseling
Cognitive Behavioral Therapy (CBT)
Graded Exercise Therapy (GET)
Symptomatic Treatment
Alternative Therapies
Support Groups
Pharmacologic Therapy
Sleep Hygiene
Pain Therapy
Orthostatic Instability Treatment
Antidepressants"
Wow.. that is such a change from just seeing the useless CBT and GET listed and nothing else. Finally the CDC seem to be getting it.
On http://www.cdc.gov/cfs/general/diagnosis/testing.html they say
" Physiological testing such as sleep studies, exercise testing (including VO2 max), or tilt table testing are appropriate to address specific questions, often in consultation with a specialist."
I wish I'd known that earlier.. I may of been able to convince my specialist to get me tilt table tested years ago and not been stuck mostly housebound due to the POTS.
On http://www.cdc.gov/cfs/pdf/cfs-toolkit.pdf If anyone has a doctor who really follows the psych veiws and insiststhat CFS cases need to be on antidepressants. CDC site has the following
"Treat clinical depression only. People with CFS may show signs of depression, but not have depression" "Use caution in prescribing/taking antidepressants. Some antidepressants may make CFS symptoms worst or cause side effects."
Im now looking forward to reading the rest of their CFS info to see in what other ways the site has been changed.
One thing which i was was really surprised about is the CDC treatment page. http://www.cdc.gov/cfs/general/treatment/index.html
Some quotes which amazed me to see them be saying are
"One key to managing CFS is working with health care professionals to create an individualized treatment program. This program should be based on a combination of therapies, for example traditional and alternative"
Wow they are endorsing us using alternative therapies as well now.
"Living with chronic fatigue syndrome can be difficult. Like other debilitating chronic illnesses, CFS can have a devastating impact on daily life, requiring patients to make significant lifestyle changes and adapt to a series of new limitations."
Sounds like they are accepting now it isnt just a physiological illness with recognising that we need to adapt to new limitations.
"Treatment Options
There are many different types of treatment and management tools available for Chronic Fatigue Syndrome. These include:
Professional Counseling
Cognitive Behavioral Therapy (CBT)
Graded Exercise Therapy (GET)
Symptomatic Treatment
Alternative Therapies
Support Groups
Pharmacologic Therapy
Sleep Hygiene
Pain Therapy
Orthostatic Instability Treatment
Antidepressants"
Wow.. that is such a change from just seeing the useless CBT and GET listed and nothing else. Finally the CDC seem to be getting it.
On http://www.cdc.gov/cfs/general/diagnosis/testing.html they say
" Physiological testing such as sleep studies, exercise testing (including VO2 max), or tilt table testing are appropriate to address specific questions, often in consultation with a specialist."
I wish I'd known that earlier.. I may of been able to convince my specialist to get me tilt table tested years ago and not been stuck mostly housebound due to the POTS.
On http://www.cdc.gov/cfs/pdf/cfs-toolkit.pdf If anyone has a doctor who really follows the psych veiws and insiststhat CFS cases need to be on antidepressants. CDC site has the following
"Treat clinical depression only. People with CFS may show signs of depression, but not have depression" "Use caution in prescribing/taking antidepressants. Some antidepressants may make CFS symptoms worst or cause side effects."
Im now looking forward to reading the rest of their CFS info to see in what other ways the site has been changed.