Blog entries by Nightingale

It's summer where I live, and worse yet, we're in the middle of a heat wave. It's been over 30 degrees Celsius for a few days, which is 86...
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169
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Frustration. I've been uncomfortable and in pain ever since I got CFS, but this past week has been awful. It seems like every day my whole body...
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132
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4
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It's been a hard few months. On one hand, physically I've seen some really encouraging improvements. I've been able to do more. I've cut out...
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61
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2
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My husband started playing D&D. I'm glad. He's really enjoying it. He's my carer, so he needs friends and a life outside of me. I thought I was...
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67
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1
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I'm writing this because it feels too painful to talk to my family members about it. Painful for them. I have MCAS and I feel like I've just...
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93
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6
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I was just discharged from hospital a few hours ago. I had another anaphylactic attack, probably the worst yet. I didn't get better until I had...
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101
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8
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CFS weddings! Does your heart fill with fear at the thought of arranging such a huge, expensive event that you might not physically be able to...
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78
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6
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