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What's Wrong With Me? - The Sickness Chronicles >

I've read the lovely comments and advice on my previous entry, and I'm very grateful for the caring advice I get on my entries, thank you all :)... Rather than replying there, I thought I better just make a new entry... For the time being, I don't have to worry about which doctor I'm going to see, because I received a letter telling me that my appointment for the end of August has been cancelled. It promises that a new appointment date will be sent out as soon as possible, but it could put...
With only 3 hours of sleep, I finally left the house for the first time in a long time, a trip to the doctors surgery for the first time in just over a year; my last trip there was June last year, when I was told that there was nothing they could offer me, that I needed to wait for the hospital. (An entire year later, I've finally heard from the hospital.) I only went up there today for a blood test. Even though I was tired from lack of sleep, I hoped the appointment would be quick and...
Well, after a couple of bad days in a lot of pain and calling up for a doctor to come out to the house, I finally got to speak to a doctor... and I felt like she listened, heard me. She was here for an hour, a good 30+ minutes more than I expected from a home visit, and she read my list of symptoms, pressed the muscles in my back (I said it was my arms and legs that were bothering me), and took my list with her. She mentioned 'chronic fatigue' 2 or 3 times and said 'fibromyalgia' at least...
A distressing night. After a day of little to no head symptoms, my head decided to play up as soon as I went to bed. A huge Zzzap! went through my head like a sudden vibration and I shot out of bed because, although brain zaps are now nothing new to me, they come and go in phases, and for weeks I've been more or less zap-free. I think it may always be scary. These zaps kept on coming after I lay down again, just as it seemed my body was settling down into sleep, a sudden vibration would...
It's been a while since I came online. I'm sure I had a topic for the blog, but for the life of me, I've forgotten it. I guess I'll just write a mishmash of what's been going on. Or not going on! I got an appointment to see a dietitian in another county that's a good hour's drive away, early in the morning. Getting to another city so early in the morning is not possible for me or my family, particularly my dad who is the driver and who sleeps over 12 hours and misses most of the day with...
After approximately 8 months of being sans gluten (at least in my diet), I'm faced with the decision of whether to continue, or conclude it early. I had originally planned to keep it going until Autumn this year, after getting some work done and pushing for some progress over the summer, ideally in the form of doctors seeing my plight and saying, 'Yes, I think you're absolutely right and sick as a dog!' (What daydreams.) But now, I just don't know if I can continue. For 7 months I have been...
Our family got into an argument last night, but sadly, the subject is nothing new. My mother's disregard for my dad's M.E has always been apparent, at least within the last 5-7 years, but now with dad's condition gradually worsening before my very eyes, her disregard and his frustration has reached new levels. He can easily be in bed for 12+ hours. She dislikes this. She seems to resent the rest he gets when she has to get up and do housework. She resents it when he goes to lay down during...
Well, my dad wrote two letters about my situation: one to the head gastroenterologist at the hospital, and one to his GP. He sent them off nearly 2 weeks ago, and as expected, we have yet to hear anything. It isn't surprising, and it's probably true that his letters were unusual. The doctors probably don't know what to make of them. He had me read them over to check for any missed information that I want included, but honestly, I have no idea what's best to write in a letter like this. So...
I have written out a full list of the symptoms and sensations I experience, what for, I'm not entirely sure, but I thought it might be helpful if I can get anyone to read it and consider me seriously. Heck, I'll thrust it at anyone! It's constantly being updated as new sensations arise and surprise, and I've probably forgotten something. Thought I would save it here also. SYMPTOMS SINCE OCT 2011, WORSENED/PROGRESSED SINCE 2017 UPDATED APRIL 2019 - Chronic acid reflux feeling like...
It's been a full month since my last visit to the forum and my flaky streak continues as my online footprints prove me to be a 'hit and runner.' When people talk about 'online footprints' my first thought is, 'well the Tory government can bloody well see how sick I am because I post so much and Google so much.' My second thought is, 'why do I join all these communities and write these posts if I then stay offline for a week, or a month, like how rude must I appear to people?' I know that the...

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PoorlyPixi
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