Hi there,
I am in my early 20s and have had CFS for about two years now. Mine was a gradual onset, had a cold/flu, and noticeably had symptoms come up after that virus. I would say that mine was triggered by a prolonged period of stress - particularly from over-exercising - and that virus came when my immune system was already weakened. I have a mild/moderate case of CFS. I have never been bedridden - but am unable to work. My symptoms include post-exertional malaise/exercise intolerance, sleeping difficulties, brain fog/poor concentration/memory, IBS/dysbiosis, sore achy legs and back, hypoglycemia, etc. I spend most of my day sitting down, I am able to do some housework though I get tired and weak if I stand too long. I can tolerate a small amount of walking and have a hard time reading and learning things.
I am currently seeing an integrated physician - though he's not a specialist in CFS, he's spose to be a very good doctor. I've been reading CFS forums and there are some things I want to try - specifically the simplified methylation protocol, LDN, and possibly the Gupta program (although I understand some people think its a scam). I was wondering if there was any advice you guys could give me. It seems like the biggest stress trigger which worsens my symptoms is physical, I can feel somewhat functional if I just sit on my butt all day (~60%). I'm not sure if I have a virus, since my symptoms are not as bad as many of you. I definately feel like the stress response has been "broken" in my brain, specifically to physical exercise. My doctor says that they are immunological abnormalities from my blood results, so we are pursuing that. My lab results are mostly normal except for elevated TSH, but I've already tried thyroid medication and it seemed to make things wrose.
I would love to just try out a bunch of things, but am afraid I'll just get no results and waste my parent's money, seeing as there is still not enough research into CFS (and I've already spent over $10k on medical care with no real results so far). I think the first thing I will try is the simplified methylation protocol as it is relatively cheap and easy to follow.
Thanks
I am in my early 20s and have had CFS for about two years now. Mine was a gradual onset, had a cold/flu, and noticeably had symptoms come up after that virus. I would say that mine was triggered by a prolonged period of stress - particularly from over-exercising - and that virus came when my immune system was already weakened. I have a mild/moderate case of CFS. I have never been bedridden - but am unable to work. My symptoms include post-exertional malaise/exercise intolerance, sleeping difficulties, brain fog/poor concentration/memory, IBS/dysbiosis, sore achy legs and back, hypoglycemia, etc. I spend most of my day sitting down, I am able to do some housework though I get tired and weak if I stand too long. I can tolerate a small amount of walking and have a hard time reading and learning things.
I am currently seeing an integrated physician - though he's not a specialist in CFS, he's spose to be a very good doctor. I've been reading CFS forums and there are some things I want to try - specifically the simplified methylation protocol, LDN, and possibly the Gupta program (although I understand some people think its a scam). I was wondering if there was any advice you guys could give me. It seems like the biggest stress trigger which worsens my symptoms is physical, I can feel somewhat functional if I just sit on my butt all day (~60%). I'm not sure if I have a virus, since my symptoms are not as bad as many of you. I definately feel like the stress response has been "broken" in my brain, specifically to physical exercise. My doctor says that they are immunological abnormalities from my blood results, so we are pursuing that. My lab results are mostly normal except for elevated TSH, but I've already tried thyroid medication and it seemed to make things wrose.
I would love to just try out a bunch of things, but am afraid I'll just get no results and waste my parent's money, seeing as there is still not enough research into CFS (and I've already spent over $10k on medical care with no real results so far). I think the first thing I will try is the simplified methylation protocol as it is relatively cheap and easy to follow.
Thanks