Trauma, potential cause of ME/CFS

Due to a number of inquiries, privately, I decided to oblige and create this short and matter of fact post. Others on this forum might also have a interest in as far as it possibly relates to ME/CFS.

This is not posted to gain sympathy, or pity in any form. I decided to post this because I (and my healthcare team) thinks it shows a perspective on the possible development of ME/CFS that appears lesser focused on than the viral angle, though certainly not ignored or unknown. There are a few site pondering a link between childhood trauma and CFS, but none mentioning ME/CFS. Here is one such example:

https://pubmed.ncbi.nlm.nih.gov/19124690/

The below details are indisputable fact. My entire healthcare team has my files for both private and internal government records detailing in minute fashion the realities of these facts.

What follows isn’t entirely pleasant, but necessary to the end point. I will keep as plain as possible (the removal of my emotional states during the experiences), in hopes that the details will be less dredging on the readers emotions. So be aware.

I’ve mentioned I’ve had an adventurous life, and have started to place some of those adventure stories here in my blog, Breath of a Wolf’s Trail. However, not all my adventures were fun and exciting.

Before I had even reached 5 winters old I was accustomed to regular recurring pain and fear. I was beaten on a regular basis from my earliest memories through around 8 winters. My uncle told me years later he called them WDB’s - Wolf’s daily beatings. Though the beatings had nothing to do with my uncle or father.

By the time I reached 10 winters I was so used to pain that it rarely affected me beyond enraging me. I felt far more rage than I did any pain at that point. I started training martial arts between the age of 9 and 10. By my 13th winter I was fighting in illegal street rings designed for kids by nasty people who simply exploited kids to make money. Winners took away cash.

It was due to that involvement that one day I was lured to a large house that I was told would have a fight in the basement with a nice cash reward for the winner. That was my first experience inside a very abusive and dangerous cult that was well known by authorities in the early and mid 80’s. For almost 3 years I endured ugly interactions with that cult. It was my first experience witnessing human death, and feeling it in my hands, and I can never forget it.

My first near death experience was at the hands of that cult. At age 13 I was thrown into a metal water trough in a basement by a man and woman. They held me under until I drown. After-which they resuscitated me on the moldy concrete floor, and told me that now I belonged to them and would be used to commune with a bastard demon. Yes there is a long story in itself there…

After being recruited at too young an age, I began my CST training in the agency. After graduating I went on to specialized training at various private training compounds. And after that I went through SF training. I became a Special Operations Officer with a very specialized skill set. I trained at Camp Perry, Ft Detrick, Snow Mountain, Coronado and Little Creek.

During that employment I saw and experienced things that just shouldn’t exist in any world. They will remain with me my entire life.

During my time in that profession I had 3 more near death experiences. The first was another drowning. I was captured south of the boarder, and after being beaten I endured waterboarding. But since I had cracked ribs and contusions from the beating, I couldn’t hold my breath for long, nor resits the water. After drowning my captors were so kind as to resuscitate me for interrogation. I was rescued 4 days later.

I was captured again during an op that went wrong in northern South America. It was a horrid place, a scopolamine den used for human trafficking and the sick twisted things that go along with it. I was stripped and chained to a metal chair with my feet in water. Wires were strung from the chair to a car battery that had a toggle switch tied in. Eventually my heart gave out. I was revived with a shot of adrenaline directly into the heart. I spent 5 more days in that place before escaping.

My last near death experience came when I was exposed to chemical warfare and was severely poisoned in 05. The toxin was arsenic trioxide, tampin, tamulotoxin, cytotoxin and histamines. I had a blood concentration of arsenic trioxide at 1,300/mcg/L. It took amazing efforts and skills of the agencies medical team to bring me back from that one. That one changed my body forever. For a view of med doc showing details, see this private thread: Ref Doc

I’ve seen more death and suffering through those years than anyone really wants to know about.

