Blog entries from lnester7

lnester7 has a total of 122 entries.

  1. lnester7
    Sooooo, I am doing great, more energy, participating at family live more. But I am passing / balcking out a lot. I get those bouts and then they go away, I have been hydrating properly so not sure what boguht this on. Is very inconvinient because work requieres to call an ambulance if someone passes out. So I hide it. Is quite comical actually. I blacked out in front of a few people and like...
    lnester7, Oct 24, 2013
  2. lnester7
    Sooo I miraculously been doing much better of the "deconditioning" (I AM BEING SARCASTIC), I noticed I can just do more and don't get as tired. I went up one point in scale I would think, I have noticed an increase of energy and just general neuro symptoms from day to night. I do get emotional at night when I take the extra dose, but I know is the pill, as soon as I wake up I am my sunny...
    lnester7, Oct 20, 2013
  3. lnester7
    Sooo I increased slowly for the past week and added half a pill of famciclovir but yesterday I added the full pill AND OHHH MY. I got full blown flue like symptoms and muscle aches, also burning on the back around the spine. It has been rough 2 days, but in another way I have more energy. I did a lot around the house which I haven't done in a very long time. I forgot how rough the herxing...
    lnester7, Oct 17, 2013
  4. lnester7
    PACING sounds soooo good in theory. Sooooo On CFS I have learned not to push my limits but anything that needs from us to push that bit can get us out of our stable condition. So my dog run away, on a pretty steep hill. I knew the moment I went running after the dog that it was a bad idea, but is not like I could just sit there and let it go!!!! I have been doing great in general. Dealing...
    lnester7, Oct 7, 2013
  5. lnester7
    I am doing sooo good symptoms wise, I don't feel as sick with viral like stuff. I only deal with muscle pain (Mostly when I overdo) and head feeling (this one is mostly constant, like brain is tender) , I still get a lot of those crashes but I am smarter now to learn to wait it out BY RESTING. I get normal days more often than not. I sit on a chair and just exist. Is very exciting to be able...
    lnester7, Oct 2, 2013
  6. lnester7
    So, I came from work tired, I was with family in the table while having dinner. I was not symptomatic , just tired. So I put my head down in the table to rest. I don't remember if my husband moved me to the couch or if I did, All I know is I couldn't have made it to the bed upstairs. But when I am like that the first thing to go is the voice, so I couldn't ask to be put flat. It felt like...
    lnester7, Sep 6, 2013
  7. lnester7
    Personal note: Started day 2 on new sleep med. I feel very grogy in the mornings, Might need to lower dose. Overall I think has created a little fatigue. Will keep an eye, but I have spent the last 2 days sleepy. Still going strong, Brain clear, Not very symptomatic except for muscle stiffness in neck and muscle latic acid pain. Need to find a way to lower acidity?!?!?
    lnester7, Aug 23, 2013
  8. lnester7
    I am not sure what is working but I am going to count my blessings. I have had mostly very clear head, I feel almost normal. I am having a little bit of burning as I type but not as bad as usually is. I also have much more energy but I am not about to test my limits, I will let my body use it to repair and get better. So like I run to the gym the other 3 times I started getting better and...
    lnester7, Aug 20, 2013
  9. lnester7
    I don't know why or how but I am feeling a turn for the better. I fell absolutaley Amazing!!! I am not full of energy, that part is still the same, is more like general feeling in the day to day and symptoms. I felt constantly sick like something was not right and just abosolutaly like garbage, is jsut that we go sick for so long that you forget what it is to feel like human again, and I...
    lnester7, Aug 13, 2013
  10. lnester7
    I stopped the equillibrant to avoid going autoinmune. All casaxie has been clear for a while. I saw the CFS Dr. and I am waiting on results. Mostly all issues were the same and I am waiting on results. She asked me to try bioactive milk peptides for sleep. WIll se how that goes. The rest the same, I cut back on the 10 min walk to try to reduce the crasha and go cycle I got going, I added...
    lnester7, Aug 8, 2013
  11. lnester7
    I want to make sure I document my observations on the use of pedometer. This is keeping HR mostly under AT (115). I exceed my AT every time I go up the stairs (which I need to do to go to restroom). So I discover that keeping under my AT does not mean I have unlimited energy either. I have what I call a slow day. I go to work and do as Little walking as possible (except for the 10min slow...
    lnester7, Jul 20, 2013
  12. lnester7
    Ok so I always said that my pain felt like when you have lifted weights. But after I lifted weights (months back) I have a fresh memory of the two types of pain and made some observations. First I get this tired feeling, Numbness in left and frontal part of my brain. It gets extremely difficult to even exist, I need to sleep or just stop live and just rest it out, Is a very fast and brutal...
    lnester7, Jul 18, 2013
  13. lnester7
    This crap really sucks, I am going through a painful period, I am not sure if it is because I increased the LDN again to 3mg, I am sure it is not overdoing I have been resting a lot and taking it easy. I am so tired of feeling like crap most of the time, even when we say we feel good is crappy. I had terrible bout of nausea, and started throwing up and ended up in the hospital Saturday...
    lnester7, Jul 12, 2013
  14. lnester7
    Every time I think I understand the gravity of my situation, something surprise me. So I went to the rec center today. I sat on the only bike that has a back rest so I can recline and be comfortable. About minute 2 or 3 a very disabled man walks in, his feet were twisted, it was like if his leg were a candy cane and the feet were to the outside, he kinda dragged on his feet. He puts the...
    lnester7, Jun 25, 2013
  15. lnester7
    It has been a rough week. I didn't get my usual rest on the weekend and got gluten back on diet for a bit so now I am not sure what is the real culprit, I will Go gluten free again and see what happens. I was testing back up adding it back and see if I felt difference. Overall I feel better without the gluten. The only thing I struggle to eat and I am without appetite so that was a down...
    lnester7, Jun 20, 2013