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Well what a mess I am today! Basically anxiety is going at about 80mph all day. Now I am wired and can't sleep. It's 4am and I am deeply tired but...
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Still progressing through Dr appointments. Some more tests from primary Dr being done, but a referral to Rheumatologist is likely coming. I am...
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46
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Planning further ahead and freezing food. To notice when my body says no. To know the difference between a warning 'no you will pay for this' and...
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I'm Darla, a nine-year ME patient who has released a memoir, Lightening the Shadow: Diagnosing and Living with an Invisible Chronic Illness. Short...
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One of the effects of being mostly homebound is that I have fewer adventures. Adventures were a big part of my life. I miss them. So I'm...
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Just been having a look online to see what other people have in their freezer to get ideas, but I can't find anything. (Probably not looking hard...
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49
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This past week, I have had a flair of symptoms. This flair has been worse than my previous ones and I can barely get out of bed. All I want is...
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2-FL (Human Milk Oligosaccharides) is a medical food which I wrote about in this August 2018 post. A reader ask for my thoughts on Enteragam...
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My bridal gown was huge and gorgeous. And also impractical. I could hardly go anywhere on my own, and my dad had just told me to stay put or else...
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I thought I'd try out anti-inflammatory herbs as a regular thing. I still have no firm diagnosis, but the herbs are worth a shot. It is the most...
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After I got my diagnosis, even with the crazy class they put me in at the Mayo Clinic (see earlier blog entry: My Experience in the Jacksonville...
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For the past few days I have been in another "remission". Which I am grateful for indeed. Things feel pretty normal again. I can relate to things...
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Wow. So I finally got the DUTCH hormone test back which resulted in Progesterone increase Testosterone increase DHEA increase And I feel a lot...
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I would have to argue that although ME/CFS is a really hard disease to have because of the general misunderstandings and abuse we put up with from...
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Seeing is Believing! An idiom that everyone has heard at some point in their life. I bet, as a person with an invisible illness, reading that...
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I am having a hard day today, both with this illness and with being a mother. Last week, I flew to San Francisco, CA from Portland, OR to do my...
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As I have mentioned in my introductory post, I was undiagnosed for 6 and a half years. During those years, I was completely abused by the medical...
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