I have endured a ridiculous amount of injuries, many grievous, in my life. I literally have scars from the top of my head to my toes and on every part of my body. You name it, there are scars. 20 broken and or cracked bones, 7 severed tendons, many sprains of ankle, wrist and elbow, 5 chest wall contusions, numerous organ contusions, a partially collapsed chest wall, nerve damage in numerous regions, 7 major concussions, 5 stab wounds, one shattered foot, broken teeth, over 35 major lacerations, two dislocated shoulders, many lacerated tendons and torn ligaments, damaged spleen stomach, lungs and small intestine from being poisoned in 05… and yes more.

It is the opinion of my medical team, which spans multiple countries, that the ME/CFS I deal with was not caused by virus, like it appears to with so many. I’m sure most people in this forum know that ME/CFS can be caused by trauma, even childbirth. Every test we’ve run over the years for viruses and parasites has come up negative. Every round of anti-virals have done nothing on the positive or negative side of the spectrum. Even taking daily prednisone for a whole winter and then tapering off didn’t trigger any viral episode. This isn’t to say they aren’t there and hiding, but we’ve found nothing. What we can be sure of is the fact that my system has endured more trauma on a chronic level, spanning decades, and the human body just isn’t built for it. Pile on the reality that in that line of work we are trained to seal off our emotional states in order that we can do the tasks at hand. But we all understand that the body remembers everything, including years of emotions that were not able to be expressed. These mutate and eventually cause physical issues. The suppression of extreme emotional content simply compounds the physical trauma.

One of my docs who has access to internal government, found a small paper that mentioned, I think, 75% of American SF and Spec Op individuals developed one or more neuroimmune diseases after retirement. Supposedly studies are being developed to look into it, but so far as he knows, none have actually started.

And here I am today dealing with all I deal with. This is not to say my current position is worse than someone else's position. I never compare such things on a scale, as each of us has varying capacities of experiencing and dealing with, and so extremes fluctuate from person to person.

Due to my level of involvement with the clandestine, for National Security and legality reasons, my options are surprisingly limited as to who I can contact about what level, and what organizations are even allowed to work with me in higher capacities that deal with anything that occurred during those years. I am lucky enough to have some quality heatlhcare specialists that span a number of different countries. Those out of country have a bit more play, but access is obviously difficult. But we are all working it as best we can, and I am positive that it will eventually payoff.

It is important to understand that I’m not saying my ME/CFS was caused by trauma, or at least completely. Though I’ve gone though many years filled with numerous experiences that turned into trauma, I’ve also had many other events that very well could have contributed, or even been the base cause of the ME/CFS; being poisoned, being electrocuted (brain and nervous system alteration/damage), being injected with various drugs during torture and so on. However, in my humble opinion, in my own case, I do feel the level and chronic nature of trauma did have a large hand to play in the development of ME/CFS in my system.

Of all my experiences of the foulest regions of life, I’ve been lucky enough to have experienced much of the exact opposite as well. I have memories of sheer horror that continue to visit me by day and by night on a fluctuating basis. My wife has gotten so used to it that for years now she can literally wake me up from a night terror without even waking up herself. But I have an amazing amount of wonderful memories and experiences as well. I have a wonderful and highly supportive wife of 27 years, a son I can be proud of, a small but incredible group of friends (though all long distance), a good home, strong spirituality, lots of hobbies (though most are limited right now), and a very positive attitude. Positivity has always been a strong point of mine. And though positivity does not seem to keep us from falling ill, it can greatly assist us in navigating it, and living with these adverse conditions. It’s like that one scene in Harry Potter where Ron is trying to read Harry’s tea leaves. Ron says, “So You’re going to suffer, but you’re going to be happy about it.” Ha, yea... well I think that is a good place to leave off.

Comments

I am so, incredibly sorry for your level of suffering.
No words.
That is so good you have such a wonderful wife and son and friends. Really beautiful after so many years of horror for you.
There are absolutely connections with trauma and this illness...for so many...although its rarely ever simple it seems.
My prayer this morning is that more answers and ease and healing come your way this year....because somehow, someway.
 
Hello Wolf......I think that the younger a person is when abuse occurs, the harder it is to understand and even try to feel good about oneself.

