CFS victim Theda Myint locked up at Fremantle Hospital after euthanasia attempt

[ixchelkali]

This is the latest development in the case of severe ME/CFS sufferer Theda Myint in Western Australia.
http://www.watoday.com.au/wa-news/c...a-attempt-20110419-1dmuu.html?from=watoday_sb

For those who haven't been following her story, WA Today has written a series of sympathetic articles about Theda Myint's efforts to get treatments, including appeals to the health minister. The main problem is that the weekly at-home IV treatments that help alleviate her symptoms aren't covered, and going to the emergency room to get exacerbates her MCS.

You can read some of the earlier stories here. Scroll down for a series of links.

 

[Tulip]

The Australian health care system is completely useless when it comes to ME. It does not help that her mum is poor either, it significantly reduces what treatments can be tried. It clearly shows that nothing has changed in this country since Alison Hunter died in 1996.

 

[leaves]

This is so sad. Poor Theda.

 

[TinyT]

Oh dear, that's so awful. Poor Theda.

 

[Sean]

The Australian health care system is completely useless when it comes to ME.

Which is why many patients try to avoid it as much as possible. You never know when you are going to get the doctor from hell, or even if a well meaning one misinterprets you....

All the best, Theda. Sorry I can't do more.

 

[Mya Symons]

I am crying and angry at the same time after reading this. I can't believe the way they treated her! They denied her food because of allergies?! Hospitals have special diets for people that need them. Why was Theda the exception? It sounds as if they were trying to punish her. It is so unfair.

I wish there was more that could be done for her.

 

[Tulip]

I am crying and angry at the same time after reading this. I can't believe the way they treated her! They denied her food because of allergies?! Hospitals have special diets for people that need them. Why was Theda the exception? It sounds as if they were trying to punish her. It is so unfair.

I wish there was more that could be done for her.

Yes hospitals can come up with all sorts of special diets. I think they just thought she was nuts and if she was hungry enough she would eat whatever. Typical really. Amazing how all biomedical abnormalities are ignored in cases of ME.

All I can say to people with ME is whatever you do, don't go to emergency! :Retro mad:

 

[Kati]

Here is what you can do:

-tweet the paper that wrote this article @WAtoday
-write on the "Help Theda" facebook wall in support for her and her family. https://www.facebook.com/pages/Help-Theda/308042782458
-write to the government in Australia asking to help Theda and offer humane, compassionate and medical care that meets her needs http://www.parliament.wa.gov.au/Parliament/Memblist.nsf/WAllMembersFlat/Hames,+Kim+Desmond

This hopefully will show that the world is looking at Australia to do the right thing.

 

[Tulip]

Here is what you can do:

-tweet the paper that wrote this article @WAtoday
-write on the "Help Theda" facebook wall in support for her and her family. https://www.facebook.com/pages/Help-Theda/308042782458
-write to the government in Australia asking to help Theda and offer humane, compassionate and medical care that meets her needs http://www.parliament.wa.gov.au/Parliament/Memblist.nsf/WAllMembersFlat/Hames,+Kim+Desmond

This hopefully will show that the world is looking at Australia to do the right thing.

I think it would be better to write to prime minister julia gillard, it's past the time to write to the wa health minister - he has proven he does not give a crap. Time to go straight to the top, also I think that the mainstream media should be made aware of this, shows such as 60 minutes, sunrise and the today show have a lot of power and are nationwide.

If anyone contacts any of these PLEASE do not call it chronic fatigue syndrome or cfs!! Use the proper disease name ME.

http://www.pm.gov.au/contact-your-pm

 

[insearchof]

Has the Australian Society assisted or offered to assist Theda's family? I would have thought, given the high profile of the matter, that they could really use this case to push and make noise in ways that you suggest Tulip, to get help for Theda but also to elevate and promote information on the severity of ME.

 

[Min]

letter here, with relevant email addresses, to email to Australian ministers:

http://niceguidelines.blogspot.com/

Help Theda Myint now, Please do not wait until Theda's death and autopsy to accept that she is very physically ill
Link to Theda's facebook page

By: Chris Douglas:

Please feel free to use and share this letter to Western Australian cabinet ministers. The letter fits into the 10k word allowance on the Australian PM's contact page.


Dear Ministers

re Treatment of Theda Myint, ME sufferer

http://www.watoday.com.au/wa-news/chronic-fatigue-victim-theda-myint-locked-up-at-fremantle-hospital ...

Please read about the following two cases and please do not let history repeat itself for Theda.

Lynn Gilderdale was bedbound with ME for 17 years, treated with cruelty by the majority of the UK medical profession and took her life in 2008. Whilst still a minor, Lynn was held in a secure unit at Guy's Hospital London until the medics requested permission to use force on her. Her parents refused and discharged her. http://www.amazon.com/One-Last-Goodbye ...


Lynn's post-mortem: "When her body was examined by a pathologist who specialised in ME, he discovered 'dorsal root ganglionitis' - infected nerve roots - and nodules of Nageotte, which are little tombs of dead cells, in her spinal cord. These would have caused her terrible pain and sensory nerve damage.

They found similar cells in the body of Sophia Mirza, an ME sufferer who died in 2005 at the age of 32, and I believe also in other sufferers."

Sophia Mirza developed severe ME in 1999, was treated with cruelty by the majority of the medical profession, 'sectioned' in 2003 and died in 2005. http://www.sophiaandme.org.uk/

Sophia's post-mortem showed: unequivocal inflammatory changes affecting the special nerve cell collections (dorsal root ganglia) that are the gateways (or station) for all sensations going to brain through spinal cord.

The changes of dorsal root ganglionitis seen in 75% of Sophias spinal cord were very similar to that seen during active infection by herpes viruses (such as shingles).

Please do not wait until Theda's death and autopsy to accept that she is very physically (not mentally) sick and needs your help.

Please act now.

Yours sincerely

Email addresses Prime Minister (the above letter will fit in the comment box). http://www.pm.gov.au/contact-your-pm Western Australia Cabinet

Colin Barnett, Premier; Minister for State Development wa-government@dpc.wa.gov.au

Dr Kim Hames, Deputy Premier; Minister for Health; Tourism Minister.Hames@dpc.wa.gov.au

Christian Porter, Treasurer; Attorney General Minister.Porter@dpc.wa.gov.au

John Day, Minister for Planning; Culture and the Arts; Science and Innovation Minister.Day@dpc.wa.gov.au

Robyn McSweeney, Minister for Child Protection; Community Services; Seniors and Volunteering; Women's Interests; Youth Minister.McSweeney@dpc.wa.gov.au

Helen Morton, Minister for Mental Health; Disability Services Minister.Morton@dpc.wa.gov.au

 

[meadowlark]

Many thanks for the comprehensive list of e-mails. I had already written the prime minister and Kim Hames. I'll send more e-mails now. This ignorance and wilful neglect is tragic.