-
Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
Wolfcub
- Author Wolfcub
- Create date
- Updated
I counted the days. Fourteen. Soon, whatever this was had to leave me.
I'd had some bad flu-like bugs before. I remembered that once many years ago, something I caught had lasted nearly six weeks, from mid-November until the fourth of January. And then one morning, I woke up feeling better and...
Part 2
Spring 2018.
My car isn't fixed yet. Something mysterious is happening to the battery, and it won't hold a charge longer than 24 hours. The mechanic is still puzzling over it and that means everywhere I go is on "Shank's Pony". That doesn't bother me much. Feet are reliable and don't...
My Story with ME/CFS.
Part 1.
March 2018.
It's snowing. Magic. They call it the "Beast From The East", but it's magic for me.
I embark on a 3 mile walk in a blizzard. My face gets frozen and aches, in spite of all my sensible wrappings. My eyelashes freeze, and I get a sharp pain over my...
In my last blog post called "Homeopathy didn't work", I mentioned I'd been taking a remedy which was Kali Phos. prescribed by my homeopath.
It made me feel suddenly worse. And the homeopath told me to stop taking it -which I did.
Then he prescribed me the same remedy but a different potency.
So...
Well I thought it was worth a try.
It was a very good -if exhausting -consultation with the homeopath (I think that was a week ago but have a strange time-warp effect going on right now so it feels like ages ago.)
He recommended a "tissue salt" Kali Phos. and sent me the tablets, which were...
Well what a mess I am today! Basically anxiety is going at about 80mph all day.
Now I am wired and can't sleep. It's 4am and I am deeply tired but feel no peace. I even did a "peace" breathing meditation but none of that can get through this iron-hard feeling that's going on. It's beyond what...
I thought I'd try out anti-inflammatory herbs as a regular thing.
I still have no firm diagnosis, but the herbs are worth a shot.
It is the most strange sensation, but all the way through this past 6 months, from DAY ONE, there has been an odd feeling that the smallest simplest little thing was...
For the past few days I have been in another "remission".
Which I am grateful for indeed. Things feel pretty normal again. I can relate to things with my (more or less) complete attention. Symptoms haven't been there. Nor has there been any peculiar extreme exhaustion. I have felt naturally...
About 21 August I started trying Echinacea angustifolia tincture again 5ml. 3 times a day, plus 2-3 cloves of raw garlic.
I felt that whatever had affected me since March had not quite gone away.
Yes, in July I actualy started to believe I was slowly coming out of it -getting gradually better...
I've been pretty down since the beginning of the month. A crash. Soldiering on. Feeling mighty weird and not right.
A few days ago I decided to give Echinacea another shot. That is Echinacea angustifolia root tincture at 4:1 (1 litre to 100g) alcohol to herb.
I also thought starting raw garlic...
I had to take my car in to the town Thursday and leave it there for MOT testing (law in UK).
I decided to walk home as I always have done every year. It's 6 miles but a beautiful place. I used to walk that way often with my dog.
It was a nice day. Sun after rain, with a breeze. A perfect day...
....It was a 3-week "remission", apparently.
But it's okay. I am trying to be positive though am disillusioned again today. Three weeks is the best there's been yet. I can only hope another one of these remissions will come and maybe that one will be the same -or longer? Dare I hope?
Busy...
Improvement update....
Well this seems to be sticking. I hope.
I am back to vitamin B complex maintenance dose (not very strong) a multivitamin and good food. That's more or less all I am doing, except I started Echinacea Angustifolia twice a day again since weekend. The first two doses gave me...
I don't know if I'm tempting Providence, or what, but I might be very very gradually getting a little better.
It's four months in.
I was never 100% sure what was wrong in the first place but it started suddenly in Spring, just after the snow, like an entero-headache-heart issue kind of thing...