It takes a very special person to somehow do something good with one's life, You were given such wonderful gifts later in life in the form of your wife and your son. (Or you chose you wife for those gifts.)

I can remember thinking that my "luck" would change after 7 yrs., it had to. Well, as you know, one learns to play along with the game of life. No, it's not always pretty but you were given an especially difficult set of circumstances.
Feel good about not falling into the worst group.

Is there a young boy that you could now take under wing, just like the Indian did for you so many years ago ? Sometimes just taking someone out for coffee or lunch and talking shows that you've invested yourself in them and what becomes of them. I'm sure your son knows how fortunate he is. Yours, Lenora.
 
I am so, incredibly sorry for your level of suffering.
No words.
That is so good you have such a wonderful wife and son and friends. Really beautiful after so many years of horror for you.
There are absolutely connections with trauma and this illness...for so many...although its rarely ever simple it seems.
My prayer this morning is that more answers and ease and healing come your way this year....because somehow, someway.
As I am for the amount you've been suffering these last handful of years.
There is no other way I would have learned the amount I have about the world and myself without having experienced all that I have. This is the life I have led and every moment has made me who I am today, and given me all that I have today. If I was given the choice to go back and change any of it, I would decline.
It has been my path, and I accept that. And here I am :)
But I thank you for your kind thoughts, and may they rebound upon you and your life a thousand fold this year!
Best-
 
Hello Wolf......I think that the younger a person is when abuse occurs, the harder it is to understand and even try to feel good about oneself.
True, but I was "lucky" enough to have the interactions with my mentor at a very young age, and he taught me to find myself, understand a greater connection to all things, and to always do my absolute best in whatever I was focused on, because that was the Now, and the only place where we have power. Among many things, he taught me how to connect to and build a solid foundation within. I have no doubt it is the only reason I survived all that I did, because I found myself fall back into that foundation countless times to get through.
Is there a young boy that you could now take under wing, just like the Indian did for you so many years ago ? Sometimes just taking someone out for coffee or lunch and talking shows that you've invested yourself in them and what becomes of them.
I worked with so many people from so many countries over a ten year period in assisting them with self discovery, and discovery of the world around them. Some people who were on the brink of suicide reached out to me through the years as well. And today they email regularly telling me about all the wonderful things that happen in their lives, because they are still here. Every year I get emails from people around the world telling me how lessons they learned in a class I taught many years ago still helps them today. I've taught people from all over America, Canada, Finland, Sweden, Netherlands, the UK, Ireland, Germany, Switzerland, France, Israel, Iraq, Thailand, China, New Zealand, Australia and Guatemala.
In short, I'm pretty solid in who I am, what I've done thus far in my life, and continue to have the drive (even physically feeling like crap) to help where I'm able.
I'm sure your son knows how fortunate he is.
My son and I have a good relationship. It was rough at times when he was quite young, because I was under so much stress from my assignments, and dealing with regular injuries. He remembers when I was poisoned, though he was so young he didn't understand any of it. But over the last eight years or so we've created a very strong bond, and have had a very good relationship ever since. Once he was old enough my wife and I told him everything, which helped him understand a great deal, and gave us common ground to rebuild.
Best-
 
It;s nice that you have a good relationship with your son. I agree that they have to be a certain age before they can truly understand something, so holding things that are above them back until they're older is usually best.

Our "girls" are now almost 51 and the younger sister will be 48. We've been fortunate with them, although there were certainly moments along the way....but isn't that usual? Both married men very much like their father and life is good for both of them. 4 grandchildren....and those years really fly by. The older ones are presently on their way back to school for the new semester. We love having them around and try to stay interested in their world.

You certainly have taught a variety of children from different countries. I wish our children generally had more respect for teachers in our world.

I'm tired of forcing myself to sit up today....just way too painful, and now I'll get to suffer the regrets of not finding a comfortable mattress over the past 2 yrs. or so. I wasn't planning on having an accident, so be prepared everyone! Yours, Lenora.
 
