Welcome to Phoenix Rising!

Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Tips for dealing with ME/CFS

These are the blog posts I wrote to help me answer questions I often see asked. Plus, there is information included in replies to my posts. I put them onto this unified list for easier linking by a local support group.

Managing your medical records
Educating your doctor and you
Exercise
Caregivers
Food tips
.

Very good job, Andrew. It looks useful and helpful. Thanks for that effort and for your care for details.

HELP-Apheresis is done
Hi fellow ME people, this entry has a quick summary wich is intended...
Not Exactly an Emergency / The Beat Heat Manifesto
I didn't want to call the fire department. No one does. Unless they...
Smells
Perhaps everyone's scent addiction has gotten out of hand when I walk...
Stealth Pathogen Theory
Hi everyone! Intro: Since being tested positive for Borrelia 1 year...
Medical update
Vent and purge post***** Trigger warnings Don’t read further if you...

My latest sleep aid (Sleep3)
I take sleeping pills, but they are not enough. So I try different...
Breakfast
Amazing how one's appreciation shifts when disabled. I now look at a...
My flannel pajama bottoms
For Christmas I received a pair of flannel pajama bottoms. I've but...
It's raining
It's raining it's pouring but my life’s not boring I keep my head I...
driver license
If I looked as bad as my driver license photo, my doctors would believe...

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