Years later, my primary care physician sent me to a cardiologist to see about my lightheadedness. The cardiologist ran some tests and diagnosed me with autonomic insufficiency. He added that this is causing orthostatic hypotension. He explained that my heart is not getting enough blood to adequately circulate to my body. And so the lack of oxygen being sent to my head is causing the lightheadedness.
A few months ago I got appendicitis and went to the hospital. I explained to the hospital staff about my orthostatic problems caused by autonomic insufficiency. They showed great concern and were careful not to keep me standing too long. I also explained my diagnosis where I get my oncology follow-ups. The doctor was very concerned and assured me that from now on they would take me from station to station in a wheelchair.
My orthostatic symptoms remained the same. The name of the illness changed. And the way people treat me is as different as night and day.