PERMISSION TO FORWARD AND RE-POST ON OTHER FORUMS, SOCIAL NETWORKING SITES AND USE IN NEWSLETTERS
I have placed the comment below on the website of the Sussex Argus following the posting of a person called cfs_patient, who claims that the primary cause is a psychiatric one.
cfs_patient's assertion about the primary cause being a psychiatric one demonstrates why it is essential that not only M.E. but all the other illnesses, which are bundled together under the same collective CFS (Chronic Fatigue Syndrome) diagnosis need to be separated out for individual consideration.
His or her CFS condition may indeed be primarily or wholly psychiatric, possibly brought on by stress - some are - but is most commonly the case that people with Myalgic Encephalomyelitis (defined by Melvin Ramsay, recognised by the World Health organisation, ICD-10 G93.3 and meeting criteria more discriminatory than the NICE guidelines 2007), have no psychiatric history, nor co-existent psychiatric illness and the onset can be traced to a likely physical cause.
The creation of the term Chronic Fatigue Syndrome (CFS) and making it synonymous with M.E. accounts for so much misinformation, which leads to unwise recommendations for treatments that are ineffective and may be harmful for some M.E. sufferers (and other patients too).
cfs_patient - and all others - deserve a more exclusive diagnosis whether the cause of their illness is a psychiatric one or a physical one.
This unsatisfactory state of affairs will continue until we properly identify M.E. (and the others) and free it from CFS.
May I urge as many people as can manage to go here http://www.theargus.co.uk/news/9259087.ME_costs_millions_in_lost_earnings/ register and make some well-informed comment about M.E. and also condemn the bad behaviour of trolls, which threatens to promote myths and destroy good quality debate by having it closed down. It shouldn't be necessary to say but, if you respond equally irrationally, emotionally, or don't contribute at all, there will be no effective change to the ways that are keeping us all ill.
Best wishes
John
drjohngreensmith@mecommunitytrust.org
M.E. Community Trust.org
I have placed the comment below on the website of the Sussex Argus following the posting of a person called cfs_patient, who claims that the primary cause is a psychiatric one.
cfs_patient's assertion about the primary cause being a psychiatric one demonstrates why it is essential that not only M.E. but all the other illnesses, which are bundled together under the same collective CFS (Chronic Fatigue Syndrome) diagnosis need to be separated out for individual consideration.
His or her CFS condition may indeed be primarily or wholly psychiatric, possibly brought on by stress - some are - but is most commonly the case that people with Myalgic Encephalomyelitis (defined by Melvin Ramsay, recognised by the World Health organisation, ICD-10 G93.3 and meeting criteria more discriminatory than the NICE guidelines 2007), have no psychiatric history, nor co-existent psychiatric illness and the onset can be traced to a likely physical cause.
The creation of the term Chronic Fatigue Syndrome (CFS) and making it synonymous with M.E. accounts for so much misinformation, which leads to unwise recommendations for treatments that are ineffective and may be harmful for some M.E. sufferers (and other patients too).
cfs_patient - and all others - deserve a more exclusive diagnosis whether the cause of their illness is a psychiatric one or a physical one.
This unsatisfactory state of affairs will continue until we properly identify M.E. (and the others) and free it from CFS.
May I urge as many people as can manage to go here http://www.theargus.co.uk/news/9259087.ME_costs_millions_in_lost_earnings/ register and make some well-informed comment about M.E. and also condemn the bad behaviour of trolls, which threatens to promote myths and destroy good quality debate by having it closed down. It shouldn't be necessary to say but, if you respond equally irrationally, emotionally, or don't contribute at all, there will be no effective change to the ways that are keeping us all ill.
Best wishes
John
drjohngreensmith@mecommunitytrust.org
M.E. Community Trust.org