Diagnostics in or near Northern California

[LBS]

I posted in the doctor recommendation forum but didn't get much response, so tonight am reading about an institute in Reno, NV which apparently does research on CFS and related issues and is affiliated with the University there. Is this an appropriate place to contact for a diagnostic workup? Anyone have experience with this place, or other suggestions?

Thanks,

LBS

 

[Sushi]

I posted in the doctor recommendation forum but didn't get much response, so tonight am reading about an institute in Reno, NV which apparently does research on CFS and related issues and is affiliated with the University there. Is this an appropriate place to contact for a diagnostic workup? Anyone have experience with this place, or other suggestions?

Thanks,

LBS

Oops! Better read all the controversy about WPI cause that is likely the institute you are referring to.

Sushi

 

[Tristen]

Dr Peterson, Incline Village NV. Long waiting list, but that may be changing with new facility.

Gordon Medical Associates, Santa Rosa CA. Expensive, but they know me/cfs and Lyme.

Dr Kogelnik, Mountain View CA.


That's all I can think think of right off. Not sure how far north your looking, but there are a number of LLMD's who know me/cfs pretty well. Dr Peterson is the best diagnostician, if you can handle the wait.

 

[LBS]

Thanks, I don't know about the controversy, but if there's controversy I will avoid it. I'm in Sacramento, so those options would probably work for me. I appreciate the suggestions! Thank you so much!

 

[jace]

Dr Montoya at Stanford, Palo Alto also has a good reputation and a long waiting list. FWIW. Good luck with your hunt, LBS.

 

[LBS]

Thank you so much.

When you all say there's a long wait time, what do you mean? Six months? Two years? I'm hoping to at least get a diagnosis so that if, heaven forbid, I should become fully incapacitated I will have some documentation about what is actually wrong with me. Of course I'd rather do that sooner than later but, if I have to wait two years or more, I would rather do that than go to one more doctor who will tell me this is all in my head.

On the other side of the realm of possibility, my current doctor is treating me, but he's treating through Eastern medicine and diagnostic categories are way different there. But he's trained in Western medicine as well, so I wonder if I could get a "politically correct" diagnosis through him in the event I need one more quickly. Might be worth talking with him about it, though I really do feel I need the full workup from someone who has a good idea about what to look for at this point.

 

[Sushi]

Hi,

Can you travel? Nancy Klimas in Miami is a very good doctor and will do a lot of testing. Her wait list is shorter (several months?). Some of the docs mentioned who have long wait lists have lists of a year or more.

I chose to fly from the States to Brussels to see Dr. De Meirleir for testing and treatment. His fees are low, so it was actually cheaper though a very hard trip. I am pleased with the diagnostics and treatment there.

You might want to sign into chat (lower right corner) and then you can do some back and forth questions with people. Once you sign in, either join a public chat or click on chat next to someone's name.

Best wishes,
Sushi

 

[LBS]

Hi Sushi,

I can travel, and would be willing, but I'm really funny about taking on debt and probably couldn't afford that and the testing, too. I guess it would depend upon how much it all actually costs. Then again, it would take me some time to save up the funds to do it, anyway. I should probably set a goal of doing this within the next year and see what I will need to save to make that happen.

 

[Tristen]

Yes, Dr Peterson is over a year wait. Was last I heard anyhow.

No idea how long a wait at Gordon. You could call the receptionist, I think her name is Carla 707-575-5180

Couple links http://chronicfatigue.stanford.edu/

http://www.openmedicineinstitute.org/Welcome.html

 

[Ocean]

Thank you so much.

When you all say there's a long wait time, what do you mean? Six months? Two years? I'm hoping to at least get a diagnosis so that if, heaven forbid, I should become fully incapacitated I will have some documentation about what is actually wrong with me. Of course I'd rather do that sooner than later but, if I have to wait two years or more, I would rather do that than go to one more doctor who will tell me this is all in my head.

On the other side of the realm of possibility, my current doctor is treating me, but he's treating through Eastern medicine and diagnostic categories are way different there. But he's trained in Western medicine as well, so I wonder if I could get a "politically correct" diagnosis through him in the event I need one more quickly. Might be worth talking with him about it, though I really do feel I need the full workup from someone who has a good idea about what to look for at this point.

Maybe you could try that place that does exercise testing? If your main concern right now is documentation for future potential disability claims, that might be useful. It's not cheap but I've heard it does help people with the disability process. And I think it's in California. I'm sure others will know the name of the place I'm referring to. If you just want a diagnosis, I think any rheumatologist could give one. Mine was just through a plain old rheumatologist, not a CFS specialist of any kind. Just some ideas, not sure if they will be helpful to you.

 

[Valentijn]

The one in California is the Pacific Fatigue Lab in Stockton. http://ets.uop.edu/Academics/School...Sciences/About/Pacific-Fatigue-Lab/About.html