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News, Research, and Advocacy
Advocacy and Fundraising
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Action Alerts and Advocacy
THE MOST IMPORTANT THING WE CAN DO IS SPEAK WITH ONE VOICE as we fight for real research. We will never see an end to this unless everyone helps.
Advocacy Projects
A place to post ideas for ME/CFS projects, dig into them, figure out how to accomplish them, gather support for them and get them going.
Threads
213
Messages
3,658
Threads
213
Messages
3,658
ME/CFS is a living death--why mortality isnt what matters in illness advocacy
Sep 9, 2022
lenora
Millions Missing Campaign
A place to post any information related to the #MillionsMissing Campaign.
Threads
68
Messages
1,038
Threads
68
Messages
1,038
MEAction protest at whitehouse
Sep 25, 2022
frozenborderline
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Free online training for activists / advocates
thefreeprisoner
Feb 11, 2010
Replies
2
Views
1,671
Mar 7, 2010
creekfeet
L
US funding for ME/CFS research moved from MOSS to IFCN (doesn't seem good to me)
leelaplay
Mar 3, 2010
Replies
7
Views
1,405
Mar 6, 2010
leelaplay
Vote for Mrs Whittemore and get WPI 10 thousand dollars!!!
Kati
Mar 1, 2010
Replies
15
Views
1,796
Mar 5, 2010
starryeyes
Action Alert? Mention XMRV in Boston Globe article on donating blood, FDA involved.
*GG*
Mar 4, 2010
Replies
0
Views
1,044
Mar 4, 2010
*GG*
ME/CFS youngster taken away from parents by government
Cort
Jun 26, 2009
2
3
Replies
42
Views
7,161
Mar 1, 2010
Dx Revision Watch
M
Action through Internet Marketing Techniques!
MEKoan
Feb 7, 2010
2
Replies
26
Views
3,297
Feb 28, 2010
Anika
Offer from Igive till tomorrow noon $1 to WPI for new members any cause
citybug
Feb 24, 2010
Replies
7
Views
1,076
Feb 25, 2010
creekfeet
Establishing research cohorts of 'Canadian' criteria patients: an urgent need
Angela Kennedy
Feb 21, 2010
2
3
Replies
51
Views
6,659
Feb 25, 2010
Gerwyn
Call for UK people to participate in planned study
Jenny
Feb 22, 2010
Replies
2
Views
934
Feb 24, 2010
V99
L
PRESS RELEASE - Magical Medicine: How to make a disease disappear
leelaplay
Jan 3, 2010
2
Replies
28
Views
5,405
Feb 22, 2010
Rita
War at Wikipedia
Levi
Nov 9, 2009
2
3
Replies
45
Views
8,103
Feb 22, 2010
Adam
My email to International Association for CFS/ME
Andrew
Feb 18, 2010
Replies
8
Views
1,349
Feb 20, 2010
Andrew
Article: "Arrogant, Inflexible, Remote and Imperious"? Is this what's wrong with CBT?
Orla
Feb 10, 2010
Replies
8
Views
4,632
Feb 19, 2010
Anika
X
Changes to ME agenda site
xanadu
Feb 15, 2010
2
Replies
32
Views
3,748
Feb 18, 2010
julius
D
(UK) Esther Crawley and all the money she is getting from the NIHR
Dolphin
Feb 18, 2010
Replies
4
Views
1,801
Feb 18, 2010
Dolphin
B
Any figures for funding of ME research in the UK?
Bob
Feb 7, 2010
Replies
17
Views
1,868
Feb 16, 2010
Bob
Celebrity Auction to support ME/CFS
LaurelB
Feb 15, 2010
Replies
0
Views
814
Feb 15, 2010
LaurelB
Threshold of Knowledge
Andrew
Feb 14, 2010
Replies
6
Views
900
Feb 15, 2010
Marco
Petition to silence Esther Rantzen
Jenny
Feb 3, 2010
2
Replies
25
Views
3,907
Feb 14, 2010
justinreilly
Request for UK case studies
Jenny
Feb 13, 2010
Replies
2
Views
892
Feb 13, 2010
MEKoan
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