Hi all,
I am so fortunate to have all your input. Thanks for the moral support dannybex- I kinda feel like I have been on the airwaves too much lately, feeling completely lost. I will try and go through the issues that you all raised.
Firstly, these are the supplements i am taking:
Digestive enzymes w betaine, with meals.
Jarrow bile salts, 2 tablets with meals.
Douglas B complex 1 cap (includes methyl folate 400mcg)
extra 200mcg solgar methyl folate ( 1/4 tablet)
jarrows m b12 1000mcg sub ling divided into 4 times a day
P5p 50 mg
Sam e 400mg ( bed time)
sunflower lecithin 1200mg
molybdenum 300mcg (new addition)
Carlson ACE 2 tabs vit A 10,000iu, C 1000mg, E 400iu, selenium 100mcg, calcium 100mg
zinc picolinate 100mg
selenium methione 100mcg
milk thistle 10,000mcg
adrenal cortex 250mg
cal/mag 500/250mg
l theanine 200mg ( at night)
magnesium glycinate 200mg (at night)
activated charcoal 4 teaspoons 2 hrs away from meals/supps.
I visited my dr yesterday for some test results, and like always, I have gut issues that seem difficult to deal with. I still have streptoccus even though I have treated it over number of months. I also have candida, gluten antibodies, low Iga and confirmed leaky gut. Dr says I need to work on my gut. She knows I react badly to antifungals and many supplements so she suggested that I try to reintroduce some specific probiotics ( saccharomyces boulardii, metagenics SB ultra flora dysbiosis and VSL 3- not at the same time). She also suggested that i try coconut oil and ghee. She also suggested chlorophyl- i am now nervous about trying more stuff ( I think she thought the clorophyl may help my mercury type symptoms?) Yesterday I added a the boulardi ( bad idea) and itched even more than usual, got increased muscle pain that is still bad today- my head and neck feel like they have been caught in a vice. I guess the boulardi, no matter how much I need to improve my gut, just added to the detox load for my body. When will i learn? Just because the dr said to re introduce, doent mean i can come home and add stuff when i already feel overwhelmed, duh. Sound familiar! Today I am almost bed bound due to jumping in with another supplement.
So that this post doesn't get too long winded, I will indicate what i am inclined to do next, based on your input. I wonder if the 13 weeks at 1000mcg and then the last 2 weeks at 1250 mcg of methyl B12 is just too much detox for my elimination pathways to deal with ( liver and gut issues). I am inclined to rest off all supplements today and then try and start again tomorrow with just 500mcg of mb12 and keep everything else the same. How does that sound?
In relation to a few other things raised- i have added molybdenum a few days ago but havent noticed a difference at this point. As to salicylates, a dr once put me on a sal free diet and it didnt seem to make a difference to my symptoms ( but I will keep this in mind to revisit). I have added some fish oil which almost cant hurt (I have been on it before), but it did not seem to help me much. on the issue of glutathione, i did strat out on transdermal glutathione before i swithched to 'freds protocol'- I did badly on the glutathione and kept reducing the dose but had symtpoms of headaches and nausea that were intolerable even on tiny doses. I stopped it after about 10 days. Kurt- i was intrigued that you needed to add some of all the b 12's. I hadn't thought of that. About a year ago i started on the yasko protocol, which was a bit more tailored for me than Rich's- but largely the same except for Sam-e ( I under methylate and have a genetic mutation with MTHFR). The h b12 did nothing for me after 3 months so i stopped- the methyl b12 has been a whole different ball game. I felt increased symtpoms of all my preexisting and a few more ( teeth pain) start up within 24 hours. I started on 500 mcg mb12 and gradually increased over the last 15 weeks even though I had exacerbated symptoms. From what i read i thought that if i lifted the dose to 1000mcg, the start up should ease at about 3 months but no sign of that!
The only other bits of informatin I can add is that all my symtpoms get worse if i try antifungals or mercury chelation. I suspect that mercury may be a problem for me. i am hoping to be able to revisit mercury issues done the track but was hoping that this protocol might hlp chelate mercury anyway- no one has said whetehr this is possible but I have read that the Swedish have done research to support that m b12 can improve mercury toxicity symptoms. Could it be that i am having a hard time as i am mobilising mercury?
Thanks again to you all. Any other insights would be welcolme. I hope my slow down strategy helps.
warmest, Suzanne