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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
Blog list
My experiences with pacing with a heart rate monitor, including heart rate variability.
In the spirit of trying to self-treat I thought it would be helpful to chronicle my symptoms and my treatments. I’m sitting at home, exhausted...
possibly recovering from major mystery health crash? some days it seems that way. Other days I'm on Friend The Couch.
I was dying. Now I am healed.
My ME CFS Specialist believes that ME CFS is caused by a number of factors coming into play, versus once pivotal...
Hello All.....I've been rather crippled and in bed for the past 7 days straight. No moving, can't turn...an accident and the pain has been rather...
Many important discoveries in medicine arose from self experimentation. The first heart catheterization was self-experimentation by a medical...
I am in my 60s, retired, live in beautiful countryside and always had active outdoor life. Sudden onset of CFS-like symptoms. Not diagnosed...
Current functioning:moderate occasionally bedridden
Goals:Improve enough to.work part time
Find better living arrangement where noise sensitivity...
I started this blog originally on word press, but I thought I would see how it fairs on this website.
My name is Thomas, I am 29 years old and I...
I posted this originally on word press, but I thought I would see how it fairs on this website.
My name is Thomas, I am 29 years old and I have...
This CFS/ME crap has certainly and documentably interrupted my hobbies but hasn't taken them completely away.
Yet.
Which makes the thing a...
A place to safely uncover and release my real feelings under this suffocating sickness, which remains, as of March 2019, unquestioned...