taniaaust1
Senior Member
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- 13,054
- Location
- Sth Australia
Yesterday I found out that once again I have been rejected in getting any help (unless I want to pay over $32 aussie dollars an hr). (thou I can now follow up this latest rejection with yet ANOTHER meeting which Im doing too.. thank God Im currently up to some meetings in my home and not too sick currently to have even those at times).
It's to the point where Im now being advised by those in the health fields I was originally refered too to help me.. saying I need to complain to an MP about my situation as they've hit brick walls too with my case. So Ive now started to write a letter for that (to which I also will send a copy to newspaper and also TV current affair shows). Its hard as what Ive been throu sounds too crazy to be believed.
Anyway.. I thought I'd write the letter as a summary of points to get the MPs attention what the whole thing is about and what im going throu. Then after that.. will do proper explaination of each point about what has gone on in my case. My summary Im "starting letter off with", is going as follows. (I just want to know if this seems okay or if anyone can remember anything about my case which I may of posted in the past that I've forgotten or blocked out).
(this may change slightly as Im not sure yet if the other from my town will send her story to the MP with my letter).
my letter starts as follows.
........
"My story is so strange that it sounds unbelievable.. but if you check into this properly, you will find its true.
Im going to provide some phone numbers of family members of mine, along with letters from people who can tell you I arent delusional and that my whole story here is true as crazy as it sounds. Im needing home help, help to get to medical appointments etc etc but just cant get it.
I are including too, the letter of another in my town who has has had some similar discrimation as I.. to the point she had to seek help interstate.
I'll give you a very brief run down of my situation in point form as its easier for me to summarise what Ive been throu like this, then will after explain each thing further detail later in the letter.
- Ive been disabled for most of 14 years. Severely disabled for much of that time. (Currently mostly housebound and cant really leave the house without another being with me as I have collapses to which I then cant get up or walk after having them. Simply going shopping can cause one of these).
- I have an illness which in our country is basically mostly getting ignored so those with it are being majorly discriminated against even by government orgs. As far as Im aware our doctors arent even really being taught about it in medical school, thou some of them think they know about it so those with serious illness are being not helped.
- Discrimination due to disability which happened at Mt Barker Centrelink, Also a lot of wrongness with dealing with Mt Barker Disability job place personal they sent me to.
- I ended up in jail after a near suicide attempt in which I was going set myself alight as living with this illness is at times unbearable . ..so then got charged with "attempted" arson after I contacted some mental health people to seek help from them as I'd almost set fire to myself and recognised that I must get help... this happened as I was suicidal due to lack of help in our country, discrimation on my illness including discrimination of government departments I was having to deal with and other severe very wrong factors which have gone on or were happening at that time.
- During the long court proceding (of the above), I CHOOSE to go to jail rather then accept a bail during court case procedings. as being so ill, I was often going hungry due to having disability so severe that I often cant even cook for myself (Im still sometimes in that situation). I am also unable to keep my house clean etc. Just living necessary life is a huge struggle for me due to my disability.
What kind of country are we living in where the disabled rather go to jail to be fed and cared for and actually then do that, rather then struggling to survive at home without the help they need and should be having???
- Discrimation and terrible treatment while in Jail in regards to my disability eg I collapsed and couldnt get back up so was physically assaulted by a guard.
- Discrimination of my illness by various Orgs to which should of helped me.. Ive been passed from org to org with none of them helping me after telling me they will and rejecting my case thou I have a severe disability so they pass me on.. back and forth.
- Discrimination from hospitals and doctors cause of what Ive been diagnosed with cause they dont understand the illness (due to lack of being taught about it).
- So much disablity discrimination .. in all kinds of areas. I believe Ive been traumatised by my whole situation of how my physical disability has been treated and still gets treated (or one just gets ignored by those who should be helping). Emotionally Im now carrying so much around with me due to all this and all the abuse Ive had have caused me to develop emotional issues. (Neighbours have rang police this year as I was apparently screaming in my sleep).
- The poor treatment of me in regards to my physical illness has ended up leading to me being so emotionally disturbed at times that I end up self harming... and that then lead to a heavy handed police incident where I was physical assaulted (so said to protect me) which lead to me being further injured. (that one was a police assault.. resulted in a frozen shoulder where I couldnt move my arm properly for over 18mths and I had to have a lot of physio for it. My own self harm incident that day was over by the time police got involved and was actually fairly harmless to me).
and so things go on.. Im still left without the physically support I need thou Im physically disabled so still living a life of severe struggle. Left without support due to all the discrimination out there, due to the lack of understanding about my illness.
The most help Im getting is a psychologist appointment once every 6-8 weeks who is acting like counselling to me to help me deal with the abuse Ive suffered and how Im being treated. She's supporting and encouraging me to travel interstate to seek out specialists in my issues (thing is Im really too sick to travel alone).
Someone in an org who I'd previously been refered too (3 or 4 times now), I was refered to again by crisis people, has now recommended me to write to a MP as they hit brick walls themself while trying to get physical help for me... services knocked me back again (discrimination??). DisablitySA thou Im a client of theirs, wont provide any funding for me to have services.
