The Recovery/Recovering Stories : ME/CFS is heterogeneous disorder with many different subsets. None of the treatments in the Recovery/Recovering stories will fit all or even most patients.
I have been sick for almost 13 years now, kicking and screaming all the way, always looking for a way out, trying this, that, and the other, and always planning to be on my feet again sometime next week or next month (but) after 13 years I am more sick than ever, in spite of all the positive thinking, can-do-attitude, research, treatments and specialists of different calibers and price ranges, and so on. Ive spent much of the years since 1995 sidelined and underground, severely limited by fatigue, pain, brainfog, headaches
Despite devoting my life to helping people overcoming sickness I felt completely impotent when faced with the disabling illness my wife was experiencing. I first referred her to a well respected Rheumatologist at our University Medical Center. He was very supportive and open-minded. He helped her with the sleep issues and then over the years tried a variety of analgesics and antidepressants."
They went the alternative route trying acupuncture, allergy, kinesiology and with the help of the Internet various treatments such as elimination diets, different supplements, etc. At a chronic fatigue syndrome (ME/CFS) clinic in Torrance, Ca. after donating 26 vials of blood Berit went on thyroid replacement and a variety of supplements.
View attachment 507 Her husband, however, became alarmed when she was prescribed an array of strong anti-pathogenic drugs including two antibacterials (Septra, Rifampin), an antiviral (Amantadine) two antifungal pills, silver colloid IV infusion and IM immunoglobulin injections all at once. After doing a literature review and consulting with several infectious disease specialists he felt the treatment constituted a shot in the dark that could have significant potential side effects and they stopped the treatment.
Her search for a cure at this point was just about over managing the disease seemed to be the best she could hope for. Her participation in her familys life was at a nadir; shed been unable to attend a single of her sons school events over the past year.
She did have one last option though. She contacted me in May, 2008 because I was doing the Amygdala Retraining process and she was going to try a similar processOriginally from Norway, she reported that a nursing friend from school whod had severe ME/CFS for two decades stated that shed been cured. Digging a bit deeper she found more stories of cures. Berit decided to fly back to Norway and give it one last shot. She did the Lightning Process course on July 4th, 5th and 6th, 2008.
I next heard from her almost a year later. Her tone had changed considerably. She apologized for not following up on sooner but noted that
Having my health back is busy! I had so many things to catch up on, with my kids, with my house, with just enjoying feeling normal.
I experienced a clear shift within the three day training. I continued using the techniques over the next days and weeks, and was amazed at the effect on things that I had felt quite hopeless about, like brainfog, blood sugar balance, dizziness, sensitivity issues etc.
Underpinning the LP is an understanding of the theory of neuroplasticity and how it is possible to improve physiological function by re establishing better neurological patterns. For me this helped explain my cleared physiological symptoms and provided me with tools to influence the recovery process.
I have gotten my life back, and I cant stop being excited about it, celebrating every day. An added bonus is when people around me comment on it, and wonders what kind of amazing super-vitamins I am on, comments on me looking healthy, even ( dare I say ) younger"
Traveling once a month from Loma Linda, CA to LAX and then to London and then attend all-day lectures first appeared like an impossible challenge, but have gone over like I could NEVER have imagined. After having gotten up at 5:30 AM in London, and traveled all day to Los Angeles then 2-3 hours by shuttle from the airport she has on more than one occasion come straight to a program at school (like a band-concert) and enjoyed it. (Last year she only came to one such program and I had to take her home exhausted before the program started).
Life is not perfect her husband noted that She still has some days with sub-optimal energy, but dont we all she does experience some jet-lag, and can over-do house cleaning etc. and drag some the next day. Berit now has normal problems, that healthy people everywhere do; her old energy and level of health are back. Her husband, of course, was very thankful:
Over the years I had resigned to the fact that the kids and I would have to plan our lives with very limited support from Berit. Now she is back in our lives and we love it!