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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Not Exactly an Emergency / The Beat Heat ManifestoThis! Glad you are OK (but watch that heat) and love the sunset....beautiful. -
Not Exactly an Emergency / The Beat Heat ManifestoNo need to apologise I love to hear your thoughts as well as your adventures -
Not Exactly an Emergency / The Beat Heat ManifestoYes it is and what I refer to as 'just the right temps' are making me reminiscent of growing up in California. And what is strange is the last... -
Not Exactly an Emergency / The Beat Heat ManifestoHoping the NWS Phoenix has this right - supposed to be cool into the weekend, which equates to more freedom and frolic out and about 🦼
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Responses to (and updates for) those of you who've been following along from blog entry to blog entry.
And then also, brief background information explaining “how I got here” - in case anybody ‘new’ has happened along:
NOTE - Not new to the story? For your ease and convenience, please skip...
This is to help remind me what and how I’m doing it because sometimes i have so many Things up my sleeve I lose track, ha! And maybe it will remind someone else too … or maybe someone wants to add things they are doing in comments.
We all know gut health is important with this illness. Many of...
Hi guys,
So I have been feeling progressiely better on legumes but I still don't have my test results from biomesight to prove anything. However I did go out yesterday and had fatigue in the evening but I also experienced some acute stress the same day and I could feel that playing havoc with...
Responses to comments from previous blog entry ---
Hey y'all ... appreciate the suggestions.
My doctor told me to go to the hospital tonight, but really, there's no sense in doing so (right now). I am basing this upon my urine color (yellow / straw), and upon the fact that I felt decent over...
“All right
Wild child, full of grace
Savior of the human race
Your cool face
Natural child, terrible child
Not your mother's or your father's child
You're our child, screaming wild
An ancient lunatic reigns
In the trees of the night
With hunger at her heels
Freedom in her eyes
She dances on...
My daughter has been showing signs of what I have or mold illness or a combination of both. For sometime now. 5 drs past 10 days. The most ridiculous diagnosis reasons for throwing up 3-5 am while just wanting to sleep and feeling burning up with no fever, 2 abnormal thyroid tests but not off...
Someone asked me to update this post, I am no longer taking tudca, will try UDCA at some point:
Diet
High fibre to lower bacteroidetes (30g a day up from around 15)
Low fat to lower bacteroidetes (removal of lamb, red meat once a week, fatty foods like chorizo and others out)
Regular...
Well my symptoms of sore throat, congestion and poor digestion with some very mild fatigue came back overnight after a 24 hour tudca break.
Insomnia was bad overnight but I somehow managed to get back to sleep after covering myself with a second duvet. My body does this very very strange thing...
Hi guys,
So I have been taking tudca for about 6 to 7 days 250mg a day. I have been quite shocked at some of the improvements, here's a list:
1. initially improved cognitive clarity (less so in subsequent days likey due to poor sleep)
2. Physical fatigue disappeared and even when I had a bit...
First, Last and Only
"You need to try harder if you want to get stronger. Most people don't push themselves."
Yes, he was talking to me, and about me. That was his immediate impression. The physical therapist assigned to me was insinuating that I wasn't trying hard enough, that I was unwilling...
Basically, I am hiding in a cave. But it's not particularly dark, nor dank. Nope, I'd suggest dry and warm is the thematic equivalent. Or possibly, it's more so the thermostatic likeness.
So while living in this garage, I must remain unheard and unseen for the duration - I shan't be deported...
Continuing to eat black eyed beans while battling seasonal viruses and kidney stones.
I've just done another round of 3 100g doses of black eyed beans and feel better again physically for doing it.
I have had to increase my rishi dose to 4 caps 3 X a day and ive restarted TIME lions mane...
Eclipse
Moon
Enough,
Enough
Close the doors please 🙏
“Strange times we're living in
World can put fear in ya
Hierarchy parties, they make us feel inferior
Greed runs through the parliament interior
Devils walk among us, they fit the criteria
Eerie theories strike fear in weary minded men...
4 days,
21 hours,
and 44 minutes
is all I have left
And really, I should stop right there. No need to continue on with additional words, is there?
Well, I suppose there's a minimum amount of words required to officially make this a blog entry. So I shall indeed enter more words. And then...
The current situation.
Why is this whole illness such a nightmare from beyond? It’s like some of us have to stave off demons from every direction whilst already battling for our lives alone.
So, I have a few things that are approaching medical intervention, if I want to stay alive that is...
Hi guys,
I wanted to do an update on what I take now and what dietary interventions I am making that are important.
I am still on a lot of josh's OLD protocol (not his new one) but I have added a few other things, so here it is
Diet interventions increase firmicutes and lower bacteroidetes...
“…hi Ren… I’ve been taking some time to be distant,
I’ve been taking some time to be still
I’ve been taking some time to be by myself and I've spent half my life ill
But just as sure as the tide start turning
Just as sure as the night has dawn
Just as sure as rain fall soon runs dry when you...
This will be one of my last evenings perched above the freeway. And due to the excess noise beneath me, I am nearly hollering into my phone as a means to get my words across and understood (via voice-to-text). I suppose you don't need to know this, or perhaps, you don't need to know anything at...
"I have woken up
With heart broken again
No smart poetic answers
To the suffering that rages
In places I do not know
No fancy spiritual philosophy
That shields them
When the bombs fall
Just a tiny voice that whispers
The love of peace
Even in the midst of war."
~...
Dos
As of today it's been two years since I first came to reside at the nursing home. And somehow I've survived this ordeal. Of course, many haven't. The average lifespan of a nursing home male species inductee is approximately 6 months. Females typically last 9 months. It's true though, that I...