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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Not Exactly an Emergency / The Beat Heat ManifestoI would suggest trying one of the over the counter products by Nestlé first. More affordable. The Liquid Hope and the Kate Farms formula cost... -
Not Exactly an Emergency / The Beat Heat ManifestoIs this the product you have been using ? https://www.functionalformularies.com/product/liquid-hope-peptide-high-protein/ I might have to get... -
Not Exactly an Emergency / The Beat Heat Manifestothe landlord sent the workers there, unsupervised, and so technically they paid the fine. but then nobody turned the power back on. Details...
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Not Exactly an Emergency / The Beat Heat ManifestoThat was mean esp since I cannot see how any of that was your fault.
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Not Exactly an Emergency / The Beat Heat ManifestoOh the door looks bad. Found myself here, in this new abode, with two automatic garage doors with like bicycle chains that pull one or the other...
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Mutations of Immortality
from an interview with Christian Bok conducted by Jonathan Ball
Could you describe your next project?
The Xenotext Experiment is responding to the millenial science of genetics. I'm trying to write a book of poetry in which I translate a single poem, through a...
None of these are original. Somebody else has said them all. They are heuristics, rules of thumb, which means they are only guides not laws set in stone. They should be considered opinion.
These are the kinds of things you often find at the bottom of day calendars on office desks. I am a...
I suppose most have us have been there; feeling very sick but having all the standard test results show up normal. The feeling, when the doctor gleefully informs you that you are completely healthy, when you feel so sick, is not one of excitement.
For me tides seem to have changed now...
Well I have tested positive for all sorts of problems with my Mitochondria function. Great to have some explanations for my strange symptoms of sickness at last. I even told my Mum 'it was the best news I'd had in my entire life'. Dr Myhill sent us (and my GP) a letter explaining it all but its...
We are either approaching a summit which will resolve the global financial crisis, or sliding into an economic sinkhole, depending on who is talking. Frankly, I've lost track of some of the financial legerdemain, and would not hazard a guess on which shell, if any, hides the pea.
My...
Hi,
Firstly thank you for reading this post on my blog. I fully appreciate you have taken the time to do so as I understand how precious time is to us. My name is Jen and I have M.E/CFS and Fibromyalgia. I live in Scotland, UK and I'm 42 years old. I was diagnosed last year but like most of...
KAISER ME/CFS PATIENT ADVOCATE
"http://www.youtube.com/user/kaiserMECFS?feature=mhee"
From Umbria, Italy to Denver, Colorado.... I report as I go with my illness and new meds. Miami's Dr. Nancy Klimas is my coach and leader. Currently I am sicker than a dog @ week 2 - day 2 of Imunovir.... not...
After hitting the boom and bust cycle pretty heavy over the last couple of weeks, I decided to have a really quiet week. The only thing I had to do for the week was the gestational diabetes test, which I must say is most unpleasant.
You have to fast for 10 hours before hand. They take your...
Hi, I'm nearly 20, had ME for 11 years, 6 months and my name is Rosalind Amor.
I have been transferred to a new Dr, Dr Sarah Myhill, since Dr Wights clinic closed along with all his other. She is redoing my Mitochondria tests because apparently Dr Wight, for some odd reason, didn't test them...
I was going to write this up as a post with questions but i dont have the brain power to sift through all this. I have decided to post the whole report as a blog in the hope that someone will take the time to read through it for me and explain what some of it means. I can understand bits and...
You probably dont have enough VIP. 98% of people with CFS dont. The MCS crowd hasnt yet been testing, but when you learn what this neuropeptide does, youll probably surmise that low levels play a big role in that syndrome as well.
Ive been thinking of going to Dr. Rea for allergy testing...
<img src="http://www.jewishcommunityheroes.org/page/file/0e16a6fbc7b4c02243_iem6bhgvr.jpg/@mx_223" align="right" />Marly Silverman is a worker! How many people have played a major role in creating not one or two but three organizations? Marly first created PANDORA, then in response to the CDC's...
This week we had to attend a funeral to attend in Bendigo which is a three hour drive from home. We drove up the night before and stayed with my husbands Mum. We decided I would stay up there while he went back to work and he would come back for the weekend. Having had such a bad crash we did...
Completely overdid it and crashed for four days. The Fibromyalgia was so bad, I couldnt move.
I made the mistake of thinking that as I was feeling good, and had more energy I could take the dogs for a walk. I only walked around the oval, so less than 10 minutes but the next day, I started to...
I came across this new book entitled "Testing Treatments" that is available for free download www.testingtreatments.org. I've just started it, but it seems very interesting and useful in evaluating the various studies we see on CFS, maybe giving us a more intelligent way of discussing treatments...
One principle I picked up over several careers was that if a group of intelligent and reasonably hard-working people have failed to solve a problem, after a sustained effort at finding a solution over a considerable length of time, finding a solution might very well require systematically...
First, WARNING ADULT HUMOR in Link! You have been warned, do not complain if you're not into it, just don't click it.
Okay, I am dedicating this song to my evil relatives and to Simon Wessely. And anyone else who has ever disbelieved us or treated us like crap because of our illness.
I am indebted to the late Douglas Adams for the idea that a device which radiates emissions causing people to perceive "somebody else's problem" would enable one Increasing medical and scientific specialization has expanded the scope of this technique astoundingly. I'm sure many readers will...
Sorry really sick today so not going to add much commentary.
I can't read very much, so no doubt many of you are much more informed than I am! I just pick up bits and pieces of info from articles or videos, and do my best to, sort through what I perceive to be the bogons in the process then...
Today I'm posting a bunch of comments I've been working on for weeks. This is my first blog post, which I'm using to post a large comment here rather than bloat up a forum thread.
For two years I have been mostly fence sitting on the XMRV/HGRV issue, I was not willing to devote too much time...