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378
Blog entries
2,262
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115,935
Comments
9,383
For the past few days I have been in another "remission". Which I am grateful for indeed. Things feel pretty normal again. I can relate to things...
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97
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Wow. So I finally got the DUTCH hormone test back which resulted in Progesterone increase Testosterone increase DHEA increase And I feel a lot...
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71
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4
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I would have to argue that although ME/CFS is a really hard disease to have because of the general misunderstandings and abuse we put up with from...
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45
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Seeing is Believing! An idiom that everyone has heard at some point in their life. I bet, as a person with an invisible illness, reading that...
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56
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I am having a hard day today, both with this illness and with being a mother. Last week, I flew to San Francisco, CA from Portland, OR to do my...
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45
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As I have mentioned in my introductory post, I was undiagnosed for 6 and a half years. During those years, I was completely abused by the medical...
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45
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2
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About 21 August I started trying Echinacea angustifolia tincture again 5ml. 3 times a day, plus 2-3 cloves of raw garlic. I felt that whatever had...
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42
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The analysis site for 16s microbiome results (ubiome, thryve, etc) http://microbiomeprescription.azurewebsites.net/ has been revised to improve...
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55
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Getting past my fear of resting Earlier on in my illness, I felt a fear of resting, and of falling asleep. I was afraid that if I rested, or fell...
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51
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I've been pretty down since the beginning of the month. A crash. Soldiering on. Feeling mighty weird and not right. A few days ago I decided to...
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52
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Feeling better than I have in years but still burdened and afraid of my "shadow," the metaphor I've used to describe my ME/CFS...
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40
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I had to take my car in to the town Thursday and leave it there for MOT testing (law in UK). I decided to walk home as I always have done every...
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72
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From @Learner1 's markers Total hours of sleep in 24 hours - 9 Number/hours of naps per day - 2.5-5hrs non-sleep meditative rests. Occasionally...
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44
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Hi everyone! I don't really have anything new to report but wanted to say hello. I've been taking my legos out and photographing them with my...
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56
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It's been a hard few months. On one hand, physically I've seen some really encouraging improvements. I've been able to do more. I've cut out...
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56
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I had a BRUTAL month, I had to work all hours and even normal people around me were very tired, My shift would start at 6am and I would not go to...
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So in earlier posts, I echoed an unoriginal thought that CFS, at least MY version that I deal with, was metabolic in origin. I pointed to a...
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This week I talked with some folks at Glycom, one located in Denmark and the other in Switzerland. I had made contact with them because of seeing...
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73
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