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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Lassesen
- Author Lassesen
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I often have attended the yearly talks of futurist/predictionist
Mark Anderson. This year there was talk about Mark’s new company, Pattern Computer.On that site I saw this interesting item
Insights in Inflammatory Bowel Disease
Using the Pattern Discovery Engine™ coupled with a hypothesis-free...
One of my favorite sources for information on the microbiome is run by Dr. Peter J. D’Adamo. For many years he has advocated eating for your blood type. In this week’s issue of New Scientist. an article “Your gut bacteria may match your blood group – but we don’t know why“
The difference between...
A reader forwarded me a link to: “Ozone therapy is an effective therapy in chronic fatigue syndrome:result of an Italian study in 65 patient” My initial take was that I was not surprised — why? Ozone kills some bacteria… but we need to dig deeper. Note: both Ozone and Hydrogen peroxide have one...
Epigenetics is turning DNA on and off. Another description is gene expression. A 2017 article ties this to CFS and there is a lot of other literature connecting epigenetic changes to other conditions and illnesses. This article not only tied it to CFS but with methylation issues seen with...
While working on an email response to a reader's question about mold/mycotoxins, I found this 2018 article: Mycotoxin: Its Impact on Gut Health and Microbiota.
Evidence of disturbance on gut microbiota modulation induced by mycotoxin only had been studied on animal and the results have been...
2-FL (Human Milk Oligosaccharides) is a medical food which I wrote about in this August 2018 post. A reader ask for my thoughts on Enteragam, another prescription medical food. It’s Serum-derived bovine immunoglobulin/protein isolate
A general introduction to the topic of medical foods can be...
The analysis site for 16s microbiome results (ubiome, thryve, etc) http://microbiomeprescription.azurewebsites.net/ has been revised to improve usability and to give more options.
Sample Selection Page
This has been de-cluttered
Ability To Edit some Meta Data
Clicking on Edit or Remove a...
This week I talked with some folks at Glycom, one located in Denmark and the other in Switzerland. I had made contact with them because of seeing a post from someone stating their product "2-FL" resulted in them no longer being histamine sensitive. Histamine issues are very hard to deal with...
A reader wrote: “I did a followup uBiome tests (5 site explorer) to compare to my 2015 gut test (from when my CFS was super bad). Diversity scores on skin and other tests seem very low since I’m on chronic doxycycline and minocycline but I’m feeling great!
“I believe I did mark symptoms on my...
I have done several posts on histamine issues over the last few years — some people close to me have these challenges. Past posts are below:
https://cfsremission.com/2014/03/06/the-histamine-production-model-of-cfs/...
The same reader that asked about Biological Markers for CFS/ME, came back with a tougher question:
“Now- another huge ask- have you written a post on the efficacy of various treatments? “
The core problem is the need to have proper control studies — which can be a challenge to both design and...
A reader wrote:
“This week on our ABC National TV, the head of a big city hospital’s chronic fatigue clinic stated that there are no biological markers for chronic fatigue, so the best treatment was graded exercise and CBT. Unfortunately his opinion is very powerful here in patients getting...
A reader wrote today:
"I have been trying B. longum BB536 as I have read it lowers d lactate producers
Seems its helping gut function but giving hot flashes and some heart palps, wondering why?"
The light went on --- I have just gotten a reasonable size of end-products relationships (5800)...
Bacteria produce end-products such as B12, Biotin, Butyrate etc. I have done a naive count of the number of bacteria in your ubiome that produces each and create a report from it. This is not perfect:
different bacteria are more or less efficient in production
this is based on available data...
A reader on her 2nd ubiome ( https://ubiome.com/ ) result had significant improvement but is also on a very restrictive diet due to severe histamine sensitivities. She asked for me to extract a probiotic centric set of suggestions. The site for upload of ubiome data and analysis is...
This is a copy of post M, that is #1000 post on my https://cfsremission.com/ blog. In it I will attempt to answer Nick's comment on Thick Blood, Clots dimension of CFS etc
Nick:
I assume the minimum list are still tests rarely done? It’s interesting reading, especially as my wife’s head...
Today I got a comment from someone with Hashimoto's thyroiditis, often co-morbid with CFS, IBS etc. I thought that I would check to see if there had been any microbiome work done on this condition. I was delighted to see a February, 2018 article, "Alterations of the Gut Microbiota in...
I have extracted from studies the bacteria that have been associated with various autoimmune-related conditions as well as building pages to apply them to uBiome samples at: http://microbiomeprescription.azurewebsites.net .
Original post at...
Both the other Labs Analysis and Ubiome recommendations have had the revised algorithm applied.
The Values are not how strong it works, but the probability that it will have impact (works)
A higher number means more and more studies have found that it has modified the bacteria.
Ubiome Example...