R3 / Day 6

Judee · Mar 27, 2019

Did your viral titers test high at some point which made it easier for you to ask the prescribing doctor for the Valganciclovir either now or on your other two rounds?

ArgyrosfeniX · Mar 28, 2019

Judee said:
Did your viral titers test high at some point which made it easier for you to ask the prescribing doctor for the Valganciclovir either now or on your other two rounds?

Hi Judee,
I’ve never tested positive for a viral load. The first time I used the valganciclovir, I told the MD that I wanted to do what was in Dr. Montoya’s preliminary Valcyte study and showed him a copy. I later learned that they weren’t sure if it was the antiviral effect, or the autoimmune suppression side-effect that worked for PwME. Could be both?

This 3rd Round, all I had to say was “It worked for me before and I’d like to do it again. I recommend safety labs every two months and I’ll take FolaPro and B-12 to support my liver.” Primary’s response was “Sure.” Literally. Had been stressing for days about it and was ready to plead, and got an immediate “Sure.” Took me a moment to pick my jaw off the floor. 😂

Judee · Mar 29, 2019

Your response helps a lot.

I'm going to a new doctor next month and if she is at all receptive to ME/CFS, at some point I want to discuss Valcyte with her.

I'll look up Dr. Montoya's study so I can take a copy if I do.

Thank you so much.

R3 / Day 6

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