*August 18* (Today) CDC Continuing Education *CFS*: Emergency Preparedness:

[Dolphin]

Interesting find by Marc Fluks:

Last time I heard him talk, James Jones was a big CBT and GET fan. I also saw where, as a peer reviewer (in an open access journal), he told the authors of a paper that if people got worse from a GET program, it must mean they didn't have CFS!

It would be interesting if one or more people listened in.

https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1108c&L=co-cure&T=0&I=-3&P=3200
Source: CDC
Date: August 18, 2011
URL: http://emergency.cdc.gov/coca/calls/2011/callinfo_081811.asp


Emergency Preparedness: Considerations in Chronic Fatigue Syndrome
------------------------------------------------------------------
Continuing Education Credits

Date: Thursday, August 18, 2011
Time: 2:00 - 3:00 pm (Eastern Time)
Participate by Phone: 888-829-8675
Passcode: 3189025


Register for this Webinar
http://events.r20.constantcontact.com/register/event?oeidk=a07e4cmsuo1294ff269&llr=pf7m85dab


Presenter(s):

James F. Jones, MD
Research Medical Officer
Division of High-Consequence Pathogens and Pathology
National Center for Emerging and Zoonotic Infectious Diseases-CDC

Roumiana S. Boneva, MD, PhD
Epidemiologist
Division of High-Consequence Pathogens and Pathology
National Center for Emerging and Zoonotic Infectious Diseases-CDC

Charles Raison, MD
Associate Professor
Department of Psychiatry and Behavioral Sciences
Emory University School of Medicine


Overview:

Chronic fatigue syndrome (CFS) is a complex illness characterized by
disabling fatigue and accompanying case-defining symptoms that are
medically unexplained. CFS can impair an individual?s ability to
prepare for, respond to, or recover from a public health disaster.
Management of the illness is challenging, and following a disaster,
conditions such as stress, the lack of food or water, extremes of heat
or cold, and exposure to infection can contribute to worsening of
symptoms that further impact health status. During this COCA call,
subject matter experts will review clinical guidance for evaluating
CFS, discuss treatment and management options, and provide emergency
preparedness considerations for CFS.


Objectives:

At the conclusion of the session, the participant will be able to
accomplish the following:
- State the 1994 International Case Definition for chronic fatigue syndrome
- Describe the diagnostic process and care management approaches for
chronic fatigue syndrome
- Discuss the impact of a public health emergency on persons with
chronic fatigue syndrome
- Identify emergency preparedness and response clinical considerations
for persons with chronic fatigue syndrome


Call Materials:

Slides: View Now
http://emergency.cdc.gov/coca/ppt/08_18_11_ChronicFatigue_FIN.pdf


Additional Resources:

CDC Chronic Fatigue Syndrome Website
http://www.cdc.gov/cfs/

CFS: A Primer for Allied Health Professionals Web Based Curriculum
http://www.cdc.gov/cfs/education/wb3151/index.html

CFS: Diagnosis and Management Web Based Curriculum
http://www.cdc.gov/cfs/education/wb1032/index.html


(...)


To earn continuing education/contact hours:

1. Go to the CDC Training & Continuing Education Online System.
http://www2a.cdc.gov/TCEOnline/
2. Log in as a participant. If this is your first visit, you will need
to register and establish a login name and password.
3. Click on Search and Register.
4. Under 'keyword search' find the course you are interested in by entering:
-'EC1648' for calls hosted in last 30 days
- WD1648' for calls hosted past 30 days
5. Select your course.
6. CE certificates can be printed immediately upon completion of your
online evaluation.

If you cannot participate in the live COCA Conference Call, you can
still get CE credit/contact hours
1. Download the PowerPoint or webinar.
2. Complete the on-line evaluation within a year (and follow the
instructions above.)
http://www2a.cdc.gov/TCEOnline/
3. CE certificates can be printed immediately upon completion of your
online evaluation.

--------
(c) 2011 CDC

 

[SilverbladeTE]

Wait a minute...
Why are they having this?
Is this a common procedure for other illnesses like MS, arthritis?
if so, ok, useful

if it's specifically an odd thing just for ME/CFS alone...
Anyone been watching new series of Torchwood? *evil grin* muhaha!

 

[eric_s]

That seems a bit strange to me too. They even go so far as to evaluate how we could cope with emergencies, but all these years they have not really tried hard to understand ME/CFS and find a cure (if you look at how much funding they put into it). So, while i think it's good they think so much about our situation, even in the unlikely case of some emergency, why don't they help more with the problems people have every day, and instead try to find solutions for a problem most people will probably never experience.

 

[*GG*]

So did anyone get to listen to this? Anything of value or note?

GG

 

[Gemini]

So did anyone get to listen to this? Anything of value or note?

GG

Only caught the last 20 minutes... which covered the mind-body theory that stress like hurricane Andrew which struck South Florida years ago can cause ME/CFS and its relapses... cited those studies

One caller asked if CDC was considering the new ICC definition (answer: they're looking at it) and what their position is on treatment for pain.

Slides here:
http://emergency.cdc.gov/coca/ppt/08_18_11_ChronicFatigue_FIN.pdf

They said the entire call would be posted on their website.

 

[markmc20001]

Another emergency preparedness related article from the CDC:

http://www.bt.cdc.gov/hazards-all.asp

 

[ixchelkali]

What a shame, this could have been good. Wouldn't it be something if one day the CDC had a clinician who actually worked with ME/CFS patients teach how to diagnose it, instead of someone who just read the CDC materials about it?

Oh, well. I suppose that exhausts the CDC's CFS budget for this year...