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373
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2,219
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38,732
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Getting past my fear of resting Earlier on in my illness, I felt a fear of resting, and of falling asleep. I was afraid that if I rested, or fell...
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31
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I've been pretty down since the beginning of the month. A crash. Soldiering on. Feeling mighty weird and not right. A few days ago I decided to...
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30
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Feeling better than I have in years but still burdened and afraid of my "shadow," the metaphor I've used to describe my ME/CFS...
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21
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I had to take my car in to the town Thursday and leave it there for MOT testing (law in UK). I decided to walk home as I always have done every...
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From @Learner1 's markers Total hours of sleep in 24 hours - 9 Number/hours of naps per day - 2.5-5hrs non-sleep meditative rests. Occasionally...
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Hi everyone! I don't really have anything new to report but wanted to say hello. I've been taking my legos out and photographing them with my...
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34
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It's been a hard few months. On one hand, physically I've seen some really encouraging improvements. I've been able to do more. I've cut out...
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I had a BRUTAL month, I had to work all hours and even normal people around me were very tired, My shift would start at 6am and I would not go to...
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So in earlier posts, I echoed an unoriginal thought that CFS, at least MY version that I deal with, was metabolic in origin. I pointed to a...
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This week I talked with some folks at Glycom, one located in Denmark and the other in Switzerland. I had made contact with them because of seeing...
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....It was a 3-week "remission", apparently. But it's okay. I am trying to be positive though am disillusioned again today. Three weeks is the...
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It is the blueberry season in Oregon, and I have this box, 5lbs of blueberries. They're gorgeous and exceptional this year - perfectly tart, not...
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Hi, anyone already launched a blog on this paper, from the Griffith's group? It seems a bit weird i.e. they appear to be the only group focused...
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A reader wrote: “I did a followup uBiome tests (5 site explorer) to compare to my 2015 gut test (from when my CFS was super bad). Diversity scores...
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Improvement update.... Well this seems to be sticking. I hope. I am back to vitamin B complex maintenance dose (not very strong) a multivitamin...
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I have done several posts on histamine issues over the last few years — some people close to me have these challenges. Past posts are below...
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