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News, Research, and Advocacy
Advocacy and Fundraising
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Action Alerts and Advocacy
THE MOST IMPORTANT THING WE CAN DO IS SPEAK WITH ONE VOICE as we fight for real research. We will never see an end to this unless everyone helps.
Advocacy Projects
A place to post ideas for ME/CFS projects, dig into them, figure out how to accomplish them, gather support for them and get them going.
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213
Messages
3,658
Threads
213
Messages
3,658
ME/CFS is a living death--why mortality isnt what matters in illness advocacy
Sep 9, 2022
lenora
Millions Missing Campaign
A place to post any information related to the #MillionsMissing Campaign.
Threads
68
Messages
1,038
Threads
68
Messages
1,038
MEAction protest at whitehouse
Sep 25, 2022
frozenborderline
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C
Building awareness alongside the Unrest momentum
ChrisD
Jan 22, 2018
Replies
2
Views
643
Jan 22, 2018
Andrew
Please would you consider doing a kindness to one of our community who is in dire circumstances?
Countrygirl
Dec 9, 2017
2
3
Replies
54
Views
5,215
Dec 31, 2017
Countrygirl
P
Short film about the experiences of ME sufferers in Kirklees and Calderdale
Pike
Nov 22, 2017
Replies
1
Views
760
Dec 10, 2017
jenny39
Infographics archive?
JD_Lucas
Nov 5, 2017
2
Replies
30
Views
2,458
Dec 9, 2017
gabriella17
New blog - CDC’s Staged Call
Nielk
Nov 16, 2017
Replies
4
Views
1,569
Nov 23, 2017
Ember
ME Infographics - New Image Uploaded
JD_Lucas
Nov 17, 2017
Replies
6
Views
1,014
Nov 22, 2017
JD_Lucas
New site on Facebook: For those with ME who have had negative experiences with the LP
Countrygirl
Nov 19, 2017
Replies
0
Views
749
Nov 19, 2017
Countrygirl
Email from Unrest: Can you Host a House Party & show Unrest?
Countrygirl
Nov 16, 2017
Replies
0
Views
886
Nov 16, 2017
Countrygirl
Journalist asks for stories of people who have been harmed by GET or parents accused of FII
Countrygirl
Nov 10, 2017
Replies
2
Views
1,006
Nov 14, 2017
Dolphin
David Tuller asks for survivors of the Royal Free outbreak to contact him.
Countrygirl
Nov 10, 2017
Replies
5
Views
1,445
Nov 11, 2017
Seven7
M
Activism: please use words instead of pictures
Maya24
Nov 8, 2017
Replies
0
Views
747
Nov 8, 2017
Maya24
W
CFSAC Meeting Scheduled for January 13, 2015
Wally
Dec 18, 2014
3
4
5
Replies
88
Views
11,936
Nov 4, 2017
Dx Revision Watch
"Resisting Attempts to Silence #PwME"
Nielk
Nov 1, 2017
Replies
6
Views
1,646
Nov 3, 2017
Ember
VOLUNTEER WEBINAR: “HOW TO TALK ABOUT PAIN SO YOUR DOCTOR WILL LISTEN” 10/31/17 US Pain Foundation
*GG*
Nov 1, 2017
Replies
0
Views
657
Nov 1, 2017
*GG*
IOM Criteria to Be used in Research for NIH Center of Excellence
Nielk
Oct 2, 2017
2
3
Replies
58
Views
5,657
Nov 1, 2017
Ember
ALL Countries Please sign the MEA's new petition to NICE:do not classify ME as 'functional'
Countrygirl
Sep 27, 2017
4
5
6
Replies
114
Views
14,914
Oct 29, 2017
Creachur
Dr. Myhill On PACE and MAIMES - remake - thanks for your feedback
sianrecovery
Oct 19, 2017
Replies
15
Views
1,841
Oct 29, 2017
NelliePledge
New UK Petition: Debate in Parliament the lack of an effective policy for the treatment of M.E.
Jo Best
Sep 14, 2017
Replies
13
Views
1,862
Oct 26, 2017
Jo Best
Help share our petition: Open Letter to Canadian Health Minister re Epidemic of ME
ScottTriGuy
Aug 8, 2017
Replies
19
Views
1,788
Oct 24, 2017
shannah
H
Unrest for preorder on iTunes
Hajnalka
Sep 7, 2017
Replies
18
Views
2,134
Oct 10, 2017
Hajnalka
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