Introduction to me
- ME/CFS since 2016. Mostly housebound. Varied btwn moderate to severe to moderate-severe.
- Designer, entrepreneur, management consultant, professional events. Do-gooder, thinker & doer, visionary (LOL can hardly believe that was me). Haven't been able to work since 2017. Loved my career - made a difference, built community of special creative kind people.
- learning ukulele. Have filled out 18 and a quarter sketchbook/journals in the last 6 years. Make zines. One day hope to make book from best bits of sk/ournals. Will probably be something deep about chronic illness and trauma healing.
- queer jewish polyamorous mixed ethnicity Londoner, probably autistic
- I miss coffee and bread
Tips
- play ONE song a day, do only ONE drawing a week (or whatever is too small to have an impact on your health). Means you can have a regular practice of it. So you CAN sing, it's part of your daily identity. If it means an artwork takes months, so be it. You still end up having done it. It's not all or nothing.
- use mediums that don't require clean up (get into pens, forget lino printing). Put ukulele within arm's reach.
- caco nibs/hot chocolate/dark chocolate give me emergency energy
- acyclovir fixed my viral symptoms
- LDN allowed my brain fog to lift enough to have ideas again, to feel more myself
- 5 mins yoga daily prevents aches more than 2x 20 min walks a week.
- cocktail of supplements... luteolin and selenium are undersung
- radically accept limitations and oneself. Then the right people will come to you. You show them how to respect you by how you respect yourself. Have dates that are radically accessible to you. I will only have dates in my garden.
- learn to ask for help by starting with small things you don't really NEED to test if a particular person is not going to be weird about it
- live somewhere quiet where you can rest. If not, get Loop earplugs. Comfortable for side sleeping, effective.
- lots more tips, hence the one-day book
- ME/CFS since 2016. Mostly housebound. Varied btwn moderate to severe to moderate-severe.
- Designer, entrepreneur, management consultant, professional events. Do-gooder, thinker & doer, visionary (LOL can hardly believe that was me). Haven't been able to work since 2017. Loved my career - made a difference, built community of special creative kind people.
- learning ukulele. Have filled out 18 and a quarter sketchbook/journals in the last 6 years. Make zines. One day hope to make book from best bits of sk/ournals. Will probably be something deep about chronic illness and trauma healing.
- queer jewish polyamorous mixed ethnicity Londoner, probably autistic
- I miss coffee and bread
Tips
- play ONE song a day, do only ONE drawing a week (or whatever is too small to have an impact on your health). Means you can have a regular practice of it. So you CAN sing, it's part of your daily identity. If it means an artwork takes months, so be it. You still end up having done it. It's not all or nothing.
- use mediums that don't require clean up (get into pens, forget lino printing). Put ukulele within arm's reach.
- caco nibs/hot chocolate/dark chocolate give me emergency energy
- acyclovir fixed my viral symptoms
- LDN allowed my brain fog to lift enough to have ideas again, to feel more myself
- 5 mins yoga daily prevents aches more than 2x 20 min walks a week.
- cocktail of supplements... luteolin and selenium are undersung
- radically accept limitations and oneself. Then the right people will come to you. You show them how to respect you by how you respect yourself. Have dates that are radically accessible to you. I will only have dates in my garden.
- learn to ask for help by starting with small things you don't really NEED to test if a particular person is not going to be weird about it
- live somewhere quiet where you can rest. If not, get Loop earplugs. Comfortable for side sleeping, effective.
- lots more tips, hence the one-day book