Hi @Nord Wolf.......I read your story again, and I can see that you were giving us your reasons for why you have ME.

I fully believe in a total mind/body connection and when one is hurt the other will often follow through if the abuse was bad enough.

May I ask who abused you if our father and uncle didn't do this? That's pretty bad abuse....not just an unfortunate circumstance in life. Why didn't they step in? (Althouh a family friend abused me...my parents trusted him, etc.)

I'll be anxious to read about your Indian mentor and how the two of you connected.

Also, do you think you were groomed for this continuous cycle of violence? If so, no wonder the government doesn't want this news out....it's horrific.

I'm sure that writing may help put things in some sort of order for you....and you're at an age where you can actually think things through.

Again, thank goodness that you have such a wonderful wife and son.

Instead of that being classed as abuse, I would put it under the heading of torture. How awful for you, but you chose a better way to handle the abuse. You reached out to young people, your mentor taught you well, and we'll find out more of your story as you choose to let it be shown.

How long have you been away from Special Ops? Keep writing and find some moments for laughing in the midst of it all. That's not denying it...that's simply coming up for air for a drowning man. Yours, Lenora.
 
@Nord Wolf Oh I think its much more than just a theory that trauma causes (or can contribute to causing) ME/CFS. Trauma leads to different faulty processing and patterns that in part can set people up for all kinds of disease - just look at the Adverse Childhood Events Survey.

I am sure trauma from growing up in an abusive household contributed to my getting sick. When I got ME, I was forced to see all the damaging shit I was still carrying around (perfectionistic tendencies, fear, inner critic, etc.). You didn't mention what you're doing to heal from the trauma? I would like to try somatic therapy although haven't found a good therapist yet. I'd also like to try plant medicine/psychedelics.
Since you're having night terrors/PTSD, measures such as the stellate ganglion block I mentioned would be interesting if you can ever get out to do it. Maybe you could get into one of the MDMA research studies for PTSD too.
 
I fully believe in a total mind/body connection and when one is hurt the other will often follow through if the abuse was bad enough.
Agreed.
May I ask who abused you if our father and uncle didn't do this? That's pretty bad abuse....not just an unfortunate circumstance in life. Why didn't they step in?
Let’s just say it care from multiple females… and family are complicated and what should be, isn’t always what comes to pass.
Also, do you think you were groomed for this continuous cycle of violence? If so, no wonder the government doesn't want this news out....it's horrific.
I was point-blank told I was once I started training. My father was in the military, as was my uncle, my grandfather, my great uncles, my great-grand father… The agency had even made contact with my parents shortly after I was born. It is a long and complicated journey.
I'm sure that writing may help put things in some sort of order for you....and you're at an age where you can actually think things through.
Indeed it has and does.
Again, thank goodness that you have such a wonderful wife and son.
Agreed!
Instead of that being classed as abuse, I would put it under the heading of torture.
Yes my entire medical team also terms it all as “torture”. I’ve always been told I have a strong and relentless spirit… so here I am.
How long have you been away from Special Ops? Keep writing and find some moments for laughing in the midst of it all. That's not denying it...that's simply coming up for air for a drowning man.
I’ve been out since 06, but as my healthcare team can tell, my nervous system and many parts of my mind have never left.

I do actually have a good sense of humor, which has helped a lot. :)
Our "girls" are now almost 51 and the younger sister will be 48. We've been fortunate with them, although there were certainly moments along the way....but isn't that usual? Both married men very much like their father and life is good for both of them. 4 grandchildren....and those years really fly by. The older ones are presently on their way back to school for the new semester. We love having them around and try to stay interested in their world.
So nice to hear you have a solid family that cares for one another. I find it more rare these days than it should be.
I wasn't planning on having an accident,
What sort of accident? Hopefully you heal up quickly from it. And yes a good mattress is key! :)
 
