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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Blog entries by I AM
I became ill and hospitalized in July 2014. And by March 2017, I was too debilitated to continue working my part time office job.
In 2018, I was in a landmark clinical trial for MECFS led by a team of renowned researchers and a prominent MECFS physician.
And in 2019, I entered the functional...
Understanding ME/CFS Today: A Clinical & Research Approach
Join the Institute for Neuro-Immune Medicine (INIM) at Nova Southeastern University to learn from the institute's clinicians and researchers as they discuss the clinical and research approach to ME/CFS.
Irina Rozenfeld, MSHS, MSN...
I had my follow-up appointment with Dr. Rey at the Institue of Neuro-Immune Medicine at Nova Southeastern University. I think Dr. Rey is very knowledgeable and caring. They take Medicare Insurance, too! Not many ME/CFS Specialists do.
There were 5 med students with Dr. Rey (with my permission)...
I cite this study translational-medicine.biomedcentral.com/articles/10.1186/s12967-018-1392-z because all my many health problems began with an enterovirus. And this trial gave participants Dx w/MECFS antibiotic and probiotic treatments and diet to address enterococci and streptococci gut...
The Administrative Law Judge rendered a fully favorable decision back in early May. But he did not approve my attorney's fee agreement. He stated, "You appointed more than one representative from a law firm, or other business; all your representatives did not sign a single fee agreement; and the...
I recently went to the Cleveland Clinic functional medicine group and consulted with Dr. Alice Prescott. A patient told me that Dr. Prescott helped him a great deal. Dr. Prescott believes that I have MCAS mast cell activation syndrome, which I had suspected but since neither my hematologist or...
Many PwME complain of episodes of feeling as if they are running a fever although body temperature read by a thermometer is normal. I have these episodes. Often they are accompanied by chills exactly like one would experience with a high-grade fever. Other times I feel as if my body is hot, as...
Lactic Acid, aka Lactate, is found at elevated levels in PwME.
POINT
You usually don’t detect this [lactate] in the brain at all – and when you do it usually means the chemical reactions in the brain are happening so fast that the blood supply cannot keep up with the demand for oxygen. When...
I've been following the work of Doris Loh. She just released her latest research this morning about Vitamin C / ascorbic acid for mitochondrial functioning, oxidative stress, redox balancing, etc. You can read the article here...
If you are not familiar with my story, I am being treated by Dr. Irma Rey at Nova Southeastern (in Dr. Klimas' group). Dr. Rey believes that ME/CFS is an environmental illness with MANY factors coming together to create the condition. I have tested off the charts for 2 molds, almost all heavy...
"Unrest" documentary filmmaker and activist, Jen Brea writes, "By any definition, I no longer meet the criteria for myalgic encephalomyelitis. My physical and cognitive post-exertional malaise (PEM) are both gone. I have not crashed since I left the hospital. My POTS is gone. My peripheral...
NAC is a precursor to glutathione production in the body. According to my research, most people with ME benefit from taking this supplement and many clinicians believe it is superior to taking glutathione. You can Google it or use Google Scholar and I've posted a few links below to articles that...
My sleep had been TERRIBLE (trouble falling asleep and trouble staying asleep) when I moved into this house. But this year I have been on a supplement protocol that includes a MELATONIN tablet at night and my sleep has been perfection. Just like that. And sleep effects sooooo many things that...
So, in my first blog entry I wrote extensively about the turnaround that I had. This past week-ish, I stopped taking all of my supplements and meds (I am on a few RX meds but a ton of supplements). It wasn't really intentional and what happened was that my pill boxes/organizers simply needed to...
So, here are some further thoughts from people on chronic inflammatory response syndrome and ME/CFS. I shared before that some people think these are the same condition. Recently in one of my FB mold groups a person asked this question, if they are the same disease. And here is another...
Thank you to the people who sent private messages to me. However, I do not have the time to respond. I simply want to share some information here on the blog that may help people on their journey. My original post has tons of resources for people who want to learn more.
Understand that I wrote...
The video from the International Society for Environmentally Acquired Illness (ISEAI) mentions many of the illnesses we are dealing with like CFS, POTs, MCS that they claim are caused by environmental factors. They claim the symptoms can be reversed with many of the approaches that I mentioned...
I was dying. Now I am healed.
My ME CFS Specialist believes that ME CFS is caused by a number of factors coming into play, versus once pivotal incident happening to me as I had initially thought. I became sick after a trip to the Jersey Shore and NYC that landed me overnight in the hospital...