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What are you doing for ME/CFS Awareness Day?

Tulip

Guest
Messages
437
I am planning on writing a letter and hopefully getting it published as a story in my local paper - trying NOT to make it sound boring because I want people to read it and get the seriousness of this illness!. I plan on mentioning that it can be fatal - people need to know the truth or how will they ever take it seriously?!. Just trying to get the words right..(anyone inspiration greatly appreciated :D ).

What are you all doing?
 

Nielk

Senior Member
Messages
6,970
I am planning on writing a letter and hopefully getting it published as a story in my local paper - trying NOT to make it sound boring because I want people to read it and get the seriousness of this illness!. I plan on mentioning that it can be fatal - people need to know the truth or how will they ever take it seriously?!. Just trying to get the words right..(anyone inspiration greatly appreciated :D ).

What are you all doing?

I don't know what I'm doing. I wish I would know in advance how I'm going to be feeling. Actually, your idea sounds good to me. I would write to a few local papers but, how do I know that they will publish it?
 

WillowJ

คภภเє ɠรค๓թєl
Messages
4,940
Location
WA, USA
I am planning on writing a letter and hopefully getting it published as a story in my local paper - trying NOT to make it sound boring because I want people to read it and get the seriousness of this illness!. I plan on mentioning that it can be fatal - people need to know the truth or how will they ever take it seriously?!. Just trying to get the words right..(anyone inspiration greatly appreciated :D ).

What are you all doing?

I don't know.

Silverblade, LOL
 

WillowJ

คภภเє ɠรค๓թєl
Messages
4,940
Location
WA, USA
Perosnally I'd like to go nude sky diving and take a dump right on the Weasels or Parliament while having a banner saying "ME/CFS INCOMING!" ! :p
(and MI5 types, that is a JOKE, thpppt! lol)

of course the Weasel is IN Parlaiment, so it's one and the same if you choose the right day at House of Lords... naturally that particular idea is a JOKE (an a very excellent joke), but there are other protest ideas I'm certain, which would not upset MI5
 

muffin

Senior Member
Messages
940
Please see the www.mcwpa.org site and see what all IS being done by many people.

LIVE near Atlanta? 3 May is a demo in front of the CDC but we need a head-count to know how many people are coming, what is needed, etc.
 

*GG*

senior member
Messages
6,389
Location
Concord, NH
I don't know what I'm doing. I wish I would know in advance how I'm going to be feeling. Actually, your idea sounds good to me. I would write to a few local papers but, how do I know that they will publish it?

You will not know unless you try!

GG
 

Nielk

Senior Member
Messages
6,970
You will not know unless you try!

GG

That's true. All we can do is try our best in whatever way we can contribute and of course the more people try, the more chance of being heard.
Even thinking out of the box like Silverblade. lol
 

insearchof

Senior Member
Messages
598
Thanks for the laugh Sliverblade

I am keen to know, what plans (if any) the Aussies here have for awareness day.
 

Tulip

Guest
Messages
437
Silverblade that's both gross and funny.

Insearchof - im an aussie :D apart from writing a letter to my local news paper, I was thinking of sending in a letter and some blue ribbons to sunrise. Maybe someone could send them into the today show and another person to the circle??.