I had the best summer I had in 10 years, I traveled and did a lot of the things I put in my bucket list when I am bed ridden.
I keep a notebook next to my bed where I "create" hope by doing achievable goals of things I desire to do but can't in the moment, but I can do as I get better: silly things like dance, travel, put makeup and get dressed up....
Fall, Autumn
I am in that moment every year where no matter what I do I start to feel every day more tired, I can do less and less everyday. This happens every fall for the past 10 year. How I will be will depend a lot of how hard the crash / relapse will be. I eat great and try to not miss any supplement or prescription but no matter what I do the fall is always where my worst come for my ME/CFS.
Every 2h or so I am in need of closing my eyes and resting. Everyday making it through the whole day at work is becoming very hard. I know this is temporary, but I don't want to push myself this year. Don't want to spend months trying to regain terrain again, So I will try to stop myself earlier this year.
The plan:
- Increase sleeping hours 2h everyday and make sure I don't skip my noon nap.
- Reduce the exercise and walking. Do more stretching instead.
- Clean food no cheating whatsoever.
- More water.
- Use my nasal spray to reduce the body fighting w allergies on top of everything else.
Reduce cooking, specially dinner for family, do more simple stuff so I am not as long standing.
I keep a notebook next to my bed where I "create" hope by doing achievable goals of things I desire to do but can't in the moment, but I can do as I get better: silly things like dance, travel, put makeup and get dressed up....
Fall, Autumn
I am in that moment every year where no matter what I do I start to feel every day more tired, I can do less and less everyday. This happens every fall for the past 10 year. How I will be will depend a lot of how hard the crash / relapse will be. I eat great and try to not miss any supplement or prescription but no matter what I do the fall is always where my worst come for my ME/CFS.
Every 2h or so I am in need of closing my eyes and resting. Everyday making it through the whole day at work is becoming very hard. I know this is temporary, but I don't want to push myself this year. Don't want to spend months trying to regain terrain again, So I will try to stop myself earlier this year.
The plan:
- Increase sleeping hours 2h everyday and make sure I don't skip my noon nap.
- Reduce the exercise and walking. Do more stretching instead.
- Clean food no cheating whatsoever.
- More water.
- Use my nasal spray to reduce the body fighting w allergies on top of everything else.
Reduce cooking, specially dinner for family, do more simple stuff so I am not as long standing.