Oh I think its much more than just a theory that trauma causes (or can contribute to causing) ME/CFS. Trauma leads to different faulty processing and patterns that in part can set people up for all kinds of disease - just look at the Adverse Childhood Events Survey.
I agree, just didn’t want to put it out as any sort of “fact” when there is not yet documents to point to.
I am sure trauma from growing up in an abusive household contributed to my getting sick. When I got ME, I was forced to see all the damaging shit I was still carrying around (perfectionistic tendencies, fear, inner critic, etc.). You didn't mention what you're doing to heal from the trauma? I would like to try somatic therapy although haven't found a good therapist yet. I'd also like to try plant medicine/psychedelics.
About 13 years ago I was using CBT for a few years, which made things worse. Then I utilized DBT, which didn’t tell me anything I didn’t already know. I’ve used specialized Japanese acupuncture protocols for dealing with trauma and helping the organs reconnect with their proper emotions, but that was wicked intense and proved too much. Exposure therapy was another, which proved too much to handle. I also worked with trauma sensitive yoga, tai chi, meditation, visualization, cranial sacral, biofeedback, and other such modalities. From 2016 through 2020 I worked with EMDR. We had some amazing breakthroughs, but after a while we would get so deep my system couldn’t handle the intensity of what was coming up, nor regulate to pace the decent. It was at that time as well the ME/CFS was getting much more severe, and I couldn’t handle the sessions at all. The guy I was working with at the time has since become a great friend. Retired cop, first responder, etc. We have a lot in common.
Since you're having night terrors/PTSD, measures such as the stellate ganglion block I mentioned would be interesting if you can ever get out to do it. Maybe you could get into one of the MDMA research studies for PTSD too.
I contacted the IV Solution and Dr Lipov, but have yet to hear back. I’ll try agin in a week. There is nobody anywhere near my location who offers such a service. And at this time I am unable to travel. If I can get in contact with IV Solution, perhaps they have some suggestions.

My EMDR therapist and I did look into all the psychedelic studies and trials out there. My entire healthcare team was on board with looking into that idea. It was eventually, unanimously, that it was a bad idea for my system. My case is extremely complex as I don’t just have “trauma”.

My medical team is global. I have worked with some of the top doctors in trauma in the world. My case became so well known by some of the top trauma experts in the world, and I was invited to speak at the global EMDR conference in Glasgow in March of 2020, but due to the pandemic, it was canceled. I worked with professional therapists specializing in trauma who were retired police, retired military, PhD’s, and even a couple whose specialty is government mind control recovery… and the latter is the reason any psychedelic treatments have been agreed should be avoided.

Have you reached out to anyone to see about getting into those trials? Have you found any somatic therapies close to your location? They seem to be growing in number and pretty easy to find.
Best-
 
I contacted the IV Solution and Dr Lipov, but have yet to hear back. I’ll try agin in a week. There is nobody anywhere near my location who offers such a service. And at this time I am unable to travel. If I can get in contact with IV Solution, perhaps they have some suggestions.

My EMDR therapist and I did look into all the psychedelic studies and trials out there. My entire healthcare team was on board with looking into that idea. It was eventually, unanimously, that it was a bad idea for my system. My case is extremely complex as I don’t just have “trauma”.

My medical team is global. I have worked with some of the top doctors in trauma in the world. My case became so well known by some of the top trauma experts in the world, and I was invited to speak at the global EMDR conference in Glasgow in March of 2020, but due to the pandemic, it was canceled. I worked with professional therapists specializing in trauma who were retired police, retired military, PhD’s, and even a couple whose specialty is government mind control recovery… and the latter is the reason any psychedelic treatments have been agreed should be avoided.

Have you reached out to anyone to see about getting into those trials? Have you found any somatic therapies close to your location? They seem to be growing in number and pretty easy to find.
Best-
Hopefully you can find some way to try the ganglion block. Even if it doesn't work for extended periods of time, it would be a much needed break for your system. Gotta start somewhere to break the chain. If you know some of the top trauma experts in the world, maybe they have some hook ups or ideas on how to get the attention of these doctors?

