Blog entries from Seven (formerly lnester7)

Seven (formerly lnester7) has a total of 129 entries.

  1. Seven (formerly lnester7)
    This video is about how I have achieved remission twice. Please see until the end since it is not without risk. I hope I help Somebody to get better!! I forgot to say I check my b12 levels every 3 months when I supplement it since I do have some mutations. ME/CFS Remissions | ME/CFS How I Got Into Remission [MEDIA]
  2. Seven (formerly lnester7)
    hello! This is my scariest blog. I finally came out of the CFS closet full force. The whole NICE situation is more than I can take at the momment. So I decided I have to act and give Cfs a human face. I never used my real identity becuase I was afraid if I ever had to look for a new job and only those very close know my situation. I started sharing more and more, but then I realized that I...
  3. Seven (formerly lnester7)
    I had a BRUTAL month, I had to work all hours and even normal people around me were very tired, My shift would start at 6am and I would not go to bed till 11:00 or 11:30 all weekends and all day long, no maps or breaks. Also had to buy food on street. I realized my tummy issue, was a gastritis and had some IBS meds that is doing wonders on my tummy. I had been off all pills for 3 days since...
  4. Seven (formerly lnester7)
    I was late 30 days on my period and a few days before I had a crash, well I have been working non stop weekends, Holliday’s and all I do to rest is sleep. The plp working with me are pretty tired too. So I guess is very normal for the amount of hours and stress we are under. My stomach is acting up, even water gave me massive diahrreah. When I eat I feel somebody punched me in tummy. I got a...
  5. Seven (formerly lnester7)
    Update -> I had the best month I ever had since CFS, more time good than bad, I am under a lot of work pressure and crazy hours, yet I have been abel to keep up. Is amazing what I was able to do all the things I did this month. I feel this shots are making such a difference, I am doing great. I get tired about once a day (12 to 2pm) is when I used to take naps, since I do not have time...
  6. Seven (formerly lnester7)
    I had tried Keto and failed misarably over the years. This is the first time I have been successfully and the issue was, I never did enough fat. And MCT oil just works for me ( after tummy got used to it). I always would lower the carb and increase the protein and not too much fat, I think my body likes oil as energy the best. I am not symptomatic ( except at noon when my nap times come, I...
  7. Seven (formerly lnester7)
    Lately, I am on a kick of watching old movies, war times, revolutions... In a very sadistic way, it makes me feel like we have it so easy these days, and makes me handle my ME on a different light. Like wow they had it hard, when antibiotics didn't exist, when a virus or anything could kill you really. But the one thing that really amazes me, how doctors used to be, they try something,...
  8. Seven (formerly lnester7)
    When I first got sick w Cfs, I would crash and while I was going down, I would get trembles like Jessica does on Unrest. But I haven’t have that full on in a while. I was sitting not tired or anything and I felt a liquid sensation in the left top brain, as if somebody was rubbing anesthesia cream on it. And I was like wow bizare seansation. Then I started to feel inflamed ( this case out of...
  9. Seven (formerly lnester7)
    If you would have asked me, I would say I have mild cFs. But I think we understimate the little compromise we do day to day to adapt to CFS. I went to a classical music concert ( trying to behave as a normal person) first thing, I was like wow I used to feel so miserable just by being sitting here. And I was impressed how I sit in so many events in the lasts years and wonder how did I make it?...
  10. Seven (formerly lnester7)
    Sometimes I hear people giving up, and very discourage and just plain lost. And it makes me wonder, how, why do I keep going, And I figure out what has kept me going, which brings me up to a scary point. When I have a plan, I feel in control, I feel there is hope, and that I am moving towards something, So I listed the treatments, that have helped people in order of cost and risk. I had move...
  11. Seven (formerly lnester7)
    so I didn’t do as well as the last shot, or might Be since I am doing so Much and quit basically most pills. My sleep have been not so good for the past few days. I have been stuffed up but don’t think is a cold. Who knows! I am getting tired from 12pm to 2pm rest of the time I am ok. So I am going to make sure not to skip my nap at noon. This is how my cFs started so is interesting. Also I...
  12. Seven (formerly lnester7)
    This is for my personal log so I can think back and see how I was doing. I woke up early, had a bit rough night because hubby woke me up and it was hard to go back to sleep and wake up early. Butt felt good and refresh. Since I cannot take any pills first few days ( none whatsoever) I had allergies ( not bad but been this way since I Remember). Pain still gone and not other symptoms except a...
  13. Seven (formerly lnester7)
    Update: I crashed after the move, but nothing as bad as I feared, Before my period I got sick as I always do, so the remission was lost after about 2 weeks??? Since it is my POTs situation w Periods, I am not sure but I did get tired and had to manage energy so I will assume CFS was back. I was craving the peptide, so today I got it and felt normal again so I will start the count on remission...
  14. Seven (formerly lnester7)
    I am writing as a form of journaling a guess. Hope can be a dengourous thing! I think I can hope to get well now ( I have random brain feelings and my POTs and colitis are still there). I am thinking of quitting all pills. Just to give this a real shot, make sure nothing is interfering. I always thought that when this time comes ( cure) I would not be able to solve all the things I have...
  15. Seven (formerly lnester7)
    i thoguht if I get cured I would..... and is funny that after a few days Without my relentless PEM the one thing I decided to do first was........... take a very hot shower!!!!! I have the hardest weeks ever. Pressure at work, had to travel 3 times, had to move office and to put the nail on the coffin, I had to move houses. The move was brutal. The first few days I was afraid I would crash....