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News, Research, and Advocacy
Advocacy and Fundraising
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Action Alerts and Advocacy
THE MOST IMPORTANT THING WE CAN DO IS SPEAK WITH ONE VOICE as we fight for real research. We will never see an end to this unless everyone helps.
Advocacy Projects
A place to post ideas for ME/CFS projects, dig into them, figure out how to accomplish them, gather support for them and get them going.
Threads
213
Messages
3,658
Threads
213
Messages
3,658
ME/CFS is a living death--why mortality isnt what matters in illness advocacy
Sep 9, 2022
lenora
Millions Missing Campaign
A place to post any information related to the #MillionsMissing Campaign.
Threads
68
Messages
1,038
Threads
68
Messages
1,038
MEAction protest at whitehouse
Sep 25, 2022
frozenborderline
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20-signatory letter in Daily Telegraph today calling for biomedical research into ME
Sasha
Feb 6, 2010
Replies
16
Views
1,795
Feb 13, 2010
Sing
Charles Shepherd answers Santhouse, Hotopf and David
Min
Feb 13, 2010
Replies
0
Views
1,347
Feb 13, 2010
Min
Pet Apparel for Awareness
JT1024
Feb 12, 2010
Replies
1
Views
925
Feb 12, 2010
Tammie
T
Question about the UK ME 'powers that be'
Trooper
Feb 5, 2010
Replies
13
Views
1,828
Feb 12, 2010
Bob
New UK advocacy site
Jenny
Feb 12, 2010
Replies
0
Views
764
Feb 12, 2010
Jenny
ME/CFS Funding by CDC and numbers vs. HIV/AIDS funding and numbers
creekfeet
Feb 10, 2010
Replies
5
Views
1,887
Feb 11, 2010
Dolphin
P
Where is luminescentfeeling?!
patrick
Feb 9, 2010
2
Replies
23
Views
4,371
Feb 11, 2010
justinreilly
Youtube Videos
Carrigon
Feb 10, 2010
Replies
3
Views
1,473
Feb 10, 2010
Carrigon
D
AHRQ review and the CFSAC recommendation
Dolphin
Feb 7, 2010
Replies
7
Views
1,898
Feb 9, 2010
Dolphin
C
Cohorts - Letter to the IACFS/ME
CBS
Jan 4, 2010
2
3
Replies
43
Views
5,938
Feb 9, 2010
mezombie
Atlanta Investigate Journalist Walls Bonks CDC and Hails Reeves Move
Kati
Feb 5, 2010
2
Replies
20
Views
3,253
Feb 9, 2010
Lily
T
UK letter to the Guardian newspaper re: Dr Crippen and XMRV - signatures
The Minkey
Feb 7, 2010
Replies
11
Views
1,621
Feb 9, 2010
Herbiv4
Codex Alimentarius
klutzo
Jan 4, 2010
2
Replies
21
Views
2,766
Feb 9, 2010
Tammie
F
Feb 15-19, 2010 advocacy for mitochondrial bill in congress needed
FernRhizome
Feb 8, 2010
Replies
0
Views
860
Feb 8, 2010
FernRhizome
Will Nevada budget impact WPI???
sarahg
Feb 8, 2010
Replies
6
Views
1,222
Feb 8, 2010
Hope123
D
Not much ME/CFS research is funded in Canada (as of March 2008)
Dolphin
Jan 22, 2010
2
3
4
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68
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6,860
Feb 6, 2010
Sing
Estimated funding for CFS at NIH for 2009
frenchtulip
Feb 6, 2010
Replies
1
Views
948
Feb 6, 2010
Dolphin
Dr Sebelius new HHS budget, are we in there?
citybug
Feb 4, 2010
Replies
1
Views
889
Feb 5, 2010
jspotila
Pharmaceuticals Guides for Doctors
Andrew
Feb 4, 2010
Replies
1
Views
864
Feb 5, 2010
Hope123
J
CFIDS Association updates
jspotila
Feb 4, 2010
Replies
10
Views
1,890
Feb 4, 2010
Dr. Yes
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