I did apply for an MDMA trial. I'm sure they get lots of applicants and some that are better/harder cases than me, so I never heard back. I always find a way to make things happen some way, eventually ;)
I have had therapists before and honestly they are the same as docs: you need a good one. Just like docs, they are rare and I have not found a good one yet. When I've possibly found one they have no room for new patients (and also very expensive). It's particularly difficult during Covid times as everyone is seeing a shrink having lost their minds!
 
Hopefully you can find some way to try the ganglion block. Even if it doesn't work for extended periods of time, it would be a much needed break for your system. Gotta start somewhere to break the chain. If you know some of the top trauma experts in the world, maybe they have some hook ups or ideas on how to get the attention of these doctors?
I agree, which is why we are looking into it. Seems a tough time of year to get hold of anyone. They all seem so incredibly busy. But we continue trying.
Yes even those specialist I've worked wit over the years have been trying. The biggest trick right now is my inability to travel. Therefore anything beyond an hour (of which I'd have to be laying down in the backseat), is undoable. This is why we are hoping my system will regain enough energy in spring to make a trip, when we find someone who will have an opening.
I always find a way to make things happen some way, eventually
That's right, just have to keep at it and try as many angles as you can manage.
I have had therapists before and honestly they are the same as docs: you need a good one. Just like docs, they are rare and I have not found a good one yet. When I've possibly found one they have no room for new patients (and also very expensive). It's particularly difficult during Covid times as everyone is seeing a shrink having lost their minds!
I completely agree, a solid therapist is difficult to find. It took me years and many dead ends to find a genuinely high quality, solid one... therapist and doctor. They are out there, but few and far between. For me it worked out great. I had given up on therapists. Then I went to a new doc (my main doc still today), and he had worked for 10 years in a rescue helicopter as a trauma doc. He knew a lot about ptsd as everyone he worked with developed it, him included. Anyway, he set up a meeting with the top state social worker for me. Turns out she not only new every therapist in the state, but had backdoors into most as well. Because of my service background, she was able to hook me up with the guy I still work with today. He only works with first responders, cops and vets. A lot of times its just getting to know the right people who are properly placed to get doors opened.
Yea this ridiculous pandemic has really clogged things up. Autumn and winter were always busy times for therapists and doctors, between illness and depression, but the last couple years have really been insane.
 
Hello All.....It must be much easier to deal with people who have been through trauma themselves, I can surely understand. After all, even patience is required to wait through various stages and a lot of people don't know how to deliver that (what seems basic) thing. It's complicated. It would help if these things were explained to us.

Yes, the first 3 mos. of the year are very difficult for arranging anything medically, Again, we just don't know. Make all appointments for the new year about Thanksgiving if possible. We learn as I've also done the same. If it's an emergency, please be sure to mentioned it....and if it's a true emergency, go to the hospital. There are no easy answers.....especially in the days of COVID. Nothing is easy, is it?

I'm always interested in the outcome of trials. It's nice to know that people are still hoping to enrter them, and I thank you. We can never show our appreciation enough....at least as far as I'm concerned. Yours, Lenora.
 
Hi Wolf....Well, I'm sure your warm clothing is perfect for this weather.

My accident was probably caused by another type of seizure. I'm just mind my own business and suddenly find myself on the floor with absolutely no memory of the event. It hurts like the devil this time....pelvis fractured in 5 places, one fracture in the lumbar area and now bone on bone osteoarthritis....and somehow I'm supposed to get better through all of this. Me, no one else. I understand as I've been through PT many times, but this one seems a bit far fetched. Anyway, chances are very good that I'll be crippled so we'll see. I've been moving rather constantly, pain meds don't help much nor are they even available....so I'm left with my ever loving ice pack which keeps me going. Of course I seize up afterwards.

But others suffer, I realize that and will just have to get through it...and I'll do just that. It looks like a medical warehouse around here....every piece of equipment you can possibly think of. A mess & poor Rod keeps trying to clean it up. For nothing.

