bakercape, i have to agree with you. I am really glad that we could get one organisation to the top 200. but we have to see also the other things. maybe someone can say that we just won and why this critic but only with the critic we can push the things farther. If we count that every patient brought in average 5 votes (and I think it was even more but lets be a bit optimistic) then there was only around 300 cfs patients who voted. i know that there was quit a big campaign (facebook pages, many cfs internet sites, mailingslist,...) and so to get only 300 people - its really nothing.
Now we could critic the others and to use some bad words but I ask more myself where is the reason for it and how we can improve it for the next time. I think the voting was not so difficult - my english is not good but after 5 minutes I could understand the princip, the problem has to be somewhere else. Can you understand it? i think this question is really important for our next activities. if we will not be little bit more activ (and to be more activ it often means just to spend maybe 5 minutes a day with activity like voting,...), our situation will stay bad like now. We have to start to understand that even if there are some people like Mikovitc, Silverman,...who want to help us they cannot do everything and there has to come the help from our side. the healthy people have other problems.
i think I will start a new thread about this