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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Not Exactly an Emergency / The Beat Heat ManifestoI would suggest trying one of the over the counter products by Nestlé first. More affordable. The Liquid Hope and the Kate Farms formula cost... -
Not Exactly an Emergency / The Beat Heat ManifestoIs this the product you have been using ? https://www.functionalformularies.com/product/liquid-hope-peptide-high-protein/ I might have to get... -
Not Exactly an Emergency / The Beat Heat Manifestothe landlord sent the workers there, unsupervised, and so technically they paid the fine. but then nobody turned the power back on. Details...
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Not Exactly an Emergency / The Beat Heat ManifestoThat was mean esp since I cannot see how any of that was your fault.
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Not Exactly an Emergency / The Beat Heat ManifestoOh the door looks bad. Found myself here, in this new abode, with two automatic garage doors with like bicycle chains that pull one or the other...
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Hmm. Have a zillion reasons i dont eat roast beef except i suddenly craved it after at least 5 years without and it tasted great! OTOH I suddenly cant stomach eggs, a staple in diet. Inakso want bread which i never eat and shudder at pasta, my usual food. And bring on the salt salt salt im...
I saw this today and i feel i am beginning to surface after being in deep waters all week.
I thought i would share since we are all human...and all go through these things.
Birth, life and death.
"Tending to grief is the essence of the alchemical wounded healer. Proving a sanctuary and safe...
This is what happened. On valentines day, I was shot with covids arrow rather than cupids.
At breakfast and lunch were fine with zero indication of illness . About 4 pm i started getting a headache. I blamed it or at least its worsening on trying to read small subtitles on a movie i was...
Today is Day 11. I think I’m supposed to be better. But the congestion in nose and extending to throat remains unrelenting. Thick secretions I cannot clear that has produced many moments of near panic. Also makes me dizzy.
Doctors are unsure if this reflects continued covid or a secondary...
First posted in summer 2021
Updated spring 2023
I recently put data about treatments I've tried into Stuff That Works to help build their database. They're hoping to identify treatments that work for subgroups. I thought it might be helpful to share my big old list here.
I've split it up into...
My ex boyfriend i was with for 5 years before my husband, passed away Thursday.....and i feel sad.
He battled big monsters for a great many years. I spent many years saving him.
Its really strange because we haven't been in contact in 15? years.
This is kind of strange territory to navigate...
The strongest of all warriors are these two—
time and patience —Leo Tolstoy
I’m old enough to remember the sneering jokes on late nite TV after
Jimmy Carter’s interview with Playboy and his admission that, in his heart, he’d lusted . Quite
an admission from a devout, practicing, Sunday...
Dr Weir's 5 free Irish ME/CFS talks in Cork/Dublin/Galway/Limerick/Sligo, May 2023
The Irish ME/CFS Association is pleased to announce that it has arranged for Dr William Weir, a leading international ME/CFS expert from the UK, to give 5 ME/Chronic Fatigue Syndrome talks in Ireland in and...
One never knows, do one ? — Unknown
I’ve suspected for a long time that what they’re calling Long COVID, or
Long Haul COVID, or LongHaulers, is way too close to ME/CFS in its symptoms and effects
for this not to have been noted by the highly trained minds in the medical profession...
"Growing in numbers
Growing in speed
I can't fight the future
Can't fight what I see
'Cause people, they come together
People, they fall apart
And no one can stop us now
'Cause we are all made of stars
Efforts of lovers
Left in my mind
I sing in the reaches
We'll see what we find
People, they...
“Better a mouse in a cat’s mouth than a man
in the hands of doctors” — Spanish proverb, 17th C.
When I saw a recent blog here about The Healy Device, and then after another PR member called my attention to it as something that sounded compellingly interesting, I was, like most of us...
This is for those that have been feeling the energy tsunami from the sun this week. EIGHT M and X class solar flares plus many C level ones. Now thats a real cellular tango! I have written previous blogs about how i feel the sun....and you may too :) You also may not. Either is just right.
I...
Please keep in mind that I missed the brunt of everything - but this is exactly what was happening at 3:03 p.m. (Mountain Standard Arizona Pacific Daylight Savings Time) during the brief 22 minutes that I spent in-house.
My neighbor and friend (Dora) was borderline hysterical, calling out my...
" love never hurt us, it was the absence of love" -mei lan
a prayer
for humanity's
collective heart
which is
a part
of all of our healings
as we are
all pieces
of one
cell
the
illusion
of separation
is thick
:heart:
Something i really haven't talked much about, is that i own a Healy device. Since November 2021. I acquired it after i did some fundraising. It is a FDA clearance approved device that i have found very few people know about yet in the United States. Approximately three years ago a friend from...