Graham
Senior Moment
- Messages
- 5,188
- Location
- Sussex, UK
A group of us from Phoenix have almost finished an analysis of the PACE trial - one that takes a critical eye over what has been claimed, but in a more easy-to-read manner. We want it to create a big impact. It has high-level backing and is almost ready.
We have been using the results from a survey amongst members and friends to highlight the problems in the assessment methods they used, and have now got 62 very useful replies. But the PACE trial had 160 in each of the 4 groups, so we would like to bring our total up to at least 100 to give it more weight.
It would be great if you felt you could take part. The original thread is here, but you don't need to go there. It is much easier than it looks, and don't agonise over your answers - part of the analysis is to do with how difficult it is to answer accurately.
First of all tell me whether your are mild, moderate or severe, where mild is defined as being able to lead a reasonably normal life, moderate is defined as not being able to work, and being able to do less than 50% of what you could do before you became ill. Severe is defined as being able to do less than 25% of what you could do before you became ill, and being dependent on other people for activities such as cooking and shopping.
Then score the answers to 11 questions, 0 which means better than when I was healthy, 1 which means similar to when I was healthy, 2 which means more of a problem than when I was healthy and 3 - much more of a problem.
Chalder Fatigue Scale
Do you have problems with tiredness?
Do you need to rest more?
Do you feel sleepy or drowsy?
Do you lack energy?
Do you have trouble starting things?
Do your muscles have less strength?
Do you feel weak?
Do you have difficulty concentrating
Do you find it more difficult to find the correct word?
Do you make slips of the tongue when speaking?
How is your memory?
Please send me three lots of scores - one for this week, one for a bad patch lasting a week or more over the last year, and one for a good patch.
My Score:
Graham - moderate - today 2,2,2,3,1,1,1,2,2,2,3 bad 3,3,3,3,2,1,1,2,3,2,3 good 2,2,2,3,1,1,1,2,2,2,3 (yes, I'm on a good patch at the moment).
Some people have copied and pasted the questions and put their score beside them - whatever works for you! Make it easy on yourself.
You can post your scores here, send them to me in a private message, or email them to me - graham.mcphee@gmail.com
If you find this confusing, send me an email, and I will send you a form to fill in, which is easier.
Thanks in anticipation.
Graham
We have been using the results from a survey amongst members and friends to highlight the problems in the assessment methods they used, and have now got 62 very useful replies. But the PACE trial had 160 in each of the 4 groups, so we would like to bring our total up to at least 100 to give it more weight.
It would be great if you felt you could take part. The original thread is here, but you don't need to go there. It is much easier than it looks, and don't agonise over your answers - part of the analysis is to do with how difficult it is to answer accurately.
First of all tell me whether your are mild, moderate or severe, where mild is defined as being able to lead a reasonably normal life, moderate is defined as not being able to work, and being able to do less than 50% of what you could do before you became ill. Severe is defined as being able to do less than 25% of what you could do before you became ill, and being dependent on other people for activities such as cooking and shopping.
Then score the answers to 11 questions, 0 which means better than when I was healthy, 1 which means similar to when I was healthy, 2 which means more of a problem than when I was healthy and 3 - much more of a problem.
Chalder Fatigue Scale
Do you have problems with tiredness?
Do you need to rest more?
Do you feel sleepy or drowsy?
Do you lack energy?
Do you have trouble starting things?
Do your muscles have less strength?
Do you feel weak?
Do you have difficulty concentrating
Do you find it more difficult to find the correct word?
Do you make slips of the tongue when speaking?
How is your memory?
Please send me three lots of scores - one for this week, one for a bad patch lasting a week or more over the last year, and one for a good patch.
My Score:
Graham - moderate - today 2,2,2,3,1,1,1,2,2,2,3 bad 3,3,3,3,2,1,1,2,3,2,3 good 2,2,2,3,1,1,1,2,2,2,3 (yes, I'm on a good patch at the moment).
Some people have copied and pasted the questions and put their score beside them - whatever works for you! Make it easy on yourself.
You can post your scores here, send them to me in a private message, or email them to me - graham.mcphee@gmail.com
If you find this confusing, send me an email, and I will send you a form to fill in, which is easier.
Thanks in anticipation.
Graham
