Today, I took my first bath in many, many years. In an inflatable tub in my bed. My Angel nurse friend helped me.
Tears streamed down my face as I realized what was getting ready to happen.
It was a bit difficult to have the pump next to me but once I felt the water, I turned into a 5 year old. Sliding my legs up and down. Resting. Getting SO clean!!!!
I also found while she was trying to drain it (which did not go well but oh well most of it went well) that if I lightly kicked my feet up behind me, this swoosh of water would move up along my spine. It was such an incredible feeling. Water all over me!!!! 💧💧💧
I felt like a mermaid. I didn’t really want her to deflate the tub. I wanted to splash my tail and adventure to faraway ocean adventures with beluga whales and dolphins … but, Rainn said you are done sunshine. Look at your fingers.
It was a day I will never forget.
To feel that much water for the first time in YEARS. I could still crawl and lay in a tub weekly? In 2017. Then in 2018 I tried a shower chair but that didn’t go well. I was quickly deteriorating and this happened at most monthly for but minutes and would severely crash me after each time. Plus I couldn’t lift my arms to my head and no helpers for this back then. But the last time I was in a shower was Valentine’s Day February 2019. The day I realized, I can never do this again if I want to stay alive 😢.
So, yeah, today was kinda a big deal.I am crying as I write this right now.
Thank you, God, for Rainn and the ability to finally purchase a device as this.
Tears streamed down my face as I realized what was getting ready to happen.
It was a bit difficult to have the pump next to me but once I felt the water, I turned into a 5 year old. Sliding my legs up and down. Resting. Getting SO clean!!!!
I also found while she was trying to drain it (which did not go well but oh well most of it went well) that if I lightly kicked my feet up behind me, this swoosh of water would move up along my spine. It was such an incredible feeling. Water all over me!!!! 💧💧💧
I felt like a mermaid. I didn’t really want her to deflate the tub. I wanted to splash my tail and adventure to faraway ocean adventures with beluga whales and dolphins … but, Rainn said you are done sunshine. Look at your fingers.
It was a day I will never forget.
To feel that much water for the first time in YEARS. I could still crawl and lay in a tub weekly? In 2017. Then in 2018 I tried a shower chair but that didn’t go well. I was quickly deteriorating and this happened at most monthly for but minutes and would severely crash me after each time. Plus I couldn’t lift my arms to my head and no helpers for this back then. But the last time I was in a shower was Valentine’s Day February 2019. The day I realized, I can never do this again if I want to stay alive 😢.
So, yeah, today was kinda a big deal.I am crying as I write this right now.
Thank you, God, for Rainn and the ability to finally purchase a device as this.
