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News, Research, and Advocacy
Advocacy and Fundraising
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Action Alerts and Advocacy
THE MOST IMPORTANT THING WE CAN DO IS SPEAK WITH ONE VOICE as we fight for real research. We will never see an end to this unless everyone helps.
Advocacy Projects
A place to post ideas for ME/CFS projects, dig into them, figure out how to accomplish them, gather support for them and get them going.
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3,658
Threads
213
Messages
3,658
ME/CFS is a living death--why mortality isnt what matters in illness advocacy
Sep 9, 2022
lenora
Millions Missing Campaign
A place to post any information related to the #MillionsMissing Campaign.
Threads
68
Messages
1,038
Threads
68
Messages
1,038
MEAction protest at whitehouse
Sep 25, 2022
frozenborderline
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David Tuller: NIH Grants $2.1 Million to UK Biobank!
Countrygirl
Oct 4, 2017
Replies
4
Views
1,135
Oct 4, 2017
lilpink
R
Emergency Hurricane Irma help for sick ME friend; super easy via Amazon “wish list”
RivkaRivka
Sep 6, 2017
2
Replies
27
Views
3,043
Oct 3, 2017
Luther Blissett
Locked
URGENT MESSAGE FOR UK ME PEOPLE
Countrygirl
Sep 25, 2017
Replies
9
Views
1,723
Oct 2, 2017
Mark
HHS Secretary Tom Price resigns
Nielk
Sep 29, 2017
Replies
5
Views
1,142
Sep 29, 2017
Wally
UMDF
*GG*
Sep 29, 2017
Replies
0
Views
474
Sep 29, 2017
*GG*
Video by Dr Myhill: Time to stop the abuse of CFS patients
Countrygirl
Aug 17, 2017
7
8
9
Replies
178
Views
17,797
Sep 27, 2017
Abha
T
Is it worth explaining the difference between ME and CFS to the public??
Tulip
Apr 9, 2011
25
26
27
Replies
526
Views
67,482
Sep 23, 2017
wastwater
What would you do if you had a horrible disease that doctors could not cure?
shannah
Sep 17, 2017
Replies
1
Views
767
Sep 17, 2017
Wonko
H
Funny short video about ME by Iannucci Armando
Hajnalka
Sep 15, 2017
2
Replies
29
Views
2,250
Sep 15, 2017
Hajnalka
Beware of Articles About ME That Conceal Support for GET/CBT
Nielk
Sep 15, 2017
Replies
0
Views
808
Sep 15, 2017
Nielk
C
Web series looking for carers (Vancouver, Canada)
concepcion
Sep 13, 2017
Replies
0
Views
636
Sep 13, 2017
concepcion
A Entire State Goes ME/CFS: Nevada Congressional Breakthrough - the First of Many?
Cort
Sep 12, 2017
Replies
6
Views
1,493
Sep 12, 2017
Cort
No Time to Rest: Congressional Screen of Unrest in One Week - Jen Brea to Talk
Cort
Sep 8, 2017
Replies
9
Views
1,468
Sep 12, 2017
Cort
How to easily archive websites to hold authors to account
Cheesus
Sep 10, 2017
Replies
5
Views
874
Sep 10, 2017
Hip
A
The Time is N.O.W. - National Women's Advocacy Organization Joins the Fight for ME/CFS
AndyPR
Aug 14, 2017
Replies
4
Views
1,201
Sep 9, 2017
Anne
Nevada Only! Congressional Action Alert
Emily Taylor
Sep 6, 2017
Replies
2
Views
871
Sep 6, 2017
Cort
Contact your Representative NOW to stop the DEA from getting the power to ban anything they want
Basilico
Jul 11, 2017
Replies
10
Views
1,577
Sep 3, 2017
Paralee
Natural Health Worldwide - Dr. Myhill's Latest Move
sianrecovery
Aug 28, 2017
Replies
8
Views
1,650
Aug 31, 2017
anni66
Will access to any new CFS drugs be limited to those who've tried GET/CBT?
Woolie
Aug 29, 2017
Replies
13
Views
1,113
Aug 30, 2017
NelliePledge
FDA Seeking Public Comment on CBD (and other drugs)
bspg
Aug 25, 2017
Replies
5
Views
837
Aug 27, 2017
bspg
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