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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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User Blogs
I'd been having a string of bad days, and today there was a delightful break in the clouds.
I'm thankful for good days.
My pain levels were barely high enough to keep me from resting but nothing that a good distraction wouldn't take care of. I got up to find the chatroom just the right...
I have been in a crash for a long time now and lately I have been feeling very sorry for myself.
I have been thinking how UNFAIR my life has been.
Too many tragedies to mention in my past history.
When I first fell ill which was subsequently diagnosed as CFS, I had no idea that it would...
[FONT="Garamond"][SIZE="4"]Almost 2 years ago, I bought concert tickets to see U2. Last year they had to reschedule the tour because Bono hurt his back. The date had not been set yet. Back in April, I bought tickets for Soundgarden. They are playing tonight. As it turns out, U2 is playing...
I had the other with ME/CFS I rang the other day come an visit. :)
Amazingly she turned out to be my primary school teacher who apparently first developed ME/CFS when I was there.. (she thinks it was the year before I was in her class... anyway its close to when I had her as a teacher and...
A pharmacist was quite shocked on hearing how low my blood sugar readings can go and said I should be having monitoring. She actually said the level mine goes down to at times is bad enough to cause some unconsciousness, so hence very shocked no attention has been paid to my low blood sugar...
That's how I feel. Like this spirit in chains. I want to do so much, and I can't.
Two people I follow on Youtube were talking this week about how frustrating this disease is because you push and you push and then you crash and can't do anything. And then you get upset and depressed because...
This just made me so mad today.
First of all, I have been deadly sick for a week with some kind of stomach flu. I'm really, really sick. Fever, dizzy, nausea, upset stomach, fatigue of death. At one point, I thought it had also given me a UTI, but that got better. So, I have no one to...
Lets consider a great triumph of medicine, vaccination to prevent smallpox. This innovation is credited to Dr. Edward Jenner, who certainly deserves praise for his work. How did this come to be standard practice?
The observation that people who survived one bout with smallpox were immune...
Science was originally nothing more than a Latinate synonym for knowledge. Its specific use to designate the activity of scientists can be traced back only to the 19th century. My topic today is the essential counterpart of new science, ignorance. This is a large subject, so I'll post it in...
Someone asked me to post some links and info on this, so here it is:
There are a few sites that do have info on this, but it's hard to find. The food industry and government have been covering this up for years and putting billions of dollars into the coverup.
Here's a few links...
from "Autonomy of the Mind"
by Tsering Wangmo Dhompa
Mrs. Dhondyo says life is not a happy lollipop
and she has said that before. Not in so many words
but when her brother lost his house in a neighborhood fire,
and she went out to save what she could; while he went
to his buddies...
This is a very boring blog, I'm afraid, but so important for me.
I have finally found a doctor who is interesting in treating my CFS. BUT I think she's wrong. She wants me to do the Marshall Protocol...personally, I KNOW I have POTS that has been caused by herpes viruses (ie. Epstein Barr...
This past month has been hell on earth for me with the Lyme arthritis and my doctor thinks some of it is Gout. She said my uric acid level is twice what it should be. I'm just dying. Hips, lower back, all the way down the legs, right knee, right ankle, right foot. And the usual pain all over...
Many of the old pagan and shamanistic religions recognize the existence of spirits. Spirits can't be seen, but they can be sensed. Every tree and rock has a spirit. So do people.
The mind is really spirit. So diseases of the mind are spirits. If CFS is a mental disease, it is a spiritual...
I was thinking about the mind-body problem, and then came across this piece on thinking yourself ill:
http://thekafkapandemic.blogspot.com/2011/07/modest-and-possibly-lucrative-proposal.html
Rather than follow along the same line of argument, I want to discuss something more esoteric...
This past Tuesday, I had on a nice pair of wedges. As I was walking through the mall, I slipped, jerked my body and for 3 days I couldn't stand up straight. Due to the pain, lack of sleep and being on VFEND (the yeast drug), I spent this past week in bed and this whole weekend unable to...
WALL STREET JOURNAL
HEALTH
JUNE 28, 2011, 3:46 P.M. ET
Parasitic Worms May Offer Hope on MS
By STEN STOVALL
For people suffering from debilitating autoimmune disorders such as multiple sclerosis, there is growing evidence that help may be at hand from an unusual source: parasitic...
Feedback, corrections, discussion and criticism are very welcome.
I've also attached a PDF version for easy printing.
Contents
Preface
Introduction
Contamination theories
The WPIs methodologies
Lack of sequence variation
John Coffins conclusions regarding the origins of XMRV (A...
Styrofoam Cup
by Brenda Hillman
thou still unravished thou
thou, thou bride
thou unstill,
thou unravished unbride
unthou unbride
Brenda Hillman (1951, American) is called in her Poetry Foundation bio an "electic formalist." The entry goes on to say: "Brenda Hillman is known for...
Four hours ago today I returned home from Chicago. I left home last Thursday night, went to the retreat with Guruji Mahendra Trivedi, stayed for 3 days with friends, and drove home today. This blog describes my excitement at how good I feel tonight!
Every retreat I've attended (there have...