The doctors here even supported me move out from this town and I had to put myself onto a priority housing transfer list thou I didnt want to move from my home town Ive been in since a young child, just so I could get help and there was support here of all kinds all along...
support to take me to medical appointments in next town if I needed, this org does home support and garden help, it even takes those on disability on camps so we can have outtings.
Ive gone throu so so long throu sheer hell when there was a support service here all along which the doctors werent telling me about and I can see now the doctors were trying to get me to move and not supporting me to be able to stay here, just to get rid of me.
I feel so darn angry right now.. all this hidden from me as they dont really believe one is sick when one has ME/CFS. This org started in my tiny country town in the 1980s apparently and then enlarged has spread out right throu different places in the state. (I really dont know how I didnt know about them).
All the lies doctors and other orgs in past told me "We cant get you help here as there are no services available for you".
(Disabilities SA told me in the past there was nothing really they could do for me and didnt get me support.. and the Mth Barker mental health in the past just kept refering me on...this is the first time a org has mentioned this other support org to me).
Dealing with this illness and the discrimation done to you.. sure puts one on a roller coster of emotion. I want to cry, I want to yell.. this is so bad and not fair. This treatment of us is so so wrong!
Is there a way to sue for discrimination to help stop this happening to us???? or do those who are supposed to support us allowed to have their own opinion that ME/CFS is in our heads and hence treat us like crap??
Im so glad I nowdays at least have the energy to start screaming my head off at the unfair treatment instead of like basically laying down and almost dying cause I was at the time way to sick to speak up and do anything about it or my situation.
With being this little bit better then I used to be.. hopefully I can help change this situation for myself.. but its not fair that when we are at our worst.. we are completely powerless to do anything about the unfair treatment we recieve. The sickest of us probably end up getting the worst treatment due to being the most vunerable.