I hope you're doing as OK as you can at this point. Do/did you go snowshoeing? Your son's probably the one really interested in the great outdoors in a wholehearted way today. Which doesn't mean that you wouldn't like to be, but our bodies do have limitations. He must be a very interesting young man, or is he quiet? One never knows.

Well my medical team isn't global; just confused....mightily. If they can lay it off on someone else's doorstep they'll do it, or they simply ask me what I want. My neurologist of many, many years is the best of the group and I rely heavily on him for many things. Apart from that, I'm just like everyone else....scratching away until someone notices something. OK....Take care everyone. Yours, Lenora.
 
Hi Wolf....Well, I'm sure your warm clothing is perfect for this weather.
Oh it is. I've been living much of my life in the north and the mountains, so I've got some great winter gear.
You know that for some odd reason you are the only person on the forum I never get a notification for. Not even in the Alerts above. I never know when you reply to any of my threads unless I go looking to see. No idea why, but you are a ghost.
My accident was probably caused by another type of seizure. I'm just mind my own business and suddenly find myself on the floor with absolutely no memory of the event. It hurts like the devil this time....pelvis fractured in 5 places, one fracture in the lumbar area and now bone on bone osteoarthritis....and somehow I'm supposed to get better through all of this.
Vey sorry to hear this. Sounds like a tricky area to heal at your age and with your health issues. And yes one needs to be careful when mixing pharmaceuticals and herbs... not all are compatible.
I hope you're doing as OK as you can at this point. Do/did you go snowshoeing?
Well my head pressure is down a lot since I started taking higher doses of Lion's mane, which reduces brain inflammation. But my lungs right now are in really rough shape.
I used to snowshoe, downhill ski, cross-country ski, ice climb and many other winter activities. One day perhaps I'll be able to again! My son is an avid snowboarder. He can speed down double blacks all day and make it look easy. But snowshoeing was never his thing.
He must be a very interesting young man, or is he quiet?
He is our only child... so no he is not quiet! He loves to converse :)
Well my medical team isn't global; just confused....mightily. If they can lay it off on someone else's doorstep they'll do it, or they simply ask me what I want. My neurologist of many, many years is the best of the group and I rely heavily on him for many things. Apart from that, I'm just like everyone else....scratching away until someone notices something.
Sorry to hear that, though it seems more common than not. For me the neurologist was the idiot of the bunch and we no longer work together. I'm pretty hard nosed when it comes to working for me. I'll give you my best, and you give me yours or there is no deal. The medical team I have took years to find, and we remain working together because they give their all and never stop looking for answers anywhere possible. But even so, it is slow going.
 
Hello Wolf......I know you have to put my name on the alert list, but I forget how this is done, Perhaps one of our smart (& nice) moderators? Beyond that I have no ideas,

Yes, I'm sure you have quite a collection of warm clothing, Do you make them yourself......or does someone locally? How about your wife? She may buy at a local boutique....one of a kind type of things. Very nice.

It's good that your son is a chatterbox. Often only children tend to be quiet...and no, I don't know why that is. Both of ours also have a lot to say....and we enjoy hearing it. Actually, both of their families are the exact same way. I have to remind them that someone has to do the dishes!

Up early with pain, actually up all night with it.....healing is the only thing that will help. I just wish they actually offered some help with what's going on. Rod can't believe that this is how we're left....he has a bit to learn, I'm afraid.

No, my neurologist has always been an ally. Rod also sees him, so we all know and have know each other for probably 35 years or more. So if help is to be given, he's the one who will help me and just knowing that he believes me is a great help. Well, I'm sure that most of you know exactly what I mean. I think the majority of people would be rather shocked at what we go through for even minimal pain relief. Now they're all becoming Pain Specialists and that's not exactly a great help. Just not easy for us. Stop complaining!! OK.

Not much to say and I hope you'll forgive me. Our very athletic daughter loves to snow board also....loves anything that involves movement. Your son is probably the same. I hope you're making some progress. Yours, Lenora
 
I know you have to put my name on the alert list, but I forget how this is done, Perhaps one of our smart (& nice) moderators? Beyond that I have no ideas,
Yes that is odd, as you are on my "follow" list, and I never specifically added anyone to any "alert" list. Oh well, I never much liked tech.
Yes, I'm sure you have quite a collection of warm clothing, Do you make them yourself......or does someone locally? How about your wife? She may buy at a local boutique....one of a kind type of things.
Most of what I wear in the winter is wool, and yes much of it is handmade by folk I know with sheep. My wife does make some of the heavy clothing, but not so much these days. Years ago with my wilderness school I wrote a long article dealing with winter wear. Perhaps I will post it here on my blog soon...
Up early with pain, actually up all night with it.....healing is the only thing that will help.
I'm sorry you are dealing with that level of pain right now. It is exhausting.
Do you have any IR heating pads to use?
 
Just coming across your posts. First, accept my utmost respect for your duty to our Country. You are a courageous man. Quite the bada**! It upsets me when I hear of Vets being abandoned after their selfless dedication to our safety and security.

My ME/CFS began immediately in basic training after getting our multitude of shots. I was also incubating a viral syndrome (EBV most likely considering my symptoms resembled mononucleosis) at the exact same time of my shots according to my STRs. I also am convinced, but can only rely on my faulty memory, that there was an unrecorded shot given at that time. The sudden onset of my ME/CFS symptoms and a transient alteration of awareness right after my shots seems clear to my ME/CFS specialist that my illness began due to encountering ME risk factors present at that time.

For many years I didn't know what was going on with my multisystem multisymptom illness. I pushed through it until I couldn't anymore. That likely caused cumulative damage leading to my current marked impairment in my functionality. Now I'm finally getting answers and have learned that I have ICC-ME.

Coincidentally, I have taken things proven to help with ME that helped me "push through" my illness in the past. I would internet search symptoms and take requisite supplements. I've spent a fortune on "nutraceuticals," but have only had results with a synergistic multivitamin called Beyond Tangy Tangerine (other knock-offs clearly didn't work), Quercetin, Zinc, NAC, Liposomal Glutathione, Omega 3 w/ CoQ10, and Turmeric standardized to 95% curcuminoids. What's interesting is these things actually work on covid too. Nonetheless, "something" with covid has me unable to regain even my post-morbid functionality (particularly with cardiovascular and cognitive functionality it seems).

Covid induced a severe relapse of my ME/CFS. Long covid symptoms are similar to snake venom poisoning and ME/CFS. Further, venom peptides have been found in covid patients but not healthy controls. IT IS VERY CURIOUS TO ME THAT MR. WOLF'S ME/CFS BEGAN AFTER HIS POISONING, the blood test results of which also showed venomic peptides!

Venomic peptides target the brainstem just like ME does. I have had a considerable progression of my ME since 'rona began. The core supplements mentioned may help with my quality of life, but not with increased functionality. I wonder if there is a venomic peptide link to ME/CFS since they both come from a dysfunction in the CNS and brainstem, and since many of those supplements mentioned are therapeutic to ME/CFS and also natural inhibitors to snake venom poisoning?

In other words, ME/CFS/GWI/COVID/VENOMICS all seem to be the same thing (i.e. neurological disorder of the brainstem) with the same natural therapeutics (e.g. Quercetin, zinc, NAC, curcuminoids, etc.). The coincidence is uncanny!
 
all seem to be the same thing (i.e. neurological disorder of the brainstem
my brainstem feels quite ill (not for military reasons)..for thirty years: something back there is the center of what feels wrong

My ME/CFS began immediately in basic training after getting our multitude of shots
I am terribly sorry to hear this happened to you. Its terribly wrong.

Something must be done to better protect our military population. You should never have been given a single shot while your immune system was activated already dealing and coping with something else.

They gave my college student friend eight shots in one day. This is physical abuse. (the doctors at the military base, where her husband is stationed had no issue with this approach to damaging one's immune system. The shots should have been spread out over many months, at a minimum.

I'm aware of all this Gulf War and burnt Pit stuff. They keep doing it. Generals should be court marshaled, you ask me.
 

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