Im also client of AutismSA but they dont have enough funding for services for adults. (Aspergers' thou isnt my "main" issue).
....
Does that sound okay for a summary for what Im further going to talk about in my letter?
It's to the point where Im now being advised by those in the health fields I was originally refered too to help me.. saying I need to complain to an MP about my situation as they've hit brick walls too with my case. So Ive now started to write a letter for that (to which I also will send a copy to newspaper and also TV current affair shows). Its hard as what Ive been throu sounds too crazy to be believed.
Anyway.. I thought I'd write the letter as a summary of points to get the MPs attention what the whole thing is about and what im going throu. Then after that.. will do proper explaination of each point about what has gone on in my case. My summary Im "starting letter off with", is going as follows. (I just want to know if this seems okay or if anyone can remember anything about my case which I may of posted in the past that I've forgotten or blocked out).
(this may change slightly as Im not sure yet if the other from my town will send her story to the MP with my letter).
my letter starts as follows.
........
"My story is so strange that it sounds unbelievable.. but if you check into this properly, you will find its true.
Im going to provide some phone numbers of family members of mine, along with letters from people who can tell you I arent delusional and that my whole story here is true as crazy as it sounds. Im needing home help, help to get to medical appointments etc etc but just cant get it.
I are including too, the letter of another in my town who has has had some similar discrimation as I.. to the point she had to seek help interstate.
I'll give you a very brief run down of my situation in point form as its easier for me to summarise what Ive been throu like this, then will after explain each thing further detail later in the letter.
- Ive been disabled for most of 14 years. Severely disabled for much of that time. (Currently mostly housebound and cant really leave the house without another being with me as I have collapses to which I then cant get up or walk after having them. Simply going shopping can cause one of these).
- I have an illness which in our country is basically mostly getting ignored so those with it are being majorly discriminated against even by government orgs. As far as Im aware our doctors arent even really being taught about it in medical school, thou some of them think they know about it so those with serious illness are being not helped.
- Discrimination due to disability which happened at Mt Barker Centrelink, Also a lot of wrongness with dealing with Mt Barker Disability job place personal they sent me to.
- I ended up in jail after a near suicide attempt in which I was going set myself alight as living with this illness is at times unbearable . ..so then got charged with "attempted" arson after I contacted some mental health people to seek help from them as I'd almost set fire to myself and recognised that I must get help... this happened as I was suicidal due to lack of help in our country, discrimation on my illness including discrimination of government departments I was having to deal with and other severe very wrong factors which have gone on or were happening at that time.
- During the long court proceding (of the above), I CHOOSE to go to jail rather then accept a bail during court case procedings. as being so ill, I was often going hungry due to having disability so severe that I often cant even cook for myself (Im still sometimes in that situation). I am also unable to keep my house clean etc. Just living necessary life is a huge struggle for me due to my disability.
What kind of country are we living in where the disabled rather go to jail to be fed and cared for and actually then do that, rather then struggling to survive at home without the help they need and should be having???
- Discrimation and terrible treatment while in Jail in regards to my disability eg I collapsed and couldnt get back up so was physically assaulted by a guard.
- Discrimination of my illness by various Orgs to which should of helped me.. Ive been passed from org to org with none of them helping me after telling me they will and rejecting my case thou I have a severe disability so they pass me on.. back and forth.
- Discrimination from hospitals and doctors cause of what Ive been diagnosed with cause they dont understand the illness (due to lack of being taught about it).
- So much disablity discrimination .. in all kinds of areas. I believe Ive been traumatised by my whole situation of how my physical disability has been treated and still gets treated (or one just gets ignored by those who should be helping). Emotionally Im now carrying so much around with me due to all this and all the abuse Ive had have caused me to develop emotional issues. (Neighbours have rang police this year as I was apparently screaming in my sleep).
- The poor treatment of me in regards to my physical illness has ended up leading to me being so emotionally disturbed at times that I end up self harming... and that then lead to a heavy handed police incident where I was physical assaulted (so said to protect me) which lead to me being further injured. (that one was a police assault.. resulted in a frozen shoulder where I couldnt move my arm properly for over 18mths and I had to have a lot of physio for it. My own self harm incident that day was over by the time police got involved and was actually fairly harmless to me).
and so things go on.. Im still left without the physically support I need thou Im physically disabled so still living a life of severe struggle. Left without support due to all the discrimination out there, due to the lack of understanding about my illness.
The most help Im getting is a psychologist appointment once every 6-8 weeks who is acting like counselling to me to help me deal with the abuse Ive suffered and how Im being treated. She's supporting and encouraging me to travel interstate to seek out specialists in my issues (thing is Im really too sick to travel alone).
Someone in an org who I'd previously been refered too (3 or 4 times now), I was refered to again by crisis people, has now recommended me to write to a MP as they hit brick walls themself while trying to get physical help for me... services knocked me back again (discrimination??). DisablitySA thou Im a client of theirs, wont provide any funding for me to have services.
Im also client of AutismSA but they dont have enough funding for services for adults. (Aspergers' thou isnt my "main" issue).
....
Does that sound okay for a summary for what Im further going to talk about in my letter?