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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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BRAVO!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
That was dignified, poised, and incredibly effective.
As a part of this community I cannot applaud you enough.
You are Inspiring. GREAT JOB.
I can see all the wheels turning in Tom's head...... Its a good thing to see. I love the idea of hitting the Obama White HOuse on May 12th, the day Tom picked to represent us - so many years ago....It's now tradition in CFS - what a lovely thing to have our own day....Congratulations and a BIG THANK YOU! to Robert and Courtney Miller!! As Cort wrote today, Bob has had an uncanny knack for getting up close and personal with some top officials in this country. And take it from somebody who spent mucho time and effort trying to do this 2 decades ago, this would wear out several healthy people, but to accomplish this while being so darn sick, it is near miraculous! And also, for Courtney to remain calm and composed and hit the bullseye SOOO perfectly that she complimented the President on something that is VERY close to his heart as her opening comment....and that is "putting SCIENTISTS back in charge of Science"...instead of perceived religious zealots from the past 8 years in the Bush, Jr. regime, was a very smooth move.
and Then to have the accurate numbers of the pitiful funding for M.E. and CFS, while costing the U.S. economy tens of billions of dollars in losses by letting us twist in the wind was strong move number 2, and then pulling on the President's heart strings a bit saying that Robert's kids would like to be able to do something with their Da. It was like watching an accomplished matador leap up and stick his banderillas into that silver dollar sized soft spot in the back of a raging bull's tough neck! just a beautiful job. and it was picked up by several media outlets in the U.S. and abroad. So, media editors decided that this story was too good to pass up!
So, Thanks again Robert and Courtney. Now, please ask all your friends to go to our website at www.rescindinc.org and use Jerry Greyson's tips about writing to President Obama on the 19th anniversary of May 12th, just a few weeks away. Jerry has put up multiple URL's and other hints, including the fact that it should be at least partially hand written and make it PERSONAL and straight from the heart! President Obama has instructed his staff to give him at least 10 letters each night from "average americans" who do NOT have PR and Lobbying firms to bring up their cause before Congress. The White House can get up to 50,000 letters a day! So, PLEASE get out your pens and write your letters. Send One every day from Now, until May 10th or so. and Remember, the Life you save, might be your own! xo TMH http://forums.phoenixrising.me/images/smilies/newSmilies/cheshire smiley.gif