The nurse today said:

I've been doing meditation because I discovered that although it seems like my brain is going, "nobody is home" a lot of happening under the surface. The meditation calms down the nervous system enough I'm more functional. Using an app called Headspace, I use it three times per day, 15 morning, 5 at noon, 10 at night. I also deleted Facebook and social media, anything that distracts my poor tired brain. That and Yoga with Adriene on YouTube have been the two most useful things I've tried. Asking my brain to make decisions is just -- ooooh man -- that's a terrible ordeal that ends in me not functioning. I think maybe the Yoga and meditation works for me because someone is telling me what to do and I don't have to try to think. That's scary. I used to just be all about my intellectual ninjitsu and how smart I was - and now I feel like I barely hang on. I haven't found anyone in the medical field who 'gets' this.

That nurse advice could be dangerous. I drink a ton of water with ME but was told I needed even more cause my body was showing signs of dehydration and my kidney test came back bad, starting to show signs of kidney damage. I have sometimes have had to have 2 litres of saline by IV as no matter what I drink, I struggle to keep my blood volume up. Low blood volume is a common issue in ME and you can be peeing straight all your fluids as often our bodies do not hold onto them well with this condition

If those medical people who are giving you advice do not know much about ME, please take care as harmful advice is often given to those who have this. It can be handy to ask about things in the main forum where more will see your post. best luck

I hear you on not wanting to Google, but I second @taniaaust1 sentiments re advice from the unknowing who are absolutely certain they're right and are, like, really really ready to gamble your life on that dangerous assumption Chin up, your courage is inspiring.