TheMoonIsBlue
Senior Member
- Messages
- 442
Anyone written their local paper? Something short and sweet and about M.E./CFS, the most recent discoveries of XMRV/MLV, and the desperate need for funding?
I think local TV (many 11 news have short spots for medical news) may pick up on this- the problem is, you may get a doctor or commentator who has their point of view on M.E./CFS (negative) which could overshadow all the recent discoveries.
Any really good writers, when their health is decent enough, maybe write a condensed letter and mail it to various local newspaper, and if even braver, to other newspapers?
Usually in the "comments" section even small papers will posts a letter if it comes from someone local.
I would If someone could help me figure out a condensed way to say what has happened, what is happening now, and what needs to happen for M.E./CFS/. I just don't know a great way to putting it all together shortly. Also, I would want to be annonymous.
I forget..........the CDC devotes how much money per person with CFS? It was less than $1 per person, right? How much do they devote to acne?
I need facts like this..........I'm not good remembering facts and facts are what get published. When XMRV was discoverd, the MLV's disovered, the severity of disability of M.E./CFS, stigma attached to it..etc.. OH, and what the CDC is doing for CFS patients RIGHT NOW. (including, could someone aprise me, they have ignored repeatedly the CFSCA's (sp?) recommendation for a name change? How many years have they ignored that?)
I have a pretty large local paper I could write if I knew what to write.
I think local TV (many 11 news have short spots for medical news) may pick up on this- the problem is, you may get a doctor or commentator who has their point of view on M.E./CFS (negative) which could overshadow all the recent discoveries.
Any really good writers, when their health is decent enough, maybe write a condensed letter and mail it to various local newspaper, and if even braver, to other newspapers?
Usually in the "comments" section even small papers will posts a letter if it comes from someone local.
I would If someone could help me figure out a condensed way to say what has happened, what is happening now, and what needs to happen for M.E./CFS/. I just don't know a great way to putting it all together shortly. Also, I would want to be annonymous.
I forget..........the CDC devotes how much money per person with CFS? It was less than $1 per person, right? How much do they devote to acne?
I need facts like this..........I'm not good remembering facts and facts are what get published. When XMRV was discoverd, the MLV's disovered, the severity of disability of M.E./CFS, stigma attached to it..etc.. OH, and what the CDC is doing for CFS patients RIGHT NOW. (including, could someone aprise me, they have ignored repeatedly the CFSCA's (sp?) recommendation for a name change? How many years have they ignored that?)
I have a pretty large local paper I could write if I knew what to write.