I am in the 9th year of bedridden with whatever acronym they want to label this as. It totally fits the ME/CFS/SEID list of symptoms, but what the hey, my doctors refuse to accept this as a REAL disease. Rather, then continue to heap psychological labels all over me, which is pushing me farther, deeper down Alice's Rabbit hole and I want help to dig out.
If anyone knows of a caregiver especially in Hawai'i and more especially, on the Big Island, I would appreciate the referrals more than you can imagine. Please. I was not sick when I moved here. I became ill so fast and lost mobility and am stuck out here in the middle of the ocean with unbelieving caregivers.
Here is a link to my blog (if this is unallowed, just inform me and I will delete it).
just search for "fatiguefibro.blogspot.com"
Thank you ♥
If anyone knows of a caregiver especially in Hawai'i and more especially, on the Big Island, I would appreciate the referrals more than you can imagine. Please. I was not sick when I moved here. I became ill so fast and lost mobility and am stuck out here in the middle of the ocean with unbelieving caregivers.
Here is a link to my blog (if this is unallowed, just inform me and I will delete it).
just search for "fatiguefibro.blogspot.com"
Thank